Posts - AMN EASIER | HealthUnlocked

AMN EASIER

1,312 members • 1,165 posts

All posts for March 2018

Flu 2018 sping

Three weeks flu. One week out of work. Three weeks with crutches. Not violent but persistent. Next week hopefully back to fitnessing.

Three weeks flu. One week out of work. Three weeks with crutches. Not violent bu...

•6 years ago

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Good news and bad

I just received my second denial letter from SSDI for disability benefits. The disability attorney that I am working with tells me that this is sadly very...

I just received my second denial letter from SSDI for disability benefits. The d...

•6 years ago

Is there anyone going to the ALD meeting in London in May who can give a lift to a friend?

I have a friend who would like to come but doesn't feel able to drive there or use the underground. She lives near Leighton Buzzard or can go to her son near...

I have a friend who would like to come but doesn't feel able to drive there or u...

•6 years ago

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New clinical trial.

I'd sign up for this if I had the time. https://www.minoryx-advance.com/english Enrolling now. Looks promising.

I'd sign up for this if I had the time. https://www.minoryx-advance.com/englis...

•6 years ago

Disease Maps

https://www.diseasemaps.org/leukodystrophy/adrenomyeloneuropathy/map/ What say, folks? Shall we all register and plot ourselves around the world?

https://www.diseasemaps.org/leukodystrophy/adrenomyeloneuropathy/map/ What say,...

•6 years ago

More Crispr news

Scientists on brink of overcoming livestock diseases through gene editing...

Scientists on brink of overcoming livestock diseases through gene editing...

•6 years ago

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Loes Score

I'm incredibly lucky, in that my insurance is so good. I can get as much data as I want. I wasn't really paying attention before, but now I am resigned to...

I'm incredibly lucky, in that my insurance is so good. I can get as much data as...

•6 years ago

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Pulsed Electromagnetic Field Therapy

StevenSims has mentioned Actipatch before now. This is a PEMF device. I have posted before about electro medicine. A lot of solid scientific evidence for...

StevenSims has mentioned Actipatch before now. This is a PEMF device. I have p...

•6 years ago

Loes score

Had the results of my latest MRI today. I didn't even know what a Loes score is. 0.5/34, that's me. How about you lot?

Had the results of my latest MRI today. I didn't even know what a Loes score is...

•6 years ago

Vitamins and supplements

I also take B12 Neuroboin and 1000 IU vitaminD3, and omega3 VitaminE supplement.

I also take B12 Neuroboin and 1000 IU vitaminD3, and omega3 VitaminE supplement....

Abdallahomari79

•6 years ago

additional comment

Sorry for my terrible English, but remember that English is not my mother tongue. But I read it quite well. I also read French and German, and translaed from...

Sorry for my terrible English, but remember that English is not my mother tongu...

Abdallahomari79

•6 years ago

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Struggling with Returning Persistent Neuropathic Pain and Spasms.

Last month, I met a specialist in physical medicine to address my unrelenting neuropathic pain and spasms as baclofen was no longer responding. I was...

Last month, I met a specialist in physical medicine to address my unrelenting ne...

•6 years ago

Oral Baclofen and COQ10

I was wondering if oral Baclofen and COQ10 interact and cause terrible side effects ?

I was wondering if oral Baclofen and COQ10 interact and cause terrible side effe...

Abdallahomari79

•6 years ago

Habits and food

Hello, I was wondering if you are following some kind of special diet that helps to alleviate the symptoms or that can help in general to patients with AMN....

Hello, I was wondering if you are following some kind of special diet that helps...

•6 years ago

Duloxetine/Cymbalta

Needs some experience stories. I am now prescribed this by my neurologist. So far all I can tell is I’m getting some headaches and what I think is pain...

Needs some experience stories. I am now prescribed this by my neurologist. So f...

•6 years ago

Desperately in need of any helpful suggestion.

Does anyone strongly recommend Cerluten. I have been on Baclofen since last year and i am very sick and weak and my gait is worse. I have never been more...

Does anyone strongly recommend Cerluten. I have been on Baclofen since last yea...

Abdallahomari79

•6 years ago

SI Joint Pain

Does anyone else have or are suffering from SI joint pain? I’ve been in terrible pain for the last 10 months. The pain is prominent in a small area in the SI...

Does anyone else have or are suffering from SI joint pain? I’ve been in terribl...

•6 years ago

Crispr gene editing ready for human trials.

I've posted about Crispr before. https://www.ft.com/content/d6a773a0-cece-11e7-947e-f1ea5435bcc7 Not for our disease just yet. But who wants to volunteer?

I've posted about Crispr before. https://www.ft.com/content/d6a773a0-cece-11e7...

•6 years ago

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Lyrica - effective for your neuropathy?

I've tried what seems like countless medications to try to alleviate my neuropathic pain - amitriptyline, duloxetine, gabapentin, carbamazepine, baclofen,...

I've tried what seems like countless medications to try to alleviate my neuropat...

•6 years ago

Back to the Middle ages

Earth is flat or bone marrow transplant. Sad stories.

Earth is flat or bone marrow transplant. Sad stories.

•6 years ago

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Ampyra

I had taken 4-AP in compounded form years ago but did not feel much difference. I started Ampyra ER 2 months ago and have been a little surprised. I don't...

I had taken 4-AP in compounded form years ago but did not feel much difference. ...

•6 years ago

Red light therapy

Has anyone tried this for neuropathic pain? A local tanning salon was offering a free week of infrared and red light therapy, and I went in yesterday for my...

Has anyone tried this for neuropathic pain? A local tanning salon was offering a...

•6 years ago

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At my wits end(sex and anorgasmia related post)

Hello, everyone, I want to consult, amn patients sexual dysf...

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