Search
Search
About
Log in
Join
Experiences with
Tamofen
Posts
Communities
682 public posts
Filter results
mastectomy now tamoxifen
I’m 48 and just had a double mastectomy almost 4 weeks ago. My bc tumor was 1.2 cm and ER/PR positive and HER 2 negative with an onco type score of 21 and nymph nodes were negative. I was hoping I was done with treatment, but was told I need to take tamoxifen. I read a lot of horrible stories about
I’m 48 and just had a double mastectomy almost 4 weeks ago. My bc tumor was 1.2 cm and ER/PR positive and HER 2 negative with an onco type score of 21 and nymph nodes were negative. I was hoping I was done with treatment, but was told I need to take tamoxifen. I read a lot of horrible stories about
Lulu427
in
SHARE Breast Cancer Support
28 days ago
how much to raise by?
I’m taking tamoxifen for breast cancer. It had impacted thyroid levels in the autumn but I only adjusted by a little. Latest test was tsh 5.17 and t4 17 (not taken that day) on 125 for 3 days a week and 100 for 4 days a week. Obviously I’m not very with it now. I think it has been like this for
I’m taking tamoxifen for breast cancer. It had impacted thyroid levels in the autumn but I only adjusted by a little. Latest test was tsh 5.17 and t4 17 (not taken that day) on 125 for 3 days a week and 100 for 4 days a week. Obviously I’m not very with it now. I think it has been like this for
haggisplant
in
Thyroid UK
1 month ago
tamoxifen and hearing problems
hi I have been taking tamoxifen 20mg for three and half months and I now have tinnitus and amplified hearing problems. My ears feel like I’m under water and need popping like on an aeroplane. Can anybody relate or heard of this? Thanks
hi I have been taking tamoxifen 20mg for three and half months and I now have tinnitus and amplified hearing problems. My ears feel like I’m under water and need popping like on an aeroplane. Can anybody relate or heard of this? Thanks
Carol1965
in
Breast Cancer India
2 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Testosterone was slowly recovering after stopping all meds 8/10/2023 then started dropping!
It looked like Provenge and SBRT last October had lowered and stabilized my rapidly rising PSA to around 1.8 for three months. Then three weeks ago it mysteriously doubled in a month to 3.1 A new PSMA scan showed four new scattered bone mets appearing since last PSMA scan 3 months prior. Micro mets
It looked like Provenge and SBRT last October had lowered and stabilized my rapidly rising PSA to around 1.8 for three months. Then three weeks ago it mysteriously doubled in a month to 3.1 A new PSMA scan showed four new scattered bone mets appearing since last PSMA scan 3 months prior. Micro mets
SViking
in
Advanced Prostate Cancer
2 months ago
Can I improve BMD without meds?
I was diagnosed with osteoporosis 3 months ago at age 55. My DEXA scores -3.4 lumbar spine, femoral neck 2-8, total hip -1.6. I have concerns with meds since I have a risk factor for ONJ. Has anyone reversed or maintained their BMD with scores like this without medication? I’m also on Tamoxifen for breast
I was diagnosed with osteoporosis 3 months ago at age 55. My DEXA scores -3.4 lumbar spine, femoral neck 2-8, total hip -1.6. I have concerns with meds since I have a risk factor for ONJ. Has anyone reversed or maintained their BMD with scores like this without medication? I’m also on Tamoxifen for breast
Mountainfan
in
Osteoporosis Support
2 months ago
Concerns with taking Reclast
I am 55 and was diagnosed with osteoporosis in December 2023 ( spine -3.4, femoral neck -2.8, total hip -1.6). Had a DEXA to get a baseline before starting medication for breast cancer. I was diagnosed with breast cancer in August, had surgery, radiation and I’m now on Tamoxifen for 5 years. Reclast
I am 55 and was diagnosed with osteoporosis in December 2023 ( spine -3.4, femoral neck -2.8, total hip -1.6). Had a DEXA to get a baseline before starting medication for breast cancer. I was diagnosed with breast cancer in August, had surgery, radiation and I’m now on Tamoxifen for 5 years. Reclast
Mountainfan
in
Bone Health and Osteoporosis UK
3 months ago
Hi! I'm new and excited to meet others and learn about your journey
Good afternoon. I'm new to the group. I already posted an item, but thought I should introduce myself. I was diagnosed with Stage 1 breast cancer in 2010. Had a mastectomy. Went on tamoxifen for 2 years, then quit because it made me feel miserable. No chemo. In 2022, I was once again diagnosed
Good afternoon. I'm new to the group. I already posted an item, but thought I should introduce myself. I was diagnosed with Stage 1 breast cancer in 2010. Had a mastectomy. Went on tamoxifen for 2 years, then quit because it made me feel miserable. No chemo. In 2022, I was once again diagnosed
Sueforshare
in
SHARE Metastatic Breast Cancer
3 months ago
Breast Cancer in Men
I'm an 85year old male with Heart Disease Afib and now Brest Cancer. At the moment I'm on Tamoxifen to shrink the lump it appears to be working, be on it about 7 Months. There was some concern about surgery because of my age and low heart rate but that's been cleared by the Cardiologist who says just
I'm an 85year old male with Heart Disease Afib and now Brest Cancer. At the moment I'm on Tamoxifen to shrink the lump it appears to be working, be on it about 7 Months. There was some concern about surgery because of my age and low heart rate but that's been cleared by the Cardiologist who says just
Redier
in
Male Breast Cancer
3 months ago
Breast Cancer
I'm 85year old male who was diagnosed with breast cancer stage 3, June 2023, I also have Heart disease and Afib. We decided to put off surgery and go on Tamoxifen for now. But I keep wondering if I should have surgery, I should see the the consultant in May
I'm 85year old male who was diagnosed with breast cancer stage 3, June 2023, I also have Heart disease and Afib. We decided to put off surgery and go on Tamoxifen for now. But I keep wondering if I should have surgery, I should see the the consultant in May
Redier
in
Male Breast Cancer
3 months ago
Heterogeneous Metastases?
I was first diagnosed Stage3 in Aug. 2014, ER+PR+Her2-. Found metastases in bones and lymph nodes in Dec. 2023, bioposied one node, same biomarkers. I was put on Tamoxifen which shrank many lesions, except for one. After that, I went through Tamoxifen, Letrozole + Kisqali, Faslodex + Kisqali, have scan
I was first diagnosed Stage3 in Aug. 2014, ER+PR+Her2-. Found metastases in bones and lymph nodes in Dec. 2023, bioposied one node, same biomarkers. I was put on Tamoxifen which shrank many lesions, except for one. After that, I went through Tamoxifen, Letrozole + Kisqali, Faslodex + Kisqali, have scan
Faith999
in
SHARE Metastatic Breast Cancer
3 months ago
Epithelial Haemangiendothelioma - has anyone else been diagnosed with this rare cancer please?
Hello, Having been diagnosed with CLL back in February 2002 (age 50) I was successfully treated with FCR from August 2009 to February 2010 and remain MRD negative as at present. Breast cancer followed in April 2016, then bowel cancer in September 2018. A five year surveillance period followed the
Hello, Having been diagnosed with CLL back in February 2002 (age 50) I was successfully treated with FCR from August 2009 to February 2010 and remain MRD negative as at present. Breast cancer followed in April 2016, then bowel cancer in September 2018. A five year surveillance period followed the
alipali
in
CLL Support
3 months ago
What after Xeloda
Please suggest further therapies for my mother's mbc. Bone and liver metastases. Biopsy of metastases was not done. First diagnose, 2010. 5 years ago relapse: er+, pr 0, her2 2+ (sish negative), pik3ca no mutation, BRCA1/2 test - we are waiting for the result. Therapies until now: letrozole, tamoxifen
Please suggest further therapies for my mother's mbc. Bone and liver metastases. Biopsy of metastases was not done. First diagnose, 2010. 5 years ago relapse: er+, pr 0, her2 2+ (sish negative), pik3ca no mutation, BRCA1/2 test - we are waiting for the result. Therapies until now: letrozole, tamoxifen
Goga156
in
SHARE Metastatic Breast Cancer
4 months ago
Advice needed IVF
Hi everyone! I'm new here and in the US and need to vent to those who understand what I'm going through (as my friends don't). I apologize for the long post. I'm 39. My bf is 42. We met later in life when I was 36. He has two kids from a previous marriage when he was 20 and 28. Before we met his doctor
Hi everyone! I'm new here and in the US and need to vent to those who understand what I'm going through (as my friends don't). I apologize for the long post. I'm 39. My bf is 42. We met later in life when I was 36. He has two kids from a previous marriage when he was 20 and 28. Before we met his doctor
JerseyGirl2420
in
Fertility Network UK
4 months ago
Verzenio Monotherapy
I'm wondering if anyone on here is on Verzenio monotherapy. That is just Verzenio,not in combo with anything. I take 200mg twice daily. I began this just over a month ago and wondering if anyone has been on this protocol and seen it help. To give a background. I was diagnosed first 27 years ago. Stage
I'm wondering if anyone on here is on Verzenio monotherapy. That is just Verzenio,not in combo with anything. I take 200mg twice daily. I began this just over a month ago and wondering if anyone has been on this protocol and seen it help. To give a background. I was diagnosed first 27 years ago. Stage
caw517
in
SHARE Metastatic Breast Cancer
4 months ago
Olaparib hasn’t worked for me . Anyone had this happen and had success with another PARP?
Hi everyone, I’m back of Chemo for 3rd line, this time with Carbo and Caelyx. This is just a year after 1st recurrence, Chemo reduced cancer to nearly NED, 7 months of Olaparib and then CT scan showed new tumour on spleen. CA125 36. Oncologist mentioned later trying another PARP possibly Rucaparib
Hi everyone, I’m back of Chemo for 3rd line, this time with Carbo and Caelyx. This is just a year after 1st recurrence, Chemo reduced cancer to nearly NED, 7 months of Olaparib and then CT scan showed new tumour on spleen. CA125 36. Oncologist mentioned later trying another PARP possibly Rucaparib
Towergirl
in
My Ovacome
5 months ago
Tamoxifen v Bladder Issues
Hi Folks - I've been on Tamoxifen (previously on anastrazole) for 3 months. Gradually over the last 6 weeks I started to have bladder issues. I have to urinate much more frequently, and "control" is becoming an issue. Once I actually wet myself. I often feel like I have to make the effort not to leak
Hi Folks - I've been on Tamoxifen (previously on anastrazole) for 3 months. Gradually over the last 6 weeks I started to have bladder issues. I have to urinate much more frequently, and "control" is becoming an issue. Once I actually wet myself. I often feel like I have to make the effort not to leak
Calamintha
in
My Breast Cancer Community
5 months ago
walnuts
hello, I’m post breast cancer treatment and on tamoxifen. There’s been a bit of thyroxine wobbling as I started that so being monitored. I’m eating more nuts, particularly / including walnuts (good for Bc) for extra protein as I’m exercising and lifting weights. how long would you wait before
hello, I’m post breast cancer treatment and on tamoxifen. There’s been a bit of thyroxine wobbling as I started that so being monitored. I’m eating more nuts, particularly / including walnuts (good for Bc) for extra protein as I’m exercising and lifting weights. how long would you wait before
haggisplant
in
Thyroid UK
5 months ago
Tamoxifen v Acid Reflux
Hi All I have been clear from hormone related breast cancer for 3 years now. I am 62 & post menapausal . I changed medication from anastrozole to tamoxifen last month to try to help slow my osteopenia, as I do not get on with bisphosphonates. Unfortunately it appears to have aggravated my hiatus
Hi All I have been clear from hormone related breast cancer for 3 years now. I am 62 & post menapausal . I changed medication from anastrozole to tamoxifen last month to try to help slow my osteopenia, as I do not get on with bisphosphonates. Unfortunately it appears to have aggravated my hiatus
Calamintha
in
My Breast Cancer Community
6 months ago
tamoxifen
I am about to start tamoxifen. Anything you’ve exsperienced? I had DCIS , lumpectomy , not sure I really need it. I do not deal well with side effects. Thank you!
I am about to start tamoxifen. Anything you’ve exsperienced? I had DCIS , lumpectomy , not sure I really need it. I do not deal well with side effects. Thank you!
Ldonovan481
in
SHARE Metastatic Breast Cancer
6 months ago
I have questions about Tamoxifen, aka Hormonal Therapy
Hello all, & blessed wishes during the Holiday Season. 🎄 I must admit I haven't been on here for a while, but I hope someone can give me some answers. I was diagnosed with Clear Cell Ovarian Cancer stage 4 in 2021. I have had 6 rounds of Chemo, & a total hysterectomy. I've been doing Avastin since
Hello all, & blessed wishes during the Holiday Season. 🎄 I must admit I haven't been on here for a while, but I hope someone can give me some answers. I was diagnosed with Clear Cell Ovarian Cancer stage 4 in 2021. I have had 6 rounds of Chemo, & a total hysterectomy. I've been doing Avastin since
gta03
in
SHARE Ovarian Cancer Support
6 months ago
1
2
...
35
Next page
10
20
30
Filter results
Clear filters
Posted in
All communities
My Breast Cancer Community
176 results
SHARE Metastatic Breast Cancer
120 results
My Ovacome
85 results
View top 10 communities
Sort by
Most Relevant
Newest