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Spinal cord injuries
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SPINAL CORD INJURY long term appointments
As someone with multiple disabilities including
Spinal
Cord
Injuries
- I’m a long term patient. As I have got older my condition has become more complicated but the appointments that used to be -in person, hands-on, have now, (despite the NHS is open ) gon online or by phone.
As someone with multiple disabilities including
Spinal
Cord
Injuries
- I’m a long term patient. As I have got older my condition has become more complicated but the appointments that used to be -in person, hands-on, have now, (despite the NHS is open ) gon online or by phone.
MSTKing
in
Pain Concern
6 months ago
Restless Leg Syndrome, neuromodulation..
Treatment was well tolerated, and no adverse events were reported. Our case series shows a potential role for self-administered taVNS in patients with severe pharmacoresistant RLS. Hartley S, Bao G, Russo A, Zagdoun M, Chevallier S, Lofaso F, Leotard A, Azabou E. Self-administered non-invasive vagus
Treatment was well tolerated, and no adverse events were reported. Our case series shows a potential role for self-administered taVNS in patients with severe pharmacoresistant RLS. Hartley S, Bao G, Russo A, Zagdoun M, Chevallier S, Lofaso F, Leotard A, Azabou E. Self-administered non-invasive vagus
House2
in
Restless Legs Syndrome
6 months ago
Pain Relief
Hi all Can “anyone” offer me some advice as I’m at the “end of my tether” with pain! I’ve had a Triple Bypass and Mitral Valve Repair. I’ve had a Shoulder Rotator Cuff Repair. I’ve had a Laminectomy for Severe Spinal Stenosis which unfortunately failed and is now worse than before the Surgery! I
Hi all Can “anyone” offer me some advice as I’m at the “end of my tether” with pain! I’ve had a Triple Bypass and Mitral Valve Repair. I’ve had a Shoulder Rotator Cuff Repair. I’ve had a Laminectomy for Severe Spinal Stenosis which unfortunately failed and is now worse than before the Surgery! I
Davewm
in
Pain Concern
6 months ago
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Spinal Cord Stimulation & PD
Interesting article. https://spectrum.ieee.org/parkinsons-disease
Interesting article. https://spectrum.ieee.org/parkinsons-disease
House2
in
Cure Parkinson's
6 months ago
RLS & Spinal Injury
https://jpma.org.pk/article-details/11850 A recent study article from Pakistan shows that around 50% of patients with
spinal
cord
injuries
( including scars from MS) have RLS. I keep saying there are several distinct causes of RLS. Iron deficiency is one, kidney disease another.
https://jpma.org.pk/article-details/11850 A recent study article from Pakistan shows that around 50% of patients with
spinal
cord
injuries
( including scars from MS) have RLS. I keep saying there are several distinct causes of RLS. Iron deficiency is one, kidney disease another.
Joolsg
in
Restless Legs Syndrome
1 year ago
Hi, My names Jim
Hi, My name is Jim, when i was 17 I had a car accident and the result was 2 x spinal fusion, second fusion involved replacing discs , new disc rubbed on aorta causing Aortic aneurism was only 22 at the time now about to turn 42, and PTSD has finally kicked in. Need another fusion as back is buggered
Hi, My name is Jim, when i was 17 I had a car accident and the result was 2 x spinal fusion, second fusion involved replacing discs , new disc rubbed on aorta causing Aortic aneurism was only 22 at the time now about to turn 42, and PTSD has finally kicked in. Need another fusion as back is buggered
JBee123
in
Heart Valve Voice
13 hours ago
My Back prproblems starstarted in the Military
My back problems began while on active duty in the Coast Guard. They diagnosed me with degenerative disc disease and osteoporosis. In May of 2019 I had a Lamondectomy, and in 2020 I had a discectomy. In November, 2023 I had a tubular decompressioin. This comming Fall I will be having a spinal fusion.
My back problems began while on active duty in the Coast Guard. They diagnosed me with degenerative disc disease and osteoporosis. In May of 2019 I had a Lamondectomy, and in 2020 I had a discectomy. In November, 2023 I had a tubular decompressioin. This comming Fall I will be having a spinal fusion.
Xwing
in
Pain Concern
11 days ago
My back
My back problems began while on active duty in the Coast Guard. They diagnosed me with degenerative disc disease and osteoporosis. In May of 2019 I had a Lamondectomy, and in 2020 I had a discectomy. In November, 2023 I had a tubular decompressioin. This comming Fall I will be having a spinal fusion.
My back problems began while on active duty in the Coast Guard. They diagnosed me with degenerative disc disease and osteoporosis. In May of 2019 I had a Lamondectomy, and in 2020 I had a discectomy. In November, 2023 I had a tubular decompressioin. This comming Fall I will be having a spinal fusion.
Xwing
in
Osteoporosis Support
11 days ago
Post spinal fusion surgery
2 weeks tomorrow after surgery to fuse 7 vertebrae after Prostate Cancer spread to my T 10. Radiation caused a compression fracture and weakness in nearby vertebrae. Just wondering if anyone else has had this done. Pain medication Palexia and Oxyndone have hardly impacted. Spinal surgeon says pain should
2 weeks tomorrow after surgery to fuse 7 vertebrae after Prostate Cancer spread to my T 10. Radiation caused a compression fracture and weakness in nearby vertebrae. Just wondering if anyone else has had this done. Pain medication Palexia and Oxyndone have hardly impacted. Spinal surgeon says pain should
Brightman
in
Pain Concern
13 days ago
Pain Clinics
1. I attended my 1st PC in 2012 (Cambridge) following spinal decompression which was successful but I also had fibromyalgia. 2. Transferred to 2nd Peterborough PC due to travel problems. Sat through excruciatingly painful group sessions relating to the Biopsychosocial Model and Mindfulness. Course
1. I attended my 1st PC in 2012 (Cambridge) following spinal decompression which was successful but I also had fibromyalgia. 2. Transferred to 2nd Peterborough PC due to travel problems. Sat through excruciatingly painful group sessions relating to the Biopsychosocial Model and Mindfulness. Course
Blackwitch
in
Pain Concern
17 days ago
Ribocyclib dose
Hi there everyone, Thanks for the support, warmth and information of this platform. It is a really special community. My mother is managing metastatic breast cancer. She was diagnosed this January and had to have a spinal fusion ( spreading there ) to her bone and liver. She is currently on a
Hi there everyone, Thanks for the support, warmth and information of this platform. It is a really special community. My mother is managing metastatic breast cancer. She was diagnosed this January and had to have a spinal fusion ( spreading there ) to her bone and liver. She is currently on a
Stefftrees
in
SHARE Metastatic Breast Cancer
27 days ago
Surgery Today!
I’m having spinal surgery today in my neck. So glad it’s finally happening but rather nervous too. I have cervical stenosis and myelopathy so I’m hoping this operation will stop the progression of spinal cord damage 🤞🏻🤞🏻🤞🏻. Has anyone else had this happen. Not sure if it’s RA related or not.
I’m having spinal surgery today in my neck. So glad it’s finally happening but rather nervous too. I have cervical stenosis and myelopathy so I’m hoping this operation will stop the progression of spinal cord damage 🤞🏻🤞🏻🤞🏻. Has anyone else had this happen. Not sure if it’s RA related or not.
Kati66
in
NRAS
1 month ago
UPDATE on my dad. A story of hope.❤️ #advancedPC
Hi my dad was diagnosed with advanced prostate cancer in Oct 2021. With Mets to spine, lungs, liver. He is 85. His PSA was 5000. (Today 28 months later his PSA is 0.031 and still dropping) He was told at the time he had 2 months to live. He had spinal surgery the morning after being diagnosed because
Hi my dad was diagnosed with advanced prostate cancer in Oct 2021. With Mets to spine, lungs, liver. He is 85. His PSA was 5000. (Today 28 months later his PSA is 0.031 and still dropping) He was told at the time he had 2 months to live. He had spinal surgery the morning after being diagnosed because
YC22
in
Advanced Prostate Cancer
3 months ago
iron lab results 10 weeks post iron infusion
I have had four iron infusions in the last 2 years. 10 weeks ago I received Injectafer 1000 mg with so-so results. I had seen a hematologist at my neurologist/Sleep specialist’s urging out of his concern for my out of whack lab numbers. The hematologist was not concerned. I gave my sleep, specialist
I have had four iron infusions in the last 2 years. 10 weeks ago I received Injectafer 1000 mg with so-so results. I had seen a hematologist at my neurologist/Sleep specialist’s urging out of his concern for my out of whack lab numbers. The hematologist was not concerned. I gave my sleep, specialist
SleeplessinNC
in
Restless Legs Syndrome
3 months ago
Heartened to know I am not alone in the struggles caused by pramipexole
I have had RLS and PLMD as long as I can remember. I’m sure all of those nights I struggled with symptoms as a child that were brushed off as growing pains…RLS. My mom suffers mildly. Unfortunately, both of my daughters also have many challenges that began as teens. What I’ve been through is so complex
I have had RLS and PLMD as long as I can remember. I’m sure all of those nights I struggled with symptoms as a child that were brushed off as growing pains…RLS. My mom suffers mildly. Unfortunately, both of my daughters also have many challenges that began as teens. What I’ve been through is so complex
SleeplessinNC
in
Restless Legs Syndrome
3 months ago
spinal cord stimulator side effects
I wanted to know has anyone experienced itching skin ( mine is on my shoulder blades) following having a spinal cord stimulator fitted. I had mine fitted in 2018 and for some years now both my shoulder blades itch nearly all the time and drive me crazy, there is no rash or sign of anything on the skin
I wanted to know has anyone experienced itching skin ( mine is on my shoulder blades) following having a spinal cord stimulator fitted. I had mine fitted in 2018 and for some years now both my shoulder blades itch nearly all the time and drive me crazy, there is no rash or sign of anything on the skin
vihkins
in
Pain Concern
11 months ago
Denosumab vs Bisphosphonates
Dear all, I will keep this brief so that I don't bore anyone! I am 55 yr female, and to my horror, fractured T12 out of the blue one morning two and a half years ago. Little did I think it was a fracture, so I walked and went to the gym for 4 days. This is with evolving neurological signs. Anyway,
Dear all, I will keep this brief so that I don't bore anyone! I am 55 yr female, and to my horror, fractured T12 out of the blue one morning two and a half years ago. Little did I think it was a fracture, so I walked and went to the gym for 4 days. This is with evolving neurological signs. Anyway,
emersee
in
Bone Health and Osteoporosis UK
5 months ago
Anyone had spinal fusion on T10-12?
I have severe osteoporosis and kyphosis from breaking T10-T12 and wondered if anyone has had this? They're recommending a spinal fusion to fix this or otherwise to live in a brace forever hoping the kyphosis curve won't progress any more than it already has. I'm wondering which is the better option if
I have severe osteoporosis and kyphosis from breaking T10-T12 and wondered if anyone has had this? They're recommending a spinal fusion to fix this or otherwise to live in a brace forever hoping the kyphosis curve won't progress any more than it already has. I'm wondering which is the better option if
Hidden
in
Pain Concern
6 months ago
Does spinal fusion help take away severe pain from kyphosis due to broken vertebrae? (T10-T12)
My doctor is saying that I need to get a spinal fusion because I broke T10 through T12 back in 2011 so over 12 years ago and it is caused severe phasis due to my osteoporosis and from never getting it surgically dealt with at the time. I'm working on getting my bones stronger and he saying that if I
My doctor is saying that I need to get a spinal fusion because I broke T10 through T12 back in 2011 so over 12 years ago and it is caused severe phasis due to my osteoporosis and from never getting it surgically dealt with at the time. I'm working on getting my bones stronger and he saying that if I
Hidden
in
Pain Concern
7 months ago
DEGENERATIVE DISC DISEASE, FORAMINA STENOSIS, FAILED BACK SURGERY
Helo, can anyone advise me on the way forward. I have a degeneration disc at L5S1 which herniated massively. I was having severe lower back pain and some nerve pain in the right leg. I had a discectomy surgery in 2016. After the surgery, my back pain got worse and i started having bilateral tingling
Helo, can anyone advise me on the way forward. I have a degeneration disc at L5S1 which herniated massively. I was having severe lower back pain and some nerve pain in the right leg. I had a discectomy surgery in 2016. After the surgery, my back pain got worse and i started having bilateral tingling
Nnabuike
in
Pain Concern
7 months ago
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