Posts - Acoustic Neuroma Support | HealthUnlocked

Acoustic Neuroma Support

2,699 members • 903 posts

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Sonitus soundbite

Hi all, Has anyone had any experience of using the Soundbite device to address hearing loss in one ear after acoustic neuroma surgery? Just looking at options...

Hi all, Has anyone had any experience of using the Soundbite device to address ...

domforr

•19 hours ago

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Painful symptoms

hi can I ask at what point do you think this isn’t something to just live with? My headache is constant , hearing almost completely gone, swallowing unusual...

hi can I ask at what point do you think this isn’t something to just live with? ...

Zobo47

•5 days ago

2 Replies

1st post

Hi , 1st post! symptoms since August 23. Face numbness , hearing loss , eye blur , balance and swallowing issues. It’s take 8 months to speak to a neurologist...

Hi , 1st post! symptoms since August 23. Face numbness , hearing loss , eye blu...

Zobo47

•5 days ago

3 Replies

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Newbie

Hi all, I am new to the journey of AN. I have had trouble with one sided deafness, facial droop, double vision, voice and swallow for 2.5 yrs. To start with...

Hi all, I am new to the journey of AN. I have had trouble with one sided deaf...

Ion1

•7 days ago

1 Reply

Upcoming hospital appointment

I was diagnosed with a 25mm AN last October. It totally came out of the blue. I'd been suffering from Long Covid for over a year and I started to have...

I was diagnosed with a 25mm AN last October. It totally came out of the blue. I'...

EssEmBee

•14 days ago

4 Replies

Surgery or radiotheraphy?

Hi, I writing this post on behalf if my husband who is 41 and was diagnosed with an acoustic neuroma in January. He has been referred to The Queen Elizabeth...

Hi, I writing this post on behalf if my husband who is 41 and was diagnosed wit...

Zhad

•16 days ago

15 Replies

mri 3t scan next week, I’m claustrophobic

so worried, I hate enclosed spaces, lying flat and loud noises - how am I going to cope? My mind has gone into overdrive. I’m considering getting diazepam...

so worried, I hate enclosed spaces, lying flat and loud noises - how am I going ...

Gillypop

•17 days ago

8 Replies

Just been told…I have a Brain Tumour

So Im 56 and last week I was told by my Oncologist that after an 8mth horrific battle with T4 tonsil cancer ( which had spread into 7 lymph nodes base of...

So Im 56 and last week I was told by my Oncologist that after an 8mth horrific ...

EllieMay7

•1 month ago

13 Replies

I am experiencing pins and needles in my lower arms and lower legs also bad cramp in my legs and my speech is stuttering .!

I have a small AN on watch and wait I have been feeling out of sorts headache, off balance, tinnitus louder than normal. But I’m experiencing pins and needles...

I have a small AN on watch and wait I have been feeling out of sorts headache, o...

Whitneyhouston

•2 months ago

2 Replies

2 acoustic neuromas

Morning everyone. Is there anyone out there who has 2 acoustic neuromas by chance ie not NFT2.? I have an AN on the left and another on the right. One on the...

Morning everyone. Is there anyone out there who has 2 acoustic neuromas by chan...

Operalovers

•2 months ago

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musician - hearing loss after surgery

Hi, I am a 49 year old musician and I was diagnosed with an Acoustic Neuroma in December 2023 and had to have surgery a few weeks later due to the size of the...

Hi, I am a 49 year old musician and I was diagnosed with an Acoustic Neuroma in ...

domforr

•2 months ago

11 Replies

Possible AN with eye pain

Hi all. I have been diagnosed with a possible AN or Schwannoma after an MRI in November 23. I am due a second scan in April to see if a very small...

Hi all. I have been diagnosed with a possible AN or Schwannoma after an MRI i...

Loonywoman

•2 months ago

6 Replies

Pink cheek, ref Rapid Access for hearing loss

Hi everybody hope you are all doing well. I've NOT been diagnosed but briefly this is where I am now and wonder if anybody had similar without it being AN....

Hi everybody hope you are all doing well. I've NOT been diagnosed but briefly th...

hollyrain

•2 months ago

4 Replies

Sign our open letter

Some decisions are tough, but a National Brain Tumour Strategy is a No Brainer. We're calling for: 🔬Pioneering research into brain tumours. 🏥Access to...

Some decisions are tough, but a National Brain Tumour Strategy is a No Brainer. ...

Zhaleh_TBTC

Administrator•2 months ago

1 Reply

Eye twitching

Hi all, i had gamma knife in september 2023 and since then I've noticed my left eye is twitching. I think my next scan will be september this year. Should i...

Hi all, i had gamma knife in september 2023 and since then I've noticed my left ...

Cwk123

•3 months ago

6 Replies

Head tingling face, legs, and arms

Hi, I am a newbie here, so hope you are all doing as well as can be expected. for the last 12 months I have had 24/7 head tingling in random parts of the head...

Hi, I am a newbie here, so hope you are all doing as well as can be expected. f...

bubbatetley

•3 months ago

19 Replies

Carotid Artery Ultrasound Scan?

Good evening Could anyone tell me if they were sent for a Ultrasound scan prior to an MRI? My consultant said he was sending me for an urgent MRI and...

Good evening Could anyone tell me if they were sent for a Ultrasound scan prior...

BrainyJanie

•3 months ago

2 Replies

Employment Resources

A brain tumour diagnosis can mean that you need to consider adjusting your working arrangements, hours and sometimes the type of work you do. If a partner is...

A brain tumour diagnosis can mean that you need to consider adjusting your worki...

Zhaleh_TBTC

Administrator•3 months ago

Be the first to reply

spooky69

I' m doing an investigation on eyesight after surgical removal of a large AN. This in not in combination of facial palsy. I do have facial palsy but I...

I' m doing an investigation on eyesight after surgical removal of a large AN. ...

Spooky69

•3 months ago

1 Reply

mri without contrast

Hi everyone I was wondering if anyone could advise me about what to do going forward. In February 2023 I woke up one morning and I felt like the whole room...

Hi everyone I was wondering if anyone could advise me about what to do going fo...

Hidden

•4 months ago

2 Replies

Hearing

Hi I had my AN debulked in 2016,it was 28mm they operated and shrunk it to 12mm,I was left with facial palsy which in time got better,I have really bad dry...

Hi I had my AN debulked in 2016,it was 28mm they operated and shrunk it to 12mm,...

6625

•4 months ago

3 Replies

Total hearing loss

After having MRI of auditory meatus both sides in December (total hearing loss) I had a further MR scan of neck with contrast and now have received a...

After having MRI of auditory meatus both sides in December (total hearing loss) ...

Acoustguit

•4 months ago

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MRI results

I had my annual watch & wait MRI October 13th 2023 and after leaving messages for consultant's secretary and emailing the skull based unit at the QE...

I had my annual watch & wait MRI October 13th 2023 and after leaving messages fo...

Tigerlily15

•4 months ago

15 Replies

Things Changed yesterday.

Hi again everyone, Well Yesterday I went for my run , but halfway through something odd happened. As I said previously I only got slightly dizzy on standing...

Hi again everyone, Well Yesterday I went for my run , but halfway through somet...

Reddington__

•4 months ago

7 Replies

Hello< I have just been diagnosed with a AN measuring 14mm, I am seeing the consultant on 8th Feb but it seems I am on the watch and wait!

The whole story, the truth and nothing but the truth! I developed Tinnitus mildly I'd say about six months ago but I have always had neck issues, been having...

The whole story, the truth and nothing but the truth! I developed Tinnitus mild...

Joker2768

•4 months ago

2 Replies

Facial palsy recovery

Hi all, I had my AN surgery in 2018 and after that I did physio for a while for the facial palsy. They also used to give me Botox injection on my chin to...

Hi all, I had my AN surgery in 2018 and after that I did physio for a while for ...

Frooti

•4 months ago

4 Replies

Fined for my Accoustic Neuroma

Hi, Following a recent MRI during which my AN was shown to have increased in size, I have also noticed a change in my symptoms. Although unilateral hearing...

Hi, Following a recent MRI during which my AN was shown to have increased in si...

roland0302

•4 months ago

16 Replies

waiting

Hi can anyone help as to how long I may to wait to hear from the ENT department regarding scans etc. I was referred 2 weeks ago by A&E who picked up my Neuroma...

Hi can anyone help as to how long I may to wait to hear from the ENT department ...

JoanneSP

•4 months ago

4 Replies

MRI results and ENT update

Hi, I have had tinnitus since May 2022 and developed pulsatile tinnitus last year March. I had an MRI scan a few weeks ago and have had a letter come through...

Hi, I have had tinnitus since May 2022 and developed pulsatile tinnitus last yea...

Shantelle00

•4 months ago

8 Replies

Waiting and Wondering

Hello everyone. I'm a 61 year old male and I started experiencing tinnitus in my left ear around July of 2023. In December of 2023 I began experiencing...

Hello everyone. I'm a 61 year old male and I started experiencing tinnitus in ...

murphyzlaw

•4 months ago

1 Reply

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Posts - Acoustic Neuroma Support | HealthUnlocked

Acoustic Neuroma Support

Sonitus soundbite

Painful symptoms

1st post

Newbie

Upcoming hospital appointment

Surgery or radiotheraphy?

mri 3t scan next week, I’m claustrophobic

Just been told…I have a Brain Tumour

I am experiencing pins and needles in my lower arms and lower legs also bad cramp in my legs and my speech is stuttering .!

2 acoustic neuromas

musician - hearing loss after surgery

Possible AN with eye pain

Pink cheek, ref Rapid Access for hearing loss

Sign our open letter

Eye twitching

Head tingling face, legs, and arms

Carotid Artery Ultrasound Scan?

Employment Resources

spooky69

mri without contrast

Hearing

Total hearing loss

MRI results

Things Changed yesterday.

Hello< I have just been diagnosed with a AN measuring 14mm, I am seeing the consultant on 8th Feb but it seems I am on the watch and wait!

Facial palsy recovery

Fined for my Accoustic Neuroma

waiting

MRI results and ENT update

Waiting and Wondering

Search posts

Pinned Posts

Latest poll

How were you told about your/your loved ones brain tumour diagnosis?

Archive