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Pegasys
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Pegasys Journey
I started
Pegasys
45mcg 14wks ago and my platelet count was stabilised at 10wks (age 66yrs). I was given the option of Hydroxy or
Pegasys
, for me
Pegasys
was the right decision. The only change I could report yesterday at my FU was increased muscle pain.
I started
Pegasys
45mcg 14wks ago and my platelet count was stabilised at 10wks (age 66yrs). I was given the option of Hydroxy or
Pegasys
, for me
Pegasys
was the right decision. The only change I could report yesterday at my FU was increased muscle pain.
Carol0925
in
MPN Voice
3 months ago
Pegasys side effects
I was switched from 500 Hydroxyurea/day to 90mg
Pegasys
every two weeks. The pain in hips and thighs is substantial - headache also, but not as bothersome as the muscle pain. Has anyone else experience this on
Pegasys
. Also, has anyone tried CoQ10 for muscle pain and has it work? Thanks
I was switched from 500 Hydroxyurea/day to 90mg
Pegasys
every two weeks. The pain in hips and thighs is substantial - headache also, but not as bothersome as the muscle pain. Has anyone else experience this on
Pegasys
. Also, has anyone tried CoQ10 for muscle pain and has it work? Thanks
Dusty777
in
MPN Voice
3 months ago
How much daily water should I drink on Pegasys?
Hi everyone I will be starting
Pegasys
in 10 days time and see that the MPN Voice leaflet says to drink 3 litres of water daily. I do drink a lot of water but that amount seems huge. Do you
Pegasys
veterans drink that every day or just on injection day? I would appreciate your advice.
Hi everyone I will be starting
Pegasys
in 10 days time and see that the MPN Voice leaflet says to drink 3 litres of water daily. I do drink a lot of water but that amount seems huge. Do you
Pegasys
veterans drink that every day or just on injection day? I would appreciate your advice.
Na56
in
MPN Voice
3 months ago
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Cataract surgery?
Has anyone had any cataract surgery while taking
Pegasys
? Is there a problem with eye surgery while taking Interferon? I'm about to be changed over to
Pegasys
from Hydrea, and also about to have cataract surgery. Some of the things I've read seem to indicate that may be a problem.
Has anyone had any cataract surgery while taking
Pegasys
? Is there a problem with eye surgery while taking Interferon? I'm about to be changed over to
Pegasys
from Hydrea, and also about to have cataract surgery. Some of the things I've read seem to indicate that may be a problem.
dogsandhorses
in
MPN Voice
4 months ago
Interferon and the liver
My blood numbers actually look decent and I want to keep taking
pegasys
but I am nervous because my last ALT number was like 80 with the top of range being <41..
My blood numbers actually look decent and I want to keep taking
pegasys
but I am nervous because my last ALT number was like 80 with the top of range being <41..
dbus1417
in
MPN Voice
2 months ago
Pegasys nhs
Has anyone had a problem getting prescribed
Pegasys
on nhs as a first line treatment at 45? Really keen on this as a starting treatment due to age.
Has anyone had a problem getting prescribed
Pegasys
on nhs as a first line treatment at 45? Really keen on this as a starting treatment due to age.
Scaredalone
in
MPN Voice
9 days ago
Pegasys
Haematologist has started him on
Pegasys
45mcg once weekly and also continued with Rux 5mg [to see how he copes]. He has coped really well having nausea and headache within 24hrs but then ok .
Haematologist has started him on
Pegasys
45mcg once weekly and also continued with Rux 5mg [to see how he copes]. He has coped really well having nausea and headache within 24hrs but then ok .
waddles22
in
MPN Voice
4 months ago
Airport travel with Injections
Can some experienced travellers who use
Pegasys
give me some advice please. I am travelling this week from the UK to Mexico, and have bought a Disoncare insulin cooler to keep my
Pegasys
syringes in whilst travelling.
Can some experienced travellers who use
Pegasys
give me some advice please. I am travelling this week from the UK to Mexico, and have bought a Disoncare insulin cooler to keep my
Pegasys
syringes in whilst travelling.
swimswam
in
MPN Voice
1 month ago
Pegasys & Hydrea
I am wondering if anyone is taking both in combination? I am not getting the results from PEG and I don't want to increase my dose above 115 mcgs. I asked my doctor if we could try a small dose of Hydrea maybe 500 twice a week to see if this will lower my HCT so I can go more than 2 months without a
I am wondering if anyone is taking both in combination? I am not getting the results from PEG and I don't want to increase my dose above 115 mcgs. I asked my doctor if we could try a small dose of Hydrea maybe 500 twice a week to see if this will lower my HCT so I can go more than 2 months without a
russkatt
in
MPN Voice
2 months ago
Pegasys Side Effects
Hello All - Two months ago I started injecting 45mcg of
Pegasys
weekly. During this time I have developed dry mouth which is most pronounced in the morning. I drink what I think is a lot of water, and even during the night I awaken several times to drink water.
Hello All - Two months ago I started injecting 45mcg of
Pegasys
weekly. During this time I have developed dry mouth which is most pronounced in the morning. I drink what I think is a lot of water, and even during the night I awaken several times to drink water.
Proton_1
in
MPN Voice
11 days ago
Hyperthyroidism and Pegasys
Hi everyone, I have been on
Pegasys
for my ET for about 5 months and have now found out I have very low TSG levels and too high t4, i.e. hyperthyroidism. Has anyone else experienced thyroid problems and did they have to come off IFN? Thanks!
Hi everyone, I have been on
Pegasys
for my ET for about 5 months and have now found out I have very low TSG levels and too high t4, i.e. hyperthyroidism. Has anyone else experienced thyroid problems and did they have to come off IFN? Thanks!
ts75
in
MPN Voice
2 months ago
What to expect at start of Pegasys?
A question for those of you with PV on
Pegasys
Interferon please:- If you had side-effects were they from the first injection or did they emerge later? I know this will be dose / individual dependent (I don't yet know dose or frequency).
A question for those of you with PV on
Pegasys
Interferon please:- If you had side-effects were they from the first injection or did they emerge later? I know this will be dose / individual dependent (I don't yet know dose or frequency).
RoundTheWorld
in
MPN Voice
9 days ago
Travelling with interferon/pegasys
Hi , I have just recently started on the
pegasys
weekly injections . I am travelling to Greece and wonder if anyone can recomend the best way to keep the medication at the correct temperature whilst flying and travelling.
Hi , I have just recently started on the
pegasys
weekly injections . I am travelling to Greece and wonder if anyone can recomend the best way to keep the medication at the correct temperature whilst flying and travelling.
Sunnyhunny
in
MPN Voice
2 months ago
Is it ok to alter Pegasys dosage interval if going on holiday?
I have an appointment at Guy’s in three weeks time to discuss changing from hydroxycarbemide to
Pegasys
. I have a few one week holidays booked for this Spring and Summer .
I have an appointment at Guy’s in three weeks time to discuss changing from hydroxycarbemide to
Pegasys
. I have a few one week holidays booked for this Spring and Summer .
Na56
in
MPN Voice
5 months ago
Keeping Pegasys injections cool and monitoring temp
Hi, I have recently been diagnosed with Erdheim-Chester Disease after being treated for many years for an MPN, (ET) I have started on
Pegasys
Interferon and will be travelling by plane soon (yay) and am looking for advice to keep the injections cool.
Hi, I have recently been diagnosed with Erdheim-Chester Disease after being treated for many years for an MPN, (ET) I have started on
Pegasys
Interferon and will be travelling by plane soon (yay) and am looking for advice to keep the injections cool.
LeoTravels
in
MPN Voice
13 days ago
PV fatigue
I have just started
Pegasys
interferon after failed treatments of phlebotomies and Hydroxyurea. My fatigue since diagnosis and treatments starting 2021 is all consuming. I don’t know how to deal or cope with the tiredness, lack of energy, and overall feeling unwell.
I have just started
Pegasys
interferon after failed treatments of phlebotomies and Hydroxyurea. My fatigue since diagnosis and treatments starting 2021 is all consuming. I don’t know how to deal or cope with the tiredness, lack of energy, and overall feeling unwell.
CherokeeBlue
in
MPN Voice
2 months ago
Pegasys is applying for formal approval in MPN treatment
Dear friends, I came across a EMA document recently and found that
Pegasys
is applying for indication extension to PV and ET.
Dear friends, I came across a EMA document recently and found that
Pegasys
is applying for indication extension to PV and ET.
TimothyHLuff
in
MPN Voice
5 months ago
Treatment Change, question
I'm in the process in changing my medication from hydroxycarbamide to
Pegasys
. I'm currently on both whilst still taking the hydroxycarbamide I am introducing the interferon at 45mg every 2 weeks, for 8 weeks, I'm into my 7th week, so far so good.
I'm in the process in changing my medication from hydroxycarbamide to
Pegasys
. I'm currently on both whilst still taking the hydroxycarbamide I am introducing the interferon at 45mg every 2 weeks, for 8 weeks, I'm into my 7th week, so far so good.
Swim360
in
MPN Voice
2 months ago
Starting dose for pegasys?
My illness is showing symptoms of masked PV and we are now starting
pegasys
interferon, as i have had severe depression all my life and still as moderate im worried about the possibility of some risks in mental and other issues.
My illness is showing symptoms of masked PV and we are now starting
pegasys
interferon, as i have had severe depression all my life and still as moderate im worried about the possibility of some risks in mental and other issues.
Ninete
in
MPN Voice
1 month ago
Pegasys for MF transitioning from hydroxycarbamide
Does anyone have any experience of losing hair with
pegasys
? The internet says it will grow back once the treatment is ceased, but as it's for an MPN we don't expect it to finish.
Does anyone have any experience of losing hair with
pegasys
? The internet says it will grow back once the treatment is ceased, but as it's for an MPN we don't expect it to finish.
jointpain
in
MPN Voice
5 months ago
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