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Ofev
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saving my dad
We are willing to try anything
Ofev
and prednisone are seeming to make his condition worse.
We are willing to try anything
Ofev
and prednisone are seeming to make his condition worse.
Timslungs
in
Lung Conditions Community Forum
11 months ago
Diarrhea from SSc ILD medication Ofev (Nintedanib)
Dear SSc folks, are you suffering from significant Diarrhea resulting from taking
Ofev
(Nintedanib) ? If so, how do get this under control ? Thank you :-)
Dear SSc folks, are you suffering from significant Diarrhea resulting from taking
Ofev
(Nintedanib) ? If so, how do get this under control ? Thank you :-)
waermebaer
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
OFEV (nintedanib)
I’m currently on
OFEV
medication for Rheumatoid ILD and wondered if there was anyone else out there also on this medication that could share their experience / give me advice.
I’m currently on
OFEV
medication for Rheumatoid ILD and wondered if there was anyone else out there also on this medication that could share their experience / give me advice.
Bonchops10
in
Lung Conditions Community Forum
1 year ago
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prostrate cancer
I am controlling my IPF with a experimental drug called
OFEV
. I have been an experiment with medical pulmonary research which I am responding to well.. But losing muscle mass will weaken my ability to cough up flem.. Tough spot here..
I am controlling my IPF with a experimental drug called
OFEV
. I have been an experiment with medical pulmonary research which I am responding to well.. But losing muscle mass will weaken my ability to cough up flem.. Tough spot here..
Terribleten
in
Men's Health Forum
1 year ago
NINTEDANIB (OFEV)
I have RA and rheumatoid ILD. I started taking nintedanib in July last year, I had a medication review in January and I explained all the side effects I was experiencing. The doctor suggested that due to my slight frame (lost loads of weight), I do a month’s trial of only 1 x 150mg tab every evening.
I have RA and rheumatoid ILD. I started taking nintedanib in July last year, I had a medication review in January and I explained all the side effects I was experiencing. The doctor suggested that due to my slight frame (lost loads of weight), I do a month’s trial of only 1 x 150mg tab every evening.
Bonchops10
in
Living with Interstitial Lung Disease (ILD)
1 year ago
NSIP and diabetes
Or find that
OFEV
effects diabetic blood sugar
Or find that
OFEV
effects diabetic blood sugar
Loveroftwist
in
Lung Conditions Community Forum
2 years ago
PMR and pain areas -nor sure if hip pain or PMR relapse
Just FYI—I take Mycophenolate and
Ofev
, which are heavy duty meds already with possible serious side effects. Thanks.
Just FYI—I take Mycophenolate and
Ofev
, which are heavy duty meds already with possible serious side effects. Thanks.
HeartMe
in
PMRGCAuk
2 years ago
The best of three evils: Which medication will cause me least grief?
Ofev
appears to increase the possibility of bleeding and bruising which causes some concerns. At the moment Esbriet seems to be the least of the evils, but I wondered if anyone else has any useful insights on these drugs.
Ofev
appears to increase the possibility of bleeding and bruising which causes some concerns. At the moment Esbriet seems to be the least of the evils, but I wondered if anyone else has any useful insights on these drugs.
Sclero_99
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
Anti-fibrotic drugs and Orgovyx combination
Does anyone have Idiopathic Pulmonary Fibrosis and taking anti-fibrotic drugs such as
Ofev
or Esbriet AND also have PCa and taking Orgovyx? I would like to know firsthand experience of such combination of drugs. Thanks in Advance
Does anyone have Idiopathic Pulmonary Fibrosis and taking anti-fibrotic drugs such as
Ofev
or Esbriet AND also have PCa and taking Orgovyx? I would like to know firsthand experience of such combination of drugs. Thanks in Advance
nicecity
in
Advanced Prostate Cancer
2 years ago
Lung Scarring
My doctor has recommended the medicine
Ofev
for my scarred lungs. Has anyone had experience with this? If so, did it make a difference?
My doctor has recommended the medicine
Ofev
for my scarred lungs. Has anyone had experience with this? If so, did it make a difference?
Dermatray15
in
Lung Conditions Community Forum
3 years ago
Has anyone taken the prescription Ofev for lung disease?
I was prescribed
Ofev
for my lungs. I would like to know if anyone else is taking this medicine and if you noticed a difference?
I was prescribed
Ofev
for my lungs. I would like to know if anyone else is taking this medicine and if you noticed a difference?
Dermatray15
in
Lung Conditions Community Forum
3 years ago
Ofev
My consultant is thinking of prescribing
Ofev
for my IPF I heard the side effects can be awful! Any info would be appreciated 🥴🥴🥴
My consultant is thinking of prescribing
Ofev
for my IPF I heard the side effects can be awful! Any info would be appreciated 🥴🥴🥴
Looseloafers
in
Lung Conditions Community Forum
4 years ago
Idiopathic Pulmonary Fibrosis with Scleroderma
I don't have much information on this but have been put onto new medication after being taken off of mycophenalate as it had stopped working and put onto
Ofev
. Have been told that it won't stop further damage to my lungs, just slow it down. Trouble is, the breathlessness and fatigue are not good.
I don't have much information on this but have been put onto new medication after being taken off of mycophenalate as it had stopped working and put onto
Ofev
. Have been told that it won't stop further damage to my lungs, just slow it down. Trouble is, the breathlessness and fatigue are not good.
marilynmcl
in
Scleroderma & Raynaud's UK (SRUK)
4 years ago
IPF
How ae people coping with taking
Ofev
for Idiopathic Pulonary Fibrosis
How ae people coping with taking
Ofev
for Idiopathic Pulonary Fibrosis
Lizzy1898
in
Lung Conditions Community Forum
4 years ago
Nintedanib Tapers Fibrosing ILD Disease Progression.
Nintedanib (
Ofev
) treatment significantly slowed disease progression versus placebo in a phase III trial involving patients with fibrosing interstitial lung diseases (ILD) other than idiopathic pulmonary fibrosis (IPF), researchers reported.
Nintedanib (
Ofev
) treatment significantly slowed disease progression versus placebo in a phase III trial involving patients with fibrosing interstitial lung diseases (ILD) other than idiopathic pulmonary fibrosis (IPF), researchers reported.
2greys
in
Lung Conditions Community Forum
5 years ago
I just joined Healthunlocked.
I am waiting to be approved for the drug
Ofev
soon hopefully.
I am waiting to be approved for the drug
Ofev
soon hopefully.
Yikesrunrunnose
in
Lung Conditions Community Forum
5 years ago
Prognosis,
Any body out there still alive more than 5 years after Diagnosis of idiopathic pulmonary fibrosis who has been taken nintedanib (
OFEV
) I would be interested in their opinion of the drug,
Any body out there still alive more than 5 years after Diagnosis of idiopathic pulmonary fibrosis who has been taken nintedanib (
OFEV
) I would be interested in their opinion of the drug,
Servicer
in
Lung Conditions Community Forum
6 years ago
Ofev
I would like to hear from people who are taking
Ofev
I would like to hear from people who are taking
Ofev
Lizzy1898
in
Lung Conditions Community Forum
6 years ago
Idiopathic pulmonary fibrosis
Any comments from Idiopathic pulmonary fibrosis sufferers particularly the the drug nintedanib (
Ofev
). Also about oxygen bags or other containers that can be recharged at home from my consentrater? I am 76 and about 5 years since first diagnosed ,
Any comments from Idiopathic pulmonary fibrosis sufferers particularly the the drug nintedanib (
Ofev
). Also about oxygen bags or other containers that can be recharged at home from my consentrater? I am 76 and about 5 years since first diagnosed ,
Servicer
in
Lung Conditions Community Forum
6 years ago
Hi everyone, has anybody suffered from severe abdominal pains , after taking Ofev 100 mgs nintdanib capsules ? , Thank you
Left side of the body, and then progressing to the right .
Left side of the body, and then progressing to the right .
JohnnyM
in
Lung Conditions Community Forum
6 years ago
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