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Offered palliative care only
Dear all, Writing to ask if anyone may have an answer to this: My mum 76 years old who was very active and healthy, currently living in Chile deteriorated very quickly while I was visiting last Christmas 2023. Left body side weak so after an emergency visit to neurologist and imaging got discovered
Dear all, Writing to ask if anyone may have an answer to this: My mum 76 years old who was very active and healthy, currently living in Chile deteriorated very quickly while I was visiting last Christmas 2023. Left body side weak so after an emergency visit to neurologist and imaging got discovered
NJRV
in
Glioblastoma Support
8 days ago
Two medications & more frequent seizures.
My 15 year old daughter is on 175mg Lamotrigine twice daily & 750mg Keppra twice daily. She has been on Lamotrigine for 6 years but has only just reached the optimum dose of Keppra, during her increase of Keppra and since reaching the target dose, she has been having seizures more frequently and they
My 15 year old daughter is on 175mg Lamotrigine twice daily & 750mg Keppra twice daily. She has been on Lamotrigine for 6 years but has only just reached the optimum dose of Keppra, during her increase of Keppra and since reaching the target dose, she has been having seizures more frequently and they
lightfamily
in
Epilepsy Action
27 days ago
liver
I’m 73 and been feeling extra tired recently, otherwise fit and well. I thought the tiredness might be caused by Keppra a drug I take for epilepsy, I’m also on statins … but anyway the GP did a blood test, the Serum Alanine transaminase was ‘out of range’ at 54 u/l. I’ve always been a drinker but stick
I’m 73 and been feeling extra tired recently, otherwise fit and well. I thought the tiredness might be caused by Keppra a drug I take for epilepsy, I’m also on statins … but anyway the GP did a blood test, the Serum Alanine transaminase was ‘out of range’ at 54 u/l. I’ve always been a drinker but stick
rogertb
in
British Liver Trust
1 month ago
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Liver
I’m 73 and been feeling extra tired recently, otherwise fit and well. I thought the tiredness might be caused by Keppra a drug I take for epilepsy, I’m also on statins … but anyway the GP did a blood test, the Serum Alanine transaminase was ‘out of range’ at 54 u/l. (4u/l above the range of 50). I’ve
I’m 73 and been feeling extra tired recently, otherwise fit and well. I thought the tiredness might be caused by Keppra a drug I take for epilepsy, I’m also on statins … but anyway the GP did a blood test, the Serum Alanine transaminase was ‘out of range’ at 54 u/l. (4u/l above the range of 50). I’ve
rogertb
in
Men's Health Forum
1 month ago
New drug
Hello, My son has recently been prescribed Zonisamide. His epilepsy has not been controlled with other drugs although both Lamotrigine and Oxcarbazepine kerbed tonic clonic seizures. Introduced to Keppra and tonic clonic returned...so now suggested to stop Keppra and introduce Zonisamide. On low dose
Hello, My son has recently been prescribed Zonisamide. His epilepsy has not been controlled with other drugs although both Lamotrigine and Oxcarbazepine kerbed tonic clonic seizures. Introduced to Keppra and tonic clonic returned...so now suggested to stop Keppra and introduce Zonisamide. On low dose
LakeshoreDriveKing
in
Epilepsy Action
2 months ago
A Search for Underlying Causes
Hello, How many of you have taken the journey for underlying causes via blood tests and hormones and nutrition? We refuse to live with medicating the seizures as the only solution and are looking for people who have taken this journey and what they have discovered. We are considering a Functional MD
Hello, How many of you have taken the journey for underlying causes via blood tests and hormones and nutrition? We refuse to live with medicating the seizures as the only solution and are looking for people who have taken this journey and what they have discovered. We are considering a Functional MD
apache31
in
Epilepsy Action
3 months ago
New mum with epilepsy
hi everyone. I was diagnosed with epilepsy in 2006 and had treatment for a brain AVM in 2007. I started with tonic clonic seizures in 2006 but was put on carbamazepine and ever since then I only had focal aware seizures. I changed medication to keppra about 2 years ago to be safer for pregnancy and I
hi everyone. I was diagnosed with epilepsy in 2006 and had treatment for a brain AVM in 2007. I started with tonic clonic seizures in 2006 but was put on carbamazepine and ever since then I only had focal aware seizures. I changed medication to keppra about 2 years ago to be safer for pregnancy and I
Lily123456
in
Epilepsy Action
4 months ago
Confused about clobozam
Hi I’m new to the forum I’ve had epilepsy for 10 years, for the first couple of years it was fairly well controlled with various doses of Keppra, im now on 3000mg. My epilepsy is tonic clonic with a couple of seizures per year (always when I’m over tired or travelling abroad) I always end up in
Hi I’m new to the forum I’ve had epilepsy for 10 years, for the first couple of years it was fairly well controlled with various doses of Keppra, im now on 3000mg. My epilepsy is tonic clonic with a couple of seizures per year (always when I’m over tired or travelling abroad) I always end up in
Mindymork
in
Epilepsy Action
5 months ago
TLE and weakness
I have temporal lobe epilepsy, shrunken hippocampus and mesial temporal sclerosis, all on the right side of my brain. Would this the cause of weakness in my right leg?Also I've noticed lately, that this bitterly cold weather seems to affect my right side. Awaiting a report from a recent mri (19th Nov
I have temporal lobe epilepsy, shrunken hippocampus and mesial temporal sclerosis, all on the right side of my brain. Would this the cause of weakness in my right leg?Also I've noticed lately, that this bitterly cold weather seems to affect my right side. Awaiting a report from a recent mri (19th Nov
Dawn43
in
Epilepsy Action
6 months ago
Adderall XR: Increase dosage?
I have an upcoming psych visit and I’m thinking of asking my prescriber to up my dosage. I’m currently on Adderall XR 15 mg which is working better than the other drugs I’ve tried. I’m still having issues with focus, decision making, knowing what the steps are in a project and memory. Here’s an example
I have an upcoming psych visit and I’m thinking of asking my prescriber to up my dosage. I’m currently on Adderall XR 15 mg which is working better than the other drugs I’ve tried. I’m still having issues with focus, decision making, knowing what the steps are in a project and memory. Here’s an example
MaudQ
in
CHADD's Adult ADHD Support
21 days ago
zoloft??
Hi! Does anyone have a child taking Zoloft? My almost 12 yo son takes Focalin xr plus 100 mg of Zoloft for anger/anxiety/emotional outbursts. (He takes a very small does of Guanfacine at night but I don’t know that it does much) Lately his attitude is very crabby/cranky/angry. I know hormones can affect
Hi! Does anyone have a child taking Zoloft? My almost 12 yo son takes Focalin xr plus 100 mg of Zoloft for anger/anxiety/emotional outbursts. (He takes a very small does of Guanfacine at night but I don’t know that it does much) Lately his attitude is very crabby/cranky/angry. I know hormones can affect
Crazyboymomma
in
CHADD's ADHD Parents Together
1 month ago
Focalin comedown
My son (11) has been on Focalin XR for about 2 months (5mg the first month - no effect, and now 10mg). We've noticed that around 7pm, he often can get super down and sad. It's not every night, but it's at least a couple times a week. Sometimes he can identify something bothering him, but other times
My son (11) has been on Focalin XR for about 2 months (5mg the first month - no effect, and now 10mg). We've noticed that around 7pm, he often can get super down and sad. It's not every night, but it's at least a couple times a week. Sometimes he can identify something bothering him, but other times
AlltheLegos
in
CHADD's ADHD Parents Together
2 months ago
Lacosamide
Hi, have recently had this medication prescribed to stop focal episodes. (50mg twice a day).This is my fifth day on it and since the third day I have had headaches, mainly forehead area. Im also finding that since keppra increase to 750mg twice a day after a seizure on 1st september lasting around 10
Hi, have recently had this medication prescribed to stop focal episodes. (50mg twice a day).This is my fifth day on it and since the third day I have had headaches, mainly forehead area. Im also finding that since keppra increase to 750mg twice a day after a seizure on 1st september lasting around 10
Dawn43
in
Epilepsy Action
8 months ago
Side effects of Adderall XR
Has anyone else developed a sore throat or cough on Adderall XR? If so does regular Adderall have the same effect. I’ve recently (about 4-5 months ago) started ADHD meds after being off for about 8 years. I suffer from EDS (excessive daytime sleepiness) in addition to ADHD of the primarily inattentive
Has anyone else developed a sore throat or cough on Adderall XR? If so does regular Adderall have the same effect. I’ve recently (about 4-5 months ago) started ADHD meds after being off for about 8 years. I suffer from EDS (excessive daytime sleepiness) in addition to ADHD of the primarily inattentive
Naturegames
in
CHADD's Adult ADHD Support
4 months ago
Meds for DMDD & ADHD
My son was recently diagnosed with DMDD along with his ADHD last week. I was wondering if any parents here have their kids on any medications for both disorders? So far his psychiatrist only prescribed him with Quillivant XR. we haven’t started medicating him yet because we’re waiting for authorization
My son was recently diagnosed with DMDD along with his ADHD last week. I was wondering if any parents here have their kids on any medications for both disorders? So far his psychiatrist only prescribed him with Quillivant XR. we haven’t started medicating him yet because we’re waiting for authorization
Mommywarrior4LC
in
CHADD's ADHD Parents Together
6 months ago
Parkinson’s and RLS
Hello, I’m new to the forum and have signed up on behalf of my mum, to try and get some advice based on her current medication and her RLS. Mum-has been diagnosed with Parkinson’s approximately 1 year ago , although was misdiagnosed twice by 2 x GP’s as not having it! Not great. Medication taking
Hello, I’m new to the forum and have signed up on behalf of my mum, to try and get some advice based on her current medication and her RLS. Mum-has been diagnosed with Parkinson’s approximately 1 year ago , although was misdiagnosed twice by 2 x GP’s as not having it! Not great. Medication taking
SR223
in
Restless Legs Syndrome
9 months ago
What To Do Next?
Hi Friends, First post here, although I've come back to this forum a few times. I'm at a spot where, even though I know it's untrue, I feel like I'm experiencing anxiety like no one has ever experienced it before (we all know the lonely feeling). I've been dealing with this for about a year an a half
Hi Friends, First post here, although I've come back to this forum a few times. I'm at a spot where, even though I know it's untrue, I feel like I'm experiencing anxiety like no one has ever experienced it before (we all know the lonely feeling). I've been dealing with this for about a year an a half
Cam_Cam_Cam
in
Anxiety and Depression Support
6 months ago
Brain fog, weakness meds or tumour?
New to this thank you. I am looking for information. I have a newly diagnosed grade 4 gliobastoma which has been recently debulked. I am currently awaiting radiotherapy. I take steroids in the morning and Keppra at night and experience a constant brain fog and weakness to limbs which I am unsure as to
New to this thank you. I am looking for information. I have a newly diagnosed grade 4 gliobastoma which has been recently debulked. I am currently awaiting radiotherapy. I take steroids in the morning and Keppra at night and experience a constant brain fog and weakness to limbs which I am unsure as to
Lin32
in
Glioblastoma Support
10 months ago
Exhausted..
Good morning, New member & I have seen more helpful information here than I’ve been able to find anywhere else! To start, my son is 6 and we have started the medication journey & it’s been nothing short of eventful. Focalin XR low dose increased to 15 mg and then 5 mg at lunch, worked for a week and
Good morning, New member & I have seen more helpful information here than I’ve been able to find anywhere else! To start, my son is 6 and we have started the medication journey & it’s been nothing short of eventful. Focalin XR low dose increased to 15 mg and then 5 mg at lunch, worked for a week and
Boymama2023
in
CHADD's ADHD Parents Together
7 months ago
Epilim and folate / change to lamotrigine ?
I was put on Epilim in my teens. Some years later, I became symptom free, and I was unmedicated for 10 years. I had to go back on Epilim Chrono five years ago - which may have been triggered by my thyroid problems. I’ve been on the thyroid forum, where it transpires that I am short on folate. A quick
I was put on Epilim in my teens. Some years later, I became symptom free, and I was unmedicated for 10 years. I had to go back on Epilim Chrono five years ago - which may have been triggered by my thyroid problems. I’ve been on the thyroid forum, where it transpires that I am short on folate. A quick
Applethorpe
in
Epilepsy Action
11 months ago
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