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Ataxia UK

4,046 members • 4,596 posts

All posts for June 2017

All terrain wheelchair.

Hi all hope summer is lifting everyone's spririts. Just looking for a wee bit of advice. Up till the end of January I mobilized with the aid of crutches. I'm...

Hi all hope summer is lifting everyone's spririts. Just looking for a wee bit of...

Leona89

•7 years ago

6 Replies

Hi

Morning hope all are well I have just been diagnosed with Cerebellar ataxia plus syndrome MIR SCAN showing disproportionate atrophy of the cerebellar vermis...

Morning hope all are well I have just been diagnosed with Cerebellar ataxia p...

Shahidzak

•7 years ago

11 Replies

Relatively new to Ataxia

I have not posted here very often, just making queries really, and here is another one. I have just received the PIP forms, and they have to be returned by...

I have not posted here very often, just making queries really, and here is anoth...

peterallison

•7 years ago

16 Replies

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Hereaditary ataxia has it been 50/50

Hi just wondering has ataxia been 50/50 in your family ? Did any one miss out

lola261184

•7 years ago

12 Replies

Cerebellar Ataxia and eye problems

I have been diagnosed with CANVAS - cerebellar ataxia being part of it. I have lots of problems with my eyes - nystagmus, oscilllopsia, double vision and...

I have been diagnosed with CANVAS - cerebellar ataxia being part of it. I have l...

3chickens

•7 years ago

9 Replies

Hans and Legs not working properly of my mother:-

hi, My mother is 47years old lady and she has problem like her hand and legs not working properly. In her case, keep dropping things, or not holding onto...

hi, My mother is 47years old lady and she has problem like her hand and legs not...

sumangill

•7 years ago

3 Replies

new to this..

iam a 49 year old lady who has tremors and balance problems currently being diagnosed as cereballar ataxia . new to this site , from north east

iam a 49 year old lady who has tremors and balance problems currently being diag...

lynn2017

•7 years ago

18 Replies

Negative test results and concerns regarding pregnancy

I am new here. Hello! My daughter was diagnosed with ataxia a year ago and all her metabolic and genetic tests have returned negative. She and her husband are...

I am new here. Hello! My daughter was diagnosed with ataxia a year ago and all h...

Alon

•7 years ago

11 Replies

Living With Ataxia

My ataxia is a product of an auto accident I had 1974, 44 years ago. I had many neurological symptoms for many years that was not bad enough to diagnose me....

My ataxia is a product of an auto accident I had 1974, 44 years ago. I had many...

brossi65

•7 years ago

6 Replies

I'm 28 male from India

I had head injury in 1996 after 1&half year i had brain surgery in 1997 & was diagnosed with cerebral ataxia my left side of the body is skaking & I have a...

I had head injury in 1996 after 1&half year i had brain surgery in 1997 & was di...

Raymond_

•7 years ago

1 Reply

Pool exercises for ataxia

Exercising in the pool I will be on hodiday at a place with a pool. That week I will not do my minibike exercises. Does anyone have any suggestions for...

Exercising in the pool I will be on hodiday at a place with a pool. That week ...

isabelalfaiate

•7 years ago

6 Replies

Is the treatment for different types of Ataxia the same?

Hi. I got Ataxia after having a traumatic brain injury in 2005. I have denied having any problems because of it until recently. My balance has gotten worse...

Hi. I got Ataxia after having a traumatic brain injury in 2005. I have denied ha...

JoAB4424

•7 years ago

3 Replies

Any suggestions would be helpful

Can anyone suggest good exercises for cerebellum ataxia - for balance particularly?

Can anyone suggest good exercises for cerebellum ataxia - for balance particula...

Chinquecento

•7 years ago

18 Replies

Tremors and Dystonia

Hi everyone, I am new to this site. I have tremors and dystonia in my neck, but now no definite diagnosis. I was thinking I could have SCA14 after reading...

Hi everyone, I am new to this site. I have tremors and dystonia in my neck, but ...

suzie44na

•7 years ago

10 Replies

genome project

Yesterday I had my regular, yearly appointment with the Ataxia Centre in London. Nothing new but I was asked to join the ‘100.000 genomes project’ which I did....

Yesterday I had my regular, yearly appointment with the Ataxia Centre in London....

klazien

•7 years ago

4 Replies

Genetic ataxia

Hi everyone I have just joined. I am having lots of tests at Kings Hospital in London. They think I have a genetic ataxia and now are trying to diagnose the...

Hi everyone I have just joined. I am having lots of tests at Kings Hospital in L...

RuthBennett

•7 years ago

5 Replies

Introduction.

Hi everyone, I have just joined up today. My name is Barbara - but you can all call me ladyntramp, these were my two dogs. I have Spinocerebella Ataxia (SCA)...

Hi everyone, I have just joined up today. My name is Barbara - but you can all c...

ladyntramp

•7 years ago

27 Replies

MY LIFE WITH CEREBELLA TATAXIA

Hi my name is Ian and I am 42 years old, and have been diagnosed with Autosominal dominant Cerebella ataxia.I found out my mum has the disease also and is...

Hi my name is Ian and I am 42 years old, and have been diagnosed with Autosomina...

ianrapson

•7 years ago

15 Replies

Holidays

Can anyone advise me on where I can get trave insurance with cerebellum artaxix

Pitbull5129

•7 years ago

6 Replies

finding communication hard

I have F.A, diagnosed aged 18, now aged 55 years. I recently moved to Merseyside to be nearer my youngest of two healthy daughters, she's now aged 26 and...

I have F.A, diagnosed aged 18, now aged 55 years. I recently moved to Merseyside...

flawlesssFayx

•7 years ago

6 Replies

Acquired Ataxia from Anesthesia - Patti Tilden

In July 2014 I went through a shoulder surgery and was given 12 drugs for anesthesia. The dosage levels were way too high, there were many duplications of...

In July 2014 I went through a shoulder surgery and was given 12 drugs for anesth...

PattiTilden

•7 years ago

8 Replies

CANVAS

I would be interested to hear from anyone who has been diagnosed with CANVAS which is a complication of Ataxia If you Google canvas you can read all about it...

I would be interested to hear from anyone who has been diagnosed with CANVAS whi...

tedjohnson

•7 years ago

5 Replies

People saying I am drunk at work

Hi when I am at work. I look tried and slur my words people say I am drunk. But I do not drink alcohol before my shift.

Hi when I am at work. I look tried and slur my words people say I am drunk. But ...

GlenHarris

•7 years ago

6 Replies

cure? Might it be possible also to rebuild?

Hi, My question is regarding a cure when they eventually find one. Is there anyway it might be regressive (might well be the wrong word)? I mean the repair of...

Hi, My question is regarding a cure when they eventually find one. Is there anyw...

Hidden

•7 years ago

9 Replies

Ataxia UK conference in October

For people who have been to previous conferences, is it worth getting a ticket? I will be traveling down from Fife in Scotland - a journey which isn't easy!

For people who have been to previous conferences, is it worth getting a ticket?...

Pukkaone

•7 years ago

2 Replies

Exceptional Mercy at the Old Vic

The Old Vic Theatre is performing a reading of Exceptional Mercy on Tuesday 20th June at 1pm. Exceptional Mercy follows the case of Jay Ricardo-Marsh, who has...

The Old Vic Theatre is performing a reading of Exceptional Mercy on Tuesday 20th...

HarryB

Administrator•7 years ago

1 Reply

About Driving

I have sca2 ataxia. please, I have a little balance problem when I can walk, but when a driving car or two wheeler this not a problem. please anyone can say a...

I have sca2 ataxia. please, I have a little balance problem when I can walk, but...

vinupr

•7 years ago

13 Replies

Ataxia unexplained

My husband had a series of strokes (ranging from a "funny turn" to a Cerebella Stroke) on the same day just over 3 years ago. We've had a rather traumatic...

My husband had a series of strokes (ranging from a "funny turn" to a Cerebella S...

Vee47

•7 years ago

7 Replies

Impatient

Finding out I had ataxia really threw me off balance (litteraly and figuratively)! I was in the habbit of always going a million km an hour and never stopping....

Finding out I had ataxia really threw me off balance (litteraly and figuratively...

Meekster

•7 years ago

14 Replies

Re The OTvest

Hi Out there. Can anyone tell me, how long must I wear the vest before I can wear it walking. I am new to this deasese and I am not sure what to do....

Hi Out there. Can anyone tell me, how long must I wear the vest before I can w...

Steve340

•7 years ago

11 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for June 2017

All terrain wheelchair.

Hi

Relatively new to Ataxia

Hereaditary ataxia has it been 50/50

Cerebellar Ataxia and eye problems

Hans and Legs not working properly of my mother:-

new to this..

Negative test results and concerns regarding pregnancy

Living With Ataxia

I'm 28 male from India

Pool exercises for ataxia

Is the treatment for different types of Ataxia the same?

Any suggestions would be helpful

Tremors and Dystonia

genome project

Genetic ataxia

Introduction.

MY LIFE WITH CEREBELLA TATAXIA

Holidays

finding communication hard

Acquired Ataxia from Anesthesia - Patti Tilden

CANVAS

People saying I am drunk at work

cure? Might it be possible also to rebuild?

Ataxia UK conference in October

Exceptional Mercy at the Old Vic

About Driving

Ataxia unexplained

Impatient

Re The OTvest

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive