Posts - Children's Liver Disease Foundation | HealthUnlocked

Children's Liver Disease Foundation

2,003 members • 703 posts

All posts for September 2012

CLDF's Leeds Bowling Day - continue the conversation!

Thanks to everyone who came to our Leeds bowling day on Saturday. It was great to meet you all and we hope you enjoyed the day, meeting new people and sharing...

Thanks to everyone who came to our Leeds bowling day on Saturday. It was great t...

Caitlin-CLDF

Partner•12 years ago

1 Reply

Living with Biliary Atresia

Andrew is 10 years. He's only had a Kasai. He has portal hypertension, a big spleen which is still growing and recently we've been told he now has a large...

Andrew is 10 years. He's only had a Kasai. He has portal hypertension, a big sp...

courage

•12 years ago

9 Replies

Hollywood Bowl Good Day

Really enjoyed bowling and was nice to meet new people.Staff at Liver foundation was brilliant.thank you for that opportunity ,Beth,Mark<Keaton and Reuben

Really enjoyed bowling and was nice to meet new people.Staff at Liver foundation...

reuben

•12 years ago

5 Replies

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Alagille Syndrome

Any information from others that may have being affected

reuben

•12 years ago

28 Replies

Is anyone familiar with the diagnosis Alagille Syndrome and what affect does it have long term?

reuben

•12 years ago

27 Replies

Anyone got any thoughts/advice/experience on testing siblings for A1ATD?

It seems to be a bit of a moral/ethical/clinical/delete-as-appropriate minefield, at least when it comes to our genetic counsellor and GP, with us stuck in the...

It seems to be a bit of a moral/ethical/clinical/delete-as-appropriate minefield...

zedgirl

•12 years ago

5 Replies

who here is going to the staines event for under 5's in november?

nicky1986

•12 years ago

4 Replies

Choledochal cyst/biliary atresia

Hello, My name is Vickie. I was born in New Zealand but have lived in both England and New Zealand over my life time. Your very lucky in Britain to have an...

Hello, My name is Vickie. I was born in New Zealand but have lived in both Engla...

Victoria2

•12 years ago

2 Replies

Biliary Agenesis

My son Reuben was born 20th March 2012 and was diagnosed with biliary agenesis at 5 weeks old and will need a transplant.he is a content cheeky fella always...

My son Reuben was born 20th March 2012 and was diagnosed with biliary agenesis a...

reuben

•12 years ago

5 Replies

Alpha 1 ATD

Hi, My name is Christine, my son Reece was born with Alpha 1 ATD. He was diagnosed at the age of 7 weeks. He was very poorly but against all the odds he is...

Hi, My name is Christine, my son Reece was born with Alpha 1 ATD. He was diagnos...

ChristineB

•12 years ago

11 Replies

Bowling at Hollywood Bowl, Leeds - 22nd September

Have you got any plans for Saturday 22nd September - IF NOT get yourself down Hollywood Bowl for fun and frolicks (full info on CLDF events page). Do you...

Have you got any plans for Saturday 22nd September - IF NOT get yourself down Ho...

Hidden

•12 years ago

3 Replies

Lacey was diagnosed with Autoimmune Liver Disease last year.

In June last year my eldest daughter Lacey became jaundice, I took her to the GPs who contacted the local hospital and they said to take her straight in. So I...

In June last year my eldest daughter Lacey became jaundice, I took her to the GP...

xtabbiex

•12 years ago

4 Replies

frustrated

really frustrated as we have to come down to Birmingham Childrens Hospital to get an Angiogram to see if they can do surgery or not, most likely not, its a...

really frustrated as we have to come down to Birmingham Childrens Hospital to ge...

cookies897

•12 years ago

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Posts - Children's Liver Disease Foundation | HealthUnlocked

Children's Liver Disease Foundation

All posts for September 2012

CLDF's Leeds Bowling Day - continue the conversation!

Living with Biliary Atresia

Hollywood Bowl Good Day

Alagille Syndrome

Is anyone familiar with the diagnosis Alagille Syndrome and what affect does it have long term?

Anyone got any thoughts/advice/experience on testing siblings for A1ATD?

who here is going to the staines event for under 5's in november?

Choledochal cyst/biliary atresia

Biliary Agenesis

Alpha 1 ATD

Bowling at Hollywood Bowl, Leeds - 22nd September

Lacey was diagnosed with Autoimmune Liver Disease last year.

frustrated

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