Endometriosis UK | HealthUnlocked

I feel trapped. I had my laparoscopy surgery in February and I was diagnosed with endometriosis. Since the surgery my pain has leveled up, it’s so much worse...

My daughter has just turned 16. Since christmas she has been so unwell in unbearable pain. She was told she has Endometriosis and has been reffered to...

Morning, I'm so sick of our medical profession's approach to just fixing symptoms not the root cause. I'm on zoladex for excessive bleeding. Yesterday I had my...

Hi all, my recent scan has shown a benign cyst called an endometrioma. They have made a referral to gynaecology but I was told I have to wait a year to see the...

I’m due to go to South America and Asia shortly (multi day trekking, hiking at altitude, several days in the jungle/rainforest, islands etc basically a lot of...

Sometimes I think no one else gets it :( I was lucky to get surgery on Wednesday. This is my third surgery but I really was so so poorly afterwards. I’m...

has anyone ever had the 3 month prostap injection and if so when did you get your period? Had the injection 9th dec and last bleed/ period was week before...

hello all, I hope you’re having a comfortable day. Can I ask what others have had experience of post lap with regards to appointments to discuss...

Hi, this is my first post! I’d be grateful for any advice or experiences that may help. I’ve been going to the doctor with my symptoms for six years now (I’m...

Hi all, saw my NHS Gyne the other day. He has booked me in to see him in July to have a Hysteroscopy, in order to fit the Mirena Coil. From my previous and...

I've been on Zoladex since the end of December. I'm on it for excessive bleeding. I had an abandoned hysterectomy last September when they found stage 4 endo....

I’m looking at introducing some supplements to my routine to help manage my symptoms of endometriosis. What’s the best out there, that don’t cost the earth?

This is a loong story but I will try to date each lap for context:2011 - diagnostic non specialist 2013 - 6 hr excision non specialist June 2016 - due for...

Hi everyone, I am currently writing a book for one of my last university assignments about endometriosis, and wanted to get some real stories from women...

I was diagnosed with endo about a month ago after my first laparoscopy. I’ve had symptoms since I was about 15/16. One of the things I struggle with the most,...

Hi everyone, I recently lost my job due to the amount of time I had to have off sick because of my endo. It was a bit of a shock really, and my manager and HR...

Hello, Has anyone tried NAC (N-acetyl cysteine) supplements for endometriosis? Audrey

Advice, personal experiences, and comments most welcome.... Apologies for the long post, but it covers my story so far to provide context. So.... probably the...

has anyone ever friend a Keto diet or lower carb diet to help their endometriosis or found anything else that has helped. I don’t what to lose weight so...

Hi all I'm suffering with a flare up at the moment I'm awaiting a hysterectomy and have prostap injections but as I can only have them for 6months and a...

Hi everyone I've got Stage 4 Endometriosis which affects my ovaries, colon and appendix. I've had a laparoscopy to remove endometriosis from my ovaries for...

Back again. So after being refused an MRI twice, after lap showed no endo but severe adhesions, I complained to the consultant secretary asking for the reasons...

hi all, apologies as I have asked this before but just seeing if anyone else can add their experiences as I am due excision this summer … Sorry if this is...

Hi all, I'm new here. I have had painful periods since they began when I was 11. I think my endometriosis was masked for years when I went on the contraceptive...

Good Afternoon, I just wanted to ask if anyone else who has been on Dienogest or is on Dienogest has had bleeding in between their menstrual cycles as well? I...

Hi, I had a laparoscopy two days ago and I've been getting a pain when I lie down in my right collar bone and right lower side ribs. It gets worse when I...

I had my follow up appointment today after my laparoscopy last month where no endo was found but severe adhesions. The appointment today was to discuss the...

Hey everyone, long time no post! I am really struggling at the minute as my pain and symptoms are getting worse by the day and I still haven't been given any...

I am almost 3 weeks post-surgery (second surgery). Today at work, my manager said that I am “complex.” I’ve had a hard time with my health my whole adult life...

Hi allI had an MRI in December which was basically a bit of a shambles (not reported correctly) they THINK I possibly have DIE of the rectosigmoid. I got...