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Advice about CUFFED tracheostomy at home
There is talk of him coming home when he has an uncuffed
tracheostomy
and still feeding through his RIG. My question is has anyone experience of coming home with a CUFFED
tracheostomy
as if he can't tolerate cuff down after 8-10 weeks, he'll have this for a very long time.
There is talk of him coming home when he has an uncuffed
tracheostomy
and still feeding through his RIG. My question is has anyone experience of coming home with a CUFFED
tracheostomy
as if he can't tolerate cuff down after 8-10 weeks, he'll have this for a very long time.
Hidden
in
British Heart Foundation
21 days ago
ICU/Intubation
I ended up waking up with a
tracheostomy
, (I could not talk) lost all of my functions & muscle mass. Being in ITU and no motor functions was so hard. I was having food via a tube,my mouth was dry,having no sense of day/night. I could not have any visitors because of covid restrictions.
I ended up waking up with a
tracheostomy
, (I could not talk) lost all of my functions & muscle mass. Being in ITU and no motor functions was so hard. I was having food via a tube,my mouth was dry,having no sense of day/night. I could not have any visitors because of covid restrictions.
Spark82
in
ICUsteps
2 months ago
A question if you've had a tracheostomy.
Is it just me or does anyone else regularly get food and drink into your windpipe. Its not a full blown choking episode but very close, and requires a slow big deep breath and strong cough to shift it. I know when I have managed to shift it because it normally comes flying out.
Is it just me or does anyone else regularly get food and drink into your windpipe. Its not a full blown choking episode but very close, and requires a slow big deep breath and strong cough to shift it. I know when I have managed to shift it because it normally comes flying out.
Ta-thanx
in
ICUsteps
5 months ago
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Castleview back under another name
They were saying he'd have to go to a nursing home in Leeds to live, for
tracheostomy
care. We said ABSOLUTELY NOT, he's coming home, and we'll sign any paperwork to take responsibility for that. Still working on getting the cuff down so he can have different trachy.
They were saying he'd have to go to a nursing home in Leeds to live, for
tracheostomy
care. We said ABSOLUTELY NOT, he's coming home, and we'll sign any paperwork to take responsibility for that. Still working on getting the cuff down so he can have different trachy.
Gardenview10
in
British Heart Foundation
14 days ago
Severe Pneumonia Tracheostomy
It has been a week since he had a
tracheostomy
, but they haven’t woken him up yet.
It has been a week since he had a
tracheostomy
, but they haven’t woken him up yet.
ForMyPapa
in
ICUsteps
8 months ago
Pneumonia O2-CO2
Has anyone here or your loved ones had
tracheostomy
for severe pneumonia? It would be great to hear your positive stories now.... Thank you.
Has anyone here or your loved ones had
tracheostomy
for severe pneumonia? It would be great to hear your positive stories now.... Thank you.
ForMyPapa
in
ICUsteps
8 months ago
Stroke?
He was still in intensive care with a cuffed
tracheostomy
due to having no swallow and vocal cord paralysis. Fast forward quite a few months and we are still in a very similar position, unfortunately.
He was still in intensive care with a cuffed
tracheostomy
due to having no swallow and vocal cord paralysis. Fast forward quite a few months and we are still in a very similar position, unfortunately.
GeminiMoose
in
Encephalitis Society
5 months ago
My mother’s PSP , an update
Then they put central line to give nor adrenaline and put cuffed
tracheostomy
tube, then BP was elevated a little bit then dropped back, and found AF in her heart. They decided to taker to ICU to keep her under close supervision.
Then they put central line to give nor adrenaline and put cuffed
tracheostomy
tube, then BP was elevated a little bit then dropped back, and found AF in her heart. They decided to taker to ICU to keep her under close supervision.
Blueclouds07
in
PSP Association
7 months ago
Seeking support
My
tracheostomy
site looked like it had healed but I spotted discharge yesterday. One of the most distressing things is my hair is falling out and I have a third of it left. I would love some advice on this. Is there a support video call that happens for the community?
My
tracheostomy
site looked like it had healed but I spotted discharge yesterday. One of the most distressing things is my hair is falling out and I have a third of it left. I would love some advice on this. Is there a support video call that happens for the community?
Leenk8
in
ICUsteps
8 months ago
Possibly DNR chat
The goal is now
tracheostomy
, but it’s a balance of her oxygen requirement being low enough and then ensuring the blood clot is under control so they can reduce the thinners before surgery. Sorry, not that brief after all. But the mention of DNR has thrown me a little.
The goal is now
tracheostomy
, but it’s a balance of her oxygen requirement being low enough and then ensuring the blood clot is under control so they can reduce the thinners before surgery. Sorry, not that brief after all. But the mention of DNR has thrown me a little.
Ohgollyitsmolly
in
ICUsteps
8 months ago
8 months on...
With an adult sized hand hole in my leg, sepsis, on diyalsis,
tracheostomy
, had about 13 different infections!We are now in August and last week I climbed my first set of stairs!!! My leg is still severely damaged and my wound is about a week away till it looks like it will finally be closed!
With an adult sized hand hole in my leg, sepsis, on diyalsis,
tracheostomy
, had about 13 different infections!We are now in August and last week I climbed my first set of stairs!!! My leg is still severely damaged and my wound is about a week away till it looks like it will finally be closed!
Jjones210519
in
ICUsteps
10 months ago
My dad Stoke
Hi everyone my dad had left middle cerebral artery and anterior cerebral artery stroke with hemorrhagic and post decompressive crainoectomy He was in an induced coma for 3 - 4 days He is off sedation now His Glascow coma scale was 3 now he is 7 on
tracheostomy
, no sedation and Nasogastric
Hi everyone my dad had left middle cerebral artery and anterior cerebral artery stroke with hemorrhagic and post decompressive crainoectomy He was in an induced coma for 3 - 4 days He is off sedation now His Glascow coma scale was 3 now he is 7 on
tracheostomy
, no sedation and Nasogastric
Jomanahj
in
Different Strokes
10 months ago
my dad isn’t waking up
recommended a craniotomy decompression He was in an induced coma for I think 4-5 days No the sedation is off for one week and he didn’t wake up until now His blood pressure, oxygen saturation, temperature, respiratory rate are all within the normal range and he is stable now Also they put
tracheostomy
recommended a craniotomy decompression He was in an induced coma for I think 4-5 days No the sedation is off for one week and he didn’t wake up until now His blood pressure, oxygen saturation, temperature, respiratory rate are all within the normal range and he is stable now Also they put
tracheostomy
Jomanahj
in
ICUsteps
11 months ago
ICU 3 weeks
The consultants goal was to get her oxygen levels stable enough for a
tracheostomy
. Finally the cultures came back from the lab and they were able to start her on a more specific antibiotic. She’s allergic to penicillin so it made it slightly trickier to find the right one.
The consultants goal was to get her oxygen levels stable enough for a
tracheostomy
. Finally the cultures came back from the lab and they were able to start her on a more specific antibiotic. She’s allergic to penicillin so it made it slightly trickier to find the right one.
Ohgollyitsmolly
in
ICUsteps
8 months ago
Friday update
Ralphs had a really good week , even though it was BH. Physio are pleased with him and say he can walk up and down the ward corridor without a nurse with him as long as he asks if it's okay each time. Had his cuff down and hour a day, and today SALT took it down at 11 this morning and stayed and played
Ralphs had a really good week , even though it was BH. Physio are pleased with him and say he can walk up and down the ward corridor without a nurse with him as long as he asks if it's okay each time. Had his cuff down and hour a day, and today SALT took it down at 11 this morning and stayed and played
Gardenview10
in
British Heart Foundation
12 hours ago
Next day update
Hi, saw SALT guy today. Ralph isn't going anywhere. He's been ringing round last 2 weeks and finally got to speak to the top woman in London. She says what he wants to do wouldn't work. Told him to work on getting the cuff down even if it takes a couple of months. The electric treatment didn't work,
Hi, saw SALT guy today. Ralph isn't going anywhere. He's been ringing round last 2 weeks and finally got to speak to the top woman in London. She says what he wants to do wouldn't work. Told him to work on getting the cuff down even if it takes a couple of months. The electric treatment didn't work,
Hidden
in
British Heart Foundation
21 days ago
Dad has delayed response to swallowing reflex when being weaned from tracheostomy… anyone have any similar experience?
I posted a couple of weeks ago about my Dad taking a while to wake up from his sedation, he has been hospitalised now for almost 8 weeks, he was in an induced coma for 3 weeks, after suffering severe heart damage following a cardiac arrest and two further heart attacks on route to the hospital. He has
I posted a couple of weeks ago about my Dad taking a while to wake up from his sedation, he has been hospitalised now for almost 8 weeks, he was in an induced coma for 3 weeks, after suffering severe heart damage following a cardiac arrest and two further heart attacks on route to the hospital. He has
JBean123
in
ICUsteps
10 months ago
Tuesday
Ralph as cheerful as ever. Said a Dr from ENT came this morning and said we have a plan and walked out, lol. Not the consultant. I asked the nurse, she said yes he said keep going with the tracheotomy and take down to the next size. No idea what consultant thinks or even if he's seen the film yet. I
Ralph as cheerful as ever. Said a Dr from ENT came this morning and said we have a plan and walked out, lol. Not the consultant. I asked the nurse, she said yes he said keep going with the tracheotomy and take down to the next size. No idea what consultant thinks or even if he's seen the film yet. I
Hidden
in
British Heart Foundation
1 month ago
Another day
He's the same as he was, but his results aren't as good as we hoped. His swallow isn't as strong as it should be and ENT and speech therapist tried him with cuff down on the tracheotomy and holding over the opening, but he could only breathe in but not out. So they're going to arrange to put a smaller
He's the same as he was, but his results aren't as good as we hoped. His swallow isn't as strong as it should be and ENT and speech therapist tried him with cuff down on the tracheotomy and holding over the opening, but he could only breathe in but not out. So they're going to arrange to put a smaller
Hidden
in
British Heart Foundation
1 month ago
Update
Ralph has had a mostly good week. He had an off day on Tuesday and didn't have his shock treatment, but had it on Wednesday and it's his last one today, Thursday. ENT will assess next Monday. Next week he's also having a PEG fitted in his tummy and will get his feed through that until he can eat and
Ralph has had a mostly good week. He had an off day on Tuesday and didn't have his shock treatment, but had it on Wednesday and it's his last one today, Thursday. ENT will assess next Monday. Next week he's also having a PEG fitted in his tummy and will get his feed through that until he can eat and
Hidden
in
British Heart Foundation
1 month ago
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