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Pip help
Hi lovely people I have a question i am waiting on a decision for pip and have just found out my Dr has diagnosed me with fibromyalgia amongst other ting do I need to tell pip now This is me not my husband š«£ Thanks in advance āŗļø
Hi lovely people I have a question i am waiting on a decision for pip and have just found out my Dr has diagnosed me with fibromyalgia amongst other ting do I need to tell pip now This is me not my husband š«£ Thanks in advance āŗļø
Suzeinwoody
in
Fibromyalgia Action UK
7 hours ago
I've finally reached a milestone
I quit teaching due to hyperacusis. The classroom was the only place that used to keep me going in that job. So I finished last week and started doing a couple of days at my new job this week. Day two in the office and I managed all day with no hearing protection.Its a small quiet office with only a
I quit teaching due to hyperacusis. The classroom was the only place that used to keep me going in that job. So I finished last week and started doing a couple of days at my new job this week. Day two in the office and I managed all day with no hearing protection.Its a small quiet office with only a
daverussell
in
Tinnitus UK
28 days ago
Next instalment
Before I start my next task, either proofreading or, dread the thought, cleaning the car, here`s the next instalment. Chris. One of mum's best friends from childhood was, without a doubt, Lydia, a confident who in later life became Aunty Lyds to all of us. Their friendship through their teenage years
Before I start my next task, either proofreading or, dread the thought, cleaning the car, here`s the next instalment. Chris. One of mum's best friends from childhood was, without a doubt, Lydia, a confident who in later life became Aunty Lyds to all of us. Their friendship through their teenage years
LissacFrance
in
Lung Conditions Community Forum
2 months ago
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Impact of brief CBT on chronic pain and anxiety
Hello, My name is Audrey and I am a student at Pepperdine University. I am doing a research study about the impact of brief Cognitive Behavioral Therapy on people with chronic pain and anxiety. I would appreciate it if you could take a few minutes to complete both parts. It will also expose you to a
Hello, My name is Audrey and I am a student at Pepperdine University. I am doing a research study about the impact of brief Cognitive Behavioral Therapy on people with chronic pain and anxiety. I would appreciate it if you could take a few minutes to complete both parts. It will also expose you to a
audreycosta
in
Pain Concern
2 months ago
Patients with higher apolipoprotein A-I levels at greater risk for giant cell arteritis
https://www.healio.com/news/rheumatology/20240315/patients-with-higher-apolipoprotein-ai-levels-at-greater-risk-for-giant-cell-arteritis
https://www.healio.com/news/rheumatology/20240315/patients-with-higher-apolipoprotein-ai-levels-at-greater-risk-for-giant-cell-arteritis
perceptual63
in
PMRGCAuk
2 months ago
Aortitis
I was diagnosed with non cranial Giant Cell Arteritis in September last year. So far I haven't managed to find anyone else with this condition because most people have the temporal version with the headaches.Mine is Aortitis which apparently is rare. I'd love to share experiences with someone else
I was diagnosed with non cranial Giant Cell Arteritis in September last year. So far I haven't managed to find anyone else with this condition because most people have the temporal version with the headaches.Mine is Aortitis which apparently is rare. I'd love to share experiences with someone else
Dance62
in
PMRGCAuk
3 months ago
PMR and brachial neuritis
It looks like I have developed a fairly rare condition called Parsonage-Turner syndrome (PTS), also called brachial neuritis. It started with terrible pain in the shoulder, so initially I thought it would appear in the other shoulder and be the beginning of a PMR relapse. But it is taking a different
It looks like I have developed a fairly rare condition called Parsonage-Turner syndrome (PTS), also called brachial neuritis. It started with terrible pain in the shoulder, so initially I thought it would appear in the other shoulder and be the beginning of a PMR relapse. But it is taking a different
dmart7
in
PMRGCAuk
3 months ago
Question to the collective
As mentioned previously, I was diagnosed (Prof H/Sheffield) as having the SCA7 version of Ataxia in 2014. I was put on a tablet,( DANTROLENE) that has been gradually increased from 1 X 25mg capsule to the current 3 X 25mg Just had a phone call about some physio I saw last year, and it was then kind
As mentioned previously, I was diagnosed (Prof H/Sheffield) as having the SCA7 version of Ataxia in 2014. I was put on a tablet,( DANTROLENE) that has been gradually increased from 1 X 25mg capsule to the current 3 X 25mg Just had a phone call about some physio I saw last year, and it was then kind
Butcherpete
in
Ataxia UK
3 months ago
Hi Iām dory10. I was diagnosed inDec2019 but had it for 27 years. I fall over a lot now Iām having tests to find out why.
I fell down stairs expecting my 3rd child at 37 weeks . She was fine a genius infact but I was left in muscle spasms and so much pain. I was told I was so close to being a paraplegic. I put up with all the little things that went wrong, I was fortunate not to be paraplegic. In 2016 I had a minor car
I fell down stairs expecting my 3rd child at 37 weeks . She was fine a genius infact but I was left in muscle spasms and so much pain. I was told I was so close to being a paraplegic. I put up with all the little things that went wrong, I was fortunate not to be paraplegic. In 2016 I had a minor car
Dory10
in
Fibromyalgia Action UK
4 months ago
Loss of voice!
Anybody with asthma + bronchiectasis combo ever suffer with total loss of voice? Ihave the odd croaky days, but it doesn't last long, now I've lost my voice ccompletely.....had loads of hot drinks, nothing working. Tips please!! Thanks.
Anybody with asthma + bronchiectasis combo ever suffer with total loss of voice? Ihave the odd croaky days, but it doesn't last long, now I've lost my voice ccompletely.....had loads of hot drinks, nothing working. Tips please!! Thanks.
Tiggertheterrier
in
Asthma Community Forum
4 months ago
Pseudomonas colonised.
Morning all, l have been on nebulised Colomycin since last August. Although it has kept infections at bay, l am more breathless than l used to be and energy levels are very low. I have told that l will be on this medication for a long time as my lungs are very badly damaged. I cannot walk any length
Morning all, l have been on nebulised Colomycin since last August. Although it has kept infections at bay, l am more breathless than l used to be and energy levels are very low. I have told that l will be on this medication for a long time as my lungs are very badly damaged. I cannot walk any length
falcon68
in
Lung Conditions Community Forum
4 months ago
Getting bombarded with ads for RA treatment Honey bee venom cream?.
Amazing too good to be true claims for this but there seems to be a few bits of research on it being anti inflammatory. Anyone tried it ? Still taking the meds....
Amazing too good to be true claims for this but there seems to be a few bits of research on it being anti inflammatory. Anyone tried it ? Still taking the meds....
welsh12
in
NRAS
5 months ago
MGUS and PMR/GCA
If true, this is a little unsettling... MGUS can be a precursor to Multiple Myeloma. Quote from article: "A study of United States veterans suggested that subjects with autoimmune conditions where autoantibodies are detectable are at increased risk of developing MGUS [46]. Furthermore, a recent
If true, this is a little unsettling... MGUS can be a precursor to Multiple Myeloma. Quote from article: "A study of United States veterans suggested that subjects with autoimmune conditions where autoantibodies are detectable are at increased risk of developing MGUS [46]. Furthermore, a recent
kp60
in
PMRGCAuk
5 months ago
imurel
hi I was started on imurel in November alongside 10mgs prednisol. with a view to getting me off steroids. The pains in my head have mostly gone and I am starting to feel better now. I did start on 60 mgs prednisol when first diagnosed with PMR 15 months ago reduced to 10 mgs but then diagnosed with
hi I was started on imurel in November alongside 10mgs prednisol. with a view to getting me off steroids. The pains in my head have mostly gone and I am starting to feel better now. I did start on 60 mgs prednisol when first diagnosed with PMR 15 months ago reduced to 10 mgs but then diagnosed with
NormaB
in
PMRGCAuk
5 months ago
Total knee replacement
19 days post op - been very tough especially when COVID thrown into the mix! My muscle tone wasnāt great pre-op but is now nonexistent. Is it possible to build muscle tone with PMR? Without PMR itās possible to build good muscle tone with regular exercises but no matter how frequently I do my post op
19 days post op - been very tough especially when COVID thrown into the mix! My muscle tone wasnāt great pre-op but is now nonexistent. Is it possible to build muscle tone with PMR? Without PMR itās possible to build good muscle tone with regular exercises but no matter how frequently I do my post op
Toffeeboyblue
in
PMRGCAuk
5 months ago
Easy squeeze eye drops
Happy and healthy new year to you lovely people. I have recently had a hand op and my other hand is giving up the ghost. I have Sjƶgrenās syndrome as well as ra and have to put eye drops in regularly. I was wondering if any of you use eye drops that are easy to squeeze or if any of you use a bottle applicator
Happy and healthy new year to you lovely people. I have recently had a hand op and my other hand is giving up the ghost. I have Sjƶgrenās syndrome as well as ra and have to put eye drops in regularly. I was wondering if any of you use eye drops that are easy to squeeze or if any of you use a bottle applicator
debjw
in
NRAS
5 months ago
ct abdominal scan with contrast
I have limited systematic scleroderma for 10 years affecting hands and joints with calcium deposits xx due to bowel problem need a ct scan with contrast is this okay to have dye contrast into your arm With my condition will the dye effect kidneys . Your advice appreciated thank you I have scan for
I have limited systematic scleroderma for 10 years affecting hands and joints with calcium deposits xx due to bowel problem need a ct scan with contrast is this okay to have dye contrast into your arm With my condition will the dye effect kidneys . Your advice appreciated thank you I have scan for
Pycat123
in
Scleroderma & Raynaud's UK (SRUK)
6 months ago
PMR and the effect on mental health.
I consider myself as coping as I am getting to the point of acceptance of this disease after being diagnosed 12 weeks ago as a 57-year-old male but why do I have moments of absolute overwhelming sadness? I have never welled up to this extent and can even feel it coming on, which is very odd indeed.
I consider myself as coping as I am getting to the point of acceptance of this disease after being diagnosed 12 weeks ago as a 57-year-old male but why do I have moments of absolute overwhelming sadness? I have never welled up to this extent and can even feel it coming on, which is very odd indeed.
Markandevie
in
PMRGCAuk
6 months ago
OxyContin and low dose suboxone.
I have told different things by different Mds. Is it safe to take these two at the same time. Shaughnna Ps. I promise to give my story when I have more time
I have told different things by different Mds. Is it safe to take these two at the same time. Shaughnna Ps. I promise to give my story when I have more time
shaughnna
in
National Migraine Centre
6 months ago
Gentamicin Nebulised
HiI have bronchiectasis and pseudomonas colonisation. I have been on Colomycin for 10 years but have now seeked a second opinion for my condition (maybe a bit late but I took Littlepom's advice). They are looking to change me to Gentamicin instead. At present I am on IV antibiotics for 14 days. Fifth
HiI have bronchiectasis and pseudomonas colonisation. I have been on Colomycin for 10 years but have now seeked a second opinion for my condition (maybe a bit late but I took Littlepom's advice). They are looking to change me to Gentamicin instead. At present I am on IV antibiotics for 14 days. Fifth
LMEI
in
Lung Conditions Community Forum
7 months ago
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