Posts - Ehlers-Danlos Support UK | HealthUnlocked

Ehlers-Danlos Support UK

2,965 members • 937 posts

All posts for June 2018

Autonomic dysfunction and travel insurance

Hi Following on from my previous post before I embark in asking for a referral from my GP next week can I ask those with an official diagnosis how this...

Hi Following on from my previous post before I embark in asking for a referral f...

Hidden

•6 years ago

1 Reply

CSF LEAK WITH HYPERMOBILTY??

My daughter has ED—HT. After taking a hard fall (on her face/head) from her horse, she’s developed a metallic tasting drip down the back of her throat most...

My daughter has ED—HT. After taking a hard fall (on her face/head) from her hors...

Justanothermama

•6 years ago

5 Replies

Update on No Access to a GP

Good morning I have an update. I posted many weeks ago that as a carer for my son who has EDS, he has been left with no medical care. I want to thank...

Good morning I have an update. I posted many weeks ago that as a carer for my...

Hidden

•6 years ago

6 Replies

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Typical!

Getting ready to go out, body goes into the usual mode of heart racing and hot sweats ending in me having to lay down and rest before finishing getting ready....

Getting ready to go out, body goes into the usual mode of heart racing and hot s...

FlissFloss

•6 years ago

1 Reply

Not wanting to feel socially isolated

Hi I'm haych I just want to get a greater understanding of how to deal with EDS & hypermobility , as I'm struggling to cope with the pain mentally -...

Hi I'm haych I just want to get a greater understanding of how to deal with EDS...

Haych3

•6 years ago

9 Replies

Rib Pain

After 5 years of visiting the doctors one finally examined my joints and declared I have Joint Hypermobility Syndrome, Hypermobility in every joint he looked...

After 5 years of visiting the doctors one finally examined my joints and declare...

Jivesmum

•6 years ago

4 Replies

Watsu water massage.

Does anyone have any experience of this? I have SLE, EDS and chronic pain. I have been advised to avoid yoga at all costs but have been offered at watsu...

Does anyone have any experience of this? I have SLE, EDS and chronic pain. I hav...

happytulip

•6 years ago

1 Reply

Anyone else get extreme back pain??

I am new here, was told i have hyper mobility syndrome a few months ago. Its taken years to get a real diagnois of anything. First they thought i had just...

I am new here, was told i have hyper mobility syndrome a few months ago. Its tak...

Lynxx

•6 years ago

8 Replies

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Posts - Ehlers-Danlos Support UK | HealthUnlocked

Ehlers-Danlos Support UK

All posts for June 2018

Autonomic dysfunction and travel insurance

CSF LEAK WITH HYPERMOBILTY??

Update on No Access to a GP

Typical!

Not wanting to feel socially isolated

Rib Pain

Watsu water massage.

Anyone else get extreme back pain??

Search posts

Latest poll

What other conditions have you been diagnosed with in addition to EDS?

Topics

Archive