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Experiences with
Stoma surgery
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What is normal after surgery and what isn't
My husband had
stoma
surgery
two weeks ago and got home a week later. Since coming home he seems to be deteriorating not improving. On the advice of his stoma nurse, we are going to see the GP to get bloods taken, etc this morning.
My husband had
stoma
surgery
two weeks ago and got home a week later. Since coming home he seems to be deteriorating not improving. On the advice of his stoma nurse, we are going to see the GP to get bloods taken, etc this morning.
Suebedoo
in
Living with a Stoma
2 months ago
Ablasion
finally had my long awaited ablasion and was hopeful that it was going well when 2weeks later ended up with major
surgery
and a
stoma
has anything thing happened to anyone else like this. advice on coping much appreciated thanks
finally had my long awaited ablasion and was hopeful that it was going well when 2weeks later ended up with major
surgery
and a
stoma
has anything thing happened to anyone else like this. advice on coping much appreciated thanks
Lumps
in
AF Association
4 months ago
Leo 2327
Hi to all the ladies on this journey I am 3c ovarian cancer since May 2022 had 8 lots of chemo and debulking
surgery
and
stoma
then been on avastin for over a year last one next Friday and also take olaparib I am NED at the moment but I am suffering realy bad with hot sweats and tiredness is anyone else
Hi to all the ladies on this journey I am 3c ovarian cancer since May 2022 had 8 lots of chemo and debulking
surgery
and
stoma
then been on avastin for over a year last one next Friday and also take olaparib I am NED at the moment but I am suffering realy bad with hot sweats and tiredness is anyone else
Leo2327
in
My Ovacome
4 months ago
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Struggling Financially with Leukaemia?
I was diagnosed with CLL in July 2013 and had already been registered with Macmillan in 2004 when I had bowel cancer, although at that time I didn't need much help other than problems with stoma bags and local support groups, both of which they helped me with. Financially I was okay being paid by my
I was diagnosed with CLL in July 2013 and had already been registered with Macmillan in 2004 when I had bowel cancer, although at that time I didn't need much help other than problems with stoma bags and local support groups, both of which they helped me with. Financially I was okay being paid by my
clifflee
in
CLL Support
3 days ago
NICE colostomy consultation - invitation to Ovacome focus group
Good morning everyone, We have been contacted by the National Institute for Health and Care Excellence (NICE) as they are currently undertaking an assessment looking at one-piece closed stoma bags for adults with a colostomy. We would like to contribute to this assessment by making a submission as we
Good morning everyone, We have been contacted by the National Institute for Health and Care Excellence (NICE) as they are currently undertaking an assessment looking at one-piece closed stoma bags for adults with a colostomy. We would like to contribute to this assessment by making a submission as we
OvacomeSupport
My Ovacome Team
in
My Ovacome
4 days ago
Mum in ICU
Hi all , I’m at the beginning of my mums ICU journey and I’m so glad I came across this page . Up until last Friday my mum at 76 had a few health problems as you would expect but was still the main carer for my dad who has Parkinson’s . All last week she was complaining of tummy ache and to cut a long
Hi all , I’m at the beginning of my mums ICU journey and I’m so glad I came across this page . Up until last Friday my mum at 76 had a few health problems as you would expect but was still the main carer for my dad who has Parkinson’s . All last week she was complaining of tummy ache and to cut a long
Exhausted247
in
ICUsteps
9 days ago
What's on at Ovacome next week? (week commencing Monday 13 May 2024)
Good afternoon everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week. Monday 13 May - Monday monthly meet - up between 4:00pm and 5:30pm: https://www.ovacome.org.uk/Event/monday-monthly-meet-up Tuesday 14 May -
Good afternoon everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week. Monday 13 May - Monday monthly meet - up between 4:00pm and 5:30pm: https://www.ovacome.org.uk/Event/monday-monthly-meet-up Tuesday 14 May -
OvacomeSupport
My Ovacome Team
in
My Ovacome
23 days ago
Dealing with endo after children in late thirties
hi there I’m 37 and had two children via IVF when I was 33 and 35. I have stage 4 recto vaginal endometriosis and had a bowel resection and temporary stoma when I was 31 before starting IVF. Now I’m finished having children, I’ve gone back on the pill and run it back to back to prevent periods. I’m
hi there I’m 37 and had two children via IVF when I was 33 and 35. I have stage 4 recto vaginal endometriosis and had a bowel resection and temporary stoma when I was 31 before starting IVF. Now I’m finished having children, I’ve gone back on the pill and run it back to back to prevent periods. I’m
EKP31
in
Endometriosis UK
23 days ago
Ilieostomy - waistband issue
We're gradually feeling our way through things but my husband has advised me that he is having difficulties with waistbands - he either needs to pull his trousers up really high or have his trousers hanging really low. Is there any solution, for instance to the support belts help. I did buy him ilieostomy
We're gradually feeling our way through things but my husband has advised me that he is having difficulties with waistbands - he either needs to pull his trousers up really high or have his trousers hanging really low. Is there any solution, for instance to the support belts help. I did buy him ilieostomy
Suebedoo
in
Living with a Stoma
1 month ago
Catheters and travel
Hello everyoneI am a 64 year old woman, treated for rectal cancer with chemoradiotherapy with temporary stoma in 2009. I have had endless bladder and bowel issues since, and been hospitalized with numerous infections since the temporary stoma reversal - last infection of that type 2017, but now lots
Hello everyoneI am a 64 year old woman, treated for rectal cancer with chemoradiotherapy with temporary stoma in 2009. I have had endless bladder and bowel issues since, and been hospitalized with numerous infections since the temporary stoma reversal - last infection of that type 2017, but now lots
Hopeful-one
in
Pelvic Radiation Disease Association
2 months ago
Dense adhesions after 15 surgeries, + 2 rare medical conditions
At the age of 25, my life changed forever. After 4 years, 2 surgeries and no diagnosis, as to what the problems was, I eventually found out I had multiple intestinal lipomatosis and Ehlers Danlos Syndrome. Ileostomy formed 1996. 13 more surgeries have performed. Due to absorption problems, + major
At the age of 25, my life changed forever. After 4 years, 2 surgeries and no diagnosis, as to what the problems was, I eventually found out I had multiple intestinal lipomatosis and Ehlers Danlos Syndrome. Ileostomy formed 1996. 13 more surgeries have performed. Due to absorption problems, + major
Eegmetem
in
Pelvic Pain Support Network
2 months ago
Stoma with Denosumab osteoporosis medication
Hi, I am posting the same thing in the osteoporosis forum and the stoma forum at the suggestion of my friend. My mum has had a stoma for over 50 years and is also on osteoporosis medication. Her doctor has suggested she moves to Denosumab which contains sorbitol and is a twice yearly injection. She
Hi, I am posting the same thing in the osteoporosis forum and the stoma forum at the suggestion of my friend. My mum has had a stoma for over 50 years and is also on osteoporosis medication. Her doctor has suggested she moves to Denosumab which contains sorbitol and is a twice yearly injection. She
Florrie2
in
Bone Health and Osteoporosis UK
2 months ago
Recently had stoma
I was diagnosed 2 years ago stage 4 high serious ovarian part bowel removed and 6 sessions chemo lived normal 18months then recurrence and more chemo then total hysterectomy omentom removed and shock when I woke I had stoma that is pernament finding it hard deal with and see consultant next week
I was diagnosed 2 years ago stage 4 high serious ovarian part bowel removed and 6 sessions chemo lived normal 18months then recurrence and more chemo then total hysterectomy omentom removed and shock when I woke I had stoma that is pernament finding it hard deal with and see consultant next week
PaumicB123
in
Living with a Stoma
2 months ago
PSMA Analysis needed
I'm awaiting the visual images from my PSMA FDG scan. In the meantime, I've got a written report and I could do with your help. The backdrop is that I'm hoping to be considered eligible for PSMA therapy in Melbourne in May-Aug. At the heart of it lies a really simple question (and apologies for my naivety
I'm awaiting the visual images from my PSMA FDG scan. In the meantime, I've got a written report and I could do with your help. The backdrop is that I'm hoping to be considered eligible for PSMA therapy in Melbourne in May-Aug. At the heart of it lies a really simple question (and apologies for my naivety
CrocodileShoes
in
Advanced Prostate Cancer
3 months ago
Treatment help
just been told I have deep endometriosis on my uterus and my rectum. I already have a stoma due to Crohn’s disease and currently having prostap injections. Does anyone know what the treatment is for endo on the uterus and the rectum?
just been told I have deep endometriosis on my uterus and my rectum. I already have a stoma due to Crohn’s disease and currently having prostap injections. Does anyone know what the treatment is for endo on the uterus and the rectum?
Red476
in
Endometriosis UK
3 months ago
Tibilone experiences
I have very severe endometriosis and adenomyosis and am awaiting
surgery
which will likely involve having a
stoma
. I’ve previously had left ovary removed and both tubes and I’ve recently been told my right ovary is failing.
I have very severe endometriosis and adenomyosis and am awaiting
surgery
which will likely involve having a
stoma
. I’ve previously had left ovary removed and both tubes and I’ve recently been told my right ovary is failing.
Lily1986
in
Endometriosis UK
30 days ago
Pale skin during flare ups
I’ve got very severe stage 4 Endo with a lot of bowel involvement, relying a lot of pain relief every day now and treatment options have pretty much run out except the final
surgery
I’m allowed. This
surgery
would be total pelvic clearance and
stoma
.
I’ve got very severe stage 4 Endo with a lot of bowel involvement, relying a lot of pain relief every day now and treatment options have pretty much run out except the final
surgery
I’m allowed. This
surgery
would be total pelvic clearance and
stoma
.
Lily1986
in
Endometriosis UK
2 months ago
Stoma reversal
While I was waiting for my liver transplant I had an emergency
Stoma
surgery
and had a bag fitted, the surgeon that gave me my first check up for my liver said in about six months or so they will have me back in to reverse the Stoma.
While I was waiting for my liver transplant I had an emergency
Stoma
surgery
and had a bag fitted, the surgeon that gave me my first check up for my liver said in about six months or so they will have me back in to reverse the Stoma.
Dogbot
in
Living with a Stoma
1 year ago
Graves Disease
Hi, I have type 2 diabetes, I was over-prescribed metformin which had its horrors. When I came off it I was quickly diagnosed with thyroxicosis and hypercalcemia. Saw the endocrinologist yesterday. |He sat there and said do you know what you have wrong with you, then he told me I had Graves disease
Hi, I have type 2 diabetes, I was over-prescribed metformin which had its horrors. When I came off it I was quickly diagnosed with thyroxicosis and hypercalcemia. Saw the endocrinologist yesterday. |He sat there and said do you know what you have wrong with you, then he told me I had Graves disease
Trelissa
in
Thyroid UK
7 months ago
Anyone with endo going through IVF/DEIVF?
Or even
stoma
surgery
?
Or even
stoma
surgery
?
Stagefourendo
in
Endometriosis UK
1 year ago
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