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Ruxolitinib
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ruxolitinib
how long is ruxolitninb is effective for fingers
how long is ruxolitninb is effective for fingers
rafti
in
Changing Faces
4 months ago
Multaq
I am taking
ruxolitinib
for MPN and multaq is causing a reaction.
I am taking
ruxolitinib
for MPN and multaq is causing a reaction.
Drowes
in
Atrial Fibrillation Support
1 month ago
Ruxolitinib - declining efficacy?
Hi everyone I’ve had PV for 12 years or so and have been on
Ruxolitinib
for the past 7 years with great success. My platelets dropped to around 450 and my haematocrit has been stable, with no side effects. My general health and fatigue levels have improved markedly.
Hi everyone I’ve had PV for 12 years or so and have been on
Ruxolitinib
for the past 7 years with great success. My platelets dropped to around 450 and my haematocrit has been stable, with no side effects. My general health and fatigue levels have improved markedly.
Rob58
in
MPN Voice
4 days ago
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Momelotinib for Myelofibrosis
Hi, I have been suffering from primary MF for 9 years and have been on
Ruxolitinib
. However recently I was advised that
Ruxolitinib
is no longer effectively managing my MF. My platelets and Hb are low and my spleen has enlarged again. My consultant is trying to get me approved for Momelotinib.
Hi, I have been suffering from primary MF for 9 years and have been on
Ruxolitinib
. However recently I was advised that
Ruxolitinib
is no longer effectively managing my MF. My platelets and Hb are low and my spleen has enlarged again. My consultant is trying to get me approved for Momelotinib.
Cazbolac
in
MPN Voice
2 months ago
Jakafi and night
Anyone else on Jakafi/
ruxolitinib
and have their head “racing” at bedtime? I guess sort of like you’ve had several cups of coffee and laid down to sleep.
Anyone else on Jakafi/
ruxolitinib
and have their head “racing” at bedtime? I guess sort of like you’ve had several cups of coffee and laid down to sleep.
ProudHarry
in
Fight MPN
3 months ago
Jakavi advice please
The consultant suggests moving to
Ruxolitinib
and stopping the Peg, which I've been taking for 9 months now and doesn't appear to be effective. I've read up the info on
Ruxolitinib
and am a bit alarmed at the number of possible side effects.
The consultant suggests moving to
Ruxolitinib
and stopping the Peg, which I've been taking for 9 months now and doesn't appear to be effective. I've read up the info on
Ruxolitinib
and am a bit alarmed at the number of possible side effects.
Sivasi
in
MPN Voice
1 month ago
A bit of advice please.
I have be reading about
ruxolitinib
and wondered if anyone out there takes this medication to treat ET JAK2 ? I have read that this is to treat PV whilst also read about it being used for ET JAK2 so I’m a bit confused 🫤 Yvonne
I have be reading about
ruxolitinib
and wondered if anyone out there takes this medication to treat ET JAK2 ? I have read that this is to treat PV whilst also read about it being used for ET JAK2 so I’m a bit confused 🫤 Yvonne
YBSx
in
MPN Voice
17 hours ago
Transitioning from HU to Ruxolitinib
I am hoping that people here can give me the benefit of their experience of switching from hydroxycarbamide to
ruxolitinib
. I had a consultation today with Prof Mead at the Churchill hospital Oxford and he is suggesting that such a switch would be a good move.
I am hoping that people here can give me the benefit of their experience of switching from hydroxycarbamide to
ruxolitinib
. I had a consultation today with Prof Mead at the Churchill hospital Oxford and he is suggesting that such a switch would be a good move.
friendofpiglet
in
MPN Voice
1 day ago
Ruxolitinib - how has it impacted your INR if you are on warfarin
Is there anyone else on warfarin who has experienced changes in INR when starting
Ruxolitinib
Thanks
Is there anyone else on warfarin who has experienced changes in INR when starting
Ruxolitinib
Thanks
user2021a
in
MPN Voice
29 days ago
Palbociclib for MF reducing fibrosis and more
https://medicalxpress.com/news/2021-08-discovery-potential-treatment-deadly-blood.html and active to MPL also: " In this study, we investigated the efficacy of CDK4/6 inhibitor palbociclib alone or in combination with
ruxolitinib
in Jak2V617F and MPLW515L murine models of myelofibrosis.
https://medicalxpress.com/news/2021-08-discovery-potential-treatment-deadly-blood.html and active to MPL also: " In this study, we investigated the efficacy of CDK4/6 inhibitor palbociclib alone or in combination with
ruxolitinib
in Jak2V617F and MPLW515L murine models of myelofibrosis.
EPguy
in
MPN Voice
1 month ago
Choices.
I have been on
ruxolitinib
for the last 3 1/2 years and am now in a position where it is no longer working as it was and I need to decide where to go from here.
I have been on
ruxolitinib
for the last 3 1/2 years and am now in a position where it is no longer working as it was and I need to decide where to go from here.
Petsgalore
in
MPN Voice
2 days ago
Best treatment for Post PV/MF ?
Ruxolitinib
or interferon? I was diagnosed with pv in 2017. 2 years of hydroxy, then
ruxolitinib
at 20mg a day. A bmb in december showed progression to mf. Grade 2 fibrosis. The rux has recently been increased to 30mg a day along with 1 iron tablet on alternate days.
Ruxolitinib
or interferon? I was diagnosed with pv in 2017. 2 years of hydroxy, then
ruxolitinib
at 20mg a day. A bmb in december showed progression to mf. Grade 2 fibrosis. The rux has recently been increased to 30mg a day along with 1 iron tablet on alternate days.
MCW22
in
MPN Voice
3 months ago
Transplant Route
I was diagnosed with primary MF 9 years ago and have been relatively well managed on
Ruxolitinib
for most of that time. Recently however my platelets have been consistently low, 37, 56, 59 and about same now.
I was diagnosed with primary MF 9 years ago and have been relatively well managed on
Ruxolitinib
for most of that time. Recently however my platelets have been consistently low, 37, 56, 59 and about same now.
Cazbolac
in
MPN Voice
4 months ago
Switch from Besremi to Ruxolitinib
Dear all After 18 months on Besremi my oncologist and I made the decision to move on and so am starting on Rux. In brief, I titrated up from 100 ug (Sep 2022) to 500 ug Bes and was at that dose for 9 months. I was CHR for the last 5 months of this period. My platelet count however crashed in Oct
Dear all After 18 months on Besremi my oncologist and I made the decision to move on and so am starting on Rux. In brief, I titrated up from 100 ug (Sep 2022) to 500 ug Bes and was at that dose for 9 months. I was CHR for the last 5 months of this period. My platelet count however crashed in Oct
gjh8733
in
MPN Voice
2 months ago
Ruxolitinib
Hi Has anyone been on
Ruxolitinib
for PV for the last couple of years ,and could share the effects regarding taking
Ruxolitinib
? I have been advised to consider this ,as I had to stop taking Peg INF , Many thanks , Bobbie
Hi Has anyone been on
Ruxolitinib
for PV for the last couple of years ,and could share the effects regarding taking
Ruxolitinib
? I have been advised to consider this ,as I had to stop taking Peg INF , Many thanks , Bobbie
Bobadog
in
MPN Voice
7 months ago
Ruxolitinib Combinations Reduce Spleen Volume in Myelofibrosis: Combos with navitoclax/pelabresib led to more patients achieving reductions
Patients receiving pelabresib in combination with
ruxolitinib
reported fewer anemia adverse events compared with placebo plus
ruxolitinib
, and fewer patients in the combination arm required red blood cell transfusions.
Patients receiving pelabresib in combination with
ruxolitinib
reported fewer anemia adverse events compared with placebo plus
ruxolitinib
, and fewer patients in the combination arm required red blood cell transfusions.
PhysAssist
in
MPN Voice
6 months ago
Sorry it has been a while with an update on Ruxolitinib
The last time I wrote to you all was about 2/3 years ago when I started
Ruxolitinib
. The first 6 to 8 months I was a different person, I felt great.
The last time I wrote to you all was about 2/3 years ago when I started
Ruxolitinib
. The first 6 to 8 months I was a different person, I felt great.
wendycu
in
MPN Voice
4 days ago
Ruxolitinib is intolerant, what should I do
I started taking
Ruxolitinib
at the end of 2018, when I had a huge spleen, MF3, and was 31 years old. I have been taking this medication for 5 years now.
I started taking
Ruxolitinib
at the end of 2018, when I had a huge spleen, MF3, and was 31 years old. I have been taking this medication for 5 years now.
merlisa
in
MPN Voice
5 months ago
Besremi and Rux Combined
I have a 6 month appointment on Monday and I wonder if any of you out there have been on a combined treatment of both Besremi and
Ruxolitinib
? If so, I would very much like to hear your thoughts. This forum is so VERY helpful, I continue to learn and benefit from all of the posts. Thank you!
I have a 6 month appointment on Monday and I wonder if any of you out there have been on a combined treatment of both Besremi and
Ruxolitinib
? If so, I would very much like to hear your thoughts. This forum is so VERY helpful, I continue to learn and benefit from all of the posts. Thank you!
C_Anne_Orange
in
MPN Voice
3 months ago
Infections with Ruxolitinib
Just wondering how many of you have had lowered immunity from Rux. On the positive side, my spleen had been greatly enlarged, and Rux took it down very quickly. But not too long afterwards I found myself getting slightly feverish and very weak. Long story short, I ended up with pneumonia. Just starting
Just wondering how many of you have had lowered immunity from Rux. On the positive side, my spleen had been greatly enlarged, and Rux took it down very quickly. But not too long afterwards I found myself getting slightly feverish and very weak. Long story short, I ended up with pneumonia. Just starting
Orangeboykitty
in
MPN Voice
7 months ago
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