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Valproate: new safety and educational materials to support regulatory measures in men and women under 55 years of age
[/i] https://www.gov.uk/drug-safety-update/valproate-belvo-convulex-depakote-dyzantil-
epilim
-
epilim
-chrono-or-chronosphere-episenta-epival-and-syonellv-new-safety-and-educational-materials-to-support-regulatory-measures-in-men-and-women-under-55-years-of-age
[/i] https://www.gov.uk/drug-safety-update/valproate-belvo-convulex-depakote-dyzantil-
epilim
-
epilim
-chrono-or-chronosphere-episenta-epival-and-syonellv-new-safety-and-educational-materials-to-support-regulatory-measures-in-men-and-women-under-55-years-of-age
helvella
Thyroid UK
in
Thyroid UK
4 months ago
Shaky hands side effects of Vimpat [Lacosamide] or Briviact [Brivaracetam] have been taking them since April 2018?
In 2016 taken off
Epilim
, almost Parkinson's disease shaking hands, have been tested twice for PD both negative, now something similar? I have JME epilepsy since 1970, 400+ seizures, was told in July 2021 "next seizure probably be your last"!
In 2016 taken off
Epilim
, almost Parkinson's disease shaking hands, have been tested twice for PD both negative, now something similar? I have JME epilepsy since 1970, 400+ seizures, was told in July 2021 "next seizure probably be your last"!
Adlon57
in
Epilepsy Action
7 months ago
Could Epilim and lacosamide/VIMPAT have something in common [type of medication?] that causes 'shakes',need to get some research done on it?
In 2016 I was taken off
Epilim
, I have JME epilepsy, I was on it for circa. eight years, with lamictal, but my hands shook so bad, fears it was Parkinson's disease, [my father had Parkinson's disease] I was 'tested' then subsequently again in 2021 both negative, I was put on Fycompa in 2016, the shaking
In 2016 I was taken off
Epilim
, I have JME epilepsy, I was on it for circa. eight years, with lamictal, but my hands shook so bad, fears it was Parkinson's disease, [my father had Parkinson's disease] I was 'tested' then subsequently again in 2021 both negative, I was put on Fycompa in 2016, the shaking
Adlon57
in
Epilepsy Action
6 months ago
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Epilim and folate / change to lamotrigine ?
A quick Google shows that this may be due to
Epilim
. I have never been advised to take folate supplements in all my years on
Epilim
. Is it usual for neurologists to recommend regular folate supplements with
Epilim
and to regularly check vitamin levels?
A quick Google shows that this may be due to
Epilim
. I have never been advised to take folate supplements in all my years on
Epilim
. Is it usual for neurologists to recommend regular folate supplements with
Epilim
and to regularly check vitamin levels?
Applethorpe
in
Epilepsy Action
11 months ago
My response to the AASM Guidelines For RLS
www.medicalnewstoday.com/articles/317911#Treatment-and-coping A line item reference from "there was insufficient and inconclusive evidence to make recommendations for the following" in the discussion could include ketamine,, Oxcarbazepine, Lamotrigine, topiramate, Depakote, Sodium valproate, divalproex sodium,
Epilim
www.medicalnewstoday.com/articles/317911#Treatment-and-coping A line item reference from "there was insufficient and inconclusive evidence to make recommendations for the following" in the discussion could include ketamine,, Oxcarbazepine, Lamotrigine, topiramate, Depakote, Sodium valproate, divalproex sodium,
Epilim
SueJohnson
in
Restless Legs Syndrome
2 months ago
Incorrect medication
Was not sure whether to make a fuss or not as they have previously also given me the wrong dose of
epilim
and I had to go back and I am only a few short but I only get just enough of the medication each month.
Was not sure whether to make a fuss or not as they have previously also given me the wrong dose of
epilim
and I had to go back and I am only a few short but I only get just enough of the medication each month.
Angie140720
in
Epilepsy Action
8 months ago
interactions
My daughter is on
Epilim
Chronospheres 600mg twice a day. Are any of you on the same and have had strepsils before? If so which ones are safe for her alongside this medication. The Honey & Lemon ones say they contain alcohol so have avoided them. Thank you
My daughter is on
Epilim
Chronospheres 600mg twice a day. Are any of you on the same and have had strepsils before? If so which ones are safe for her alongside this medication. The Honey & Lemon ones say they contain alcohol so have avoided them. Thank you
SMV06
in
Epilepsy Action
10 months ago
Advice required
I was put on
Epilim
chrono 1200 mg and have been seizure free since. I went privately so looks like they just signed me off and I never got any NHS follow ups. About a year ago I went back to my GP and asked due to weight gain if there was an alternative medication I could go onto.
I was put on
Epilim
chrono 1200 mg and have been seizure free since. I went privately so looks like they just signed me off and I never got any NHS follow ups. About a year ago I went back to my GP and asked due to weight gain if there was an alternative medication I could go onto.
Halloumilover
in
Epilepsy Action
1 year ago
Sodium valproate and thyroid and diabetes - severe learning disabilities/recommend endo?
and has taken
Epilim
for 30 years combined with Vimpat for last 4 years. I realise this is very specific but does anyone know how I can find this rare endocrinologist who understands such a situation and will be understanding ?
and has taken
Epilim
for 30 years combined with Vimpat for last 4 years. I realise this is very specific but does anyone know how I can find this rare endocrinologist who understands such a situation and will be understanding ?
Booba
in
Epilepsy Action
1 year ago
Risperidone skin rash (and epilim and lamotragine)
I had previously been on lamotragine and
epilim
. All of these drugs give me the most awful itchy rash which a good dermatologist has failed to be able to resolve and it's getting worse. Respiridone does really help with my mood and sleep but I can't cope with this rash.
I had previously been on lamotragine and
epilim
. All of these drugs give me the most awful itchy rash which a good dermatologist has failed to be able to resolve and it's getting worse. Respiridone does really help with my mood and sleep but I can't cope with this rash.
Sarasot
in
Anxiety and Depression Support
8 months ago
My son is autistic with epilepsy stopped eating
My son 11 yo got epilepsy and autism. 10 weeks ago he started taking the prescribed
Epilim
liquid, starting with 2 ml per day and gradually increased the dose to 10 ml per day. Starting from a 4 ml dose we started noticing severe side effects. At 8 ml this became very concerning.
My son 11 yo got epilepsy and autism. 10 weeks ago he started taking the prescribed
Epilim
liquid, starting with 2 ml per day and gradually increased the dose to 10 ml per day. Starting from a 4 ml dose we started noticing severe side effects. At 8 ml this became very concerning.
IrinaBibikova
in
Epilepsy Action
9 months ago
I was on Epilim and Lamictal for my Juvenile Myoclonic Epilepsy, bad shaking hands, was it Parkinson's disease, found reaction to Epilim!
Is there some sort of link between the effects of the
Epilim
and the effects of the AZ vaccine?
Is there some sort of link between the effects of the
Epilim
and the effects of the AZ vaccine?
Adlon57
in
Epilepsy Action
2 years ago
Long term side effects of Lamictal on bones and teeth?
I took Lamictal for my JME epilepsy, with Keppra,
Epilim
and Fycompa, my dentist was always ticking me off for years, I was paying for expensive fillings, crowns, etc, I wondered why, even going onto electric toothbrushes, still severe 'slap on the wrists' "Why don't use ...." blah, blah, then when
I took Lamictal for my JME epilepsy, with Keppra,
Epilim
and Fycompa, my dentist was always ticking me off for years, I was paying for expensive fillings, crowns, etc, I wondered why, even going onto electric toothbrushes, still severe 'slap on the wrists' "Why don't use ...." blah, blah, then when
Adlon57
in
Epilepsy Action
2 years ago
Essential tremors for Epilim and Lamictal [2013-2016] now same thing for Vimpat and Briviact [2018- 2021 ......
So could it be just the same side effects of the
Epilim
/Lamictal and Vimpat/Briviact that is the trouble?
So could it be just the same side effects of the
Epilim
/Lamictal and Vimpat/Briviact that is the trouble?
Adlon57
in
Epilepsy Action
3 years ago
Night time awakenings
She moved through Lamotrigine to
Epilim
. She missed a few doses that resulted in three tonic clonic seizures. As a result, her neurologist prescribed an increased dose of
Epilim
. She is currently on 500 mg
Epilim
in the evening and 300 mg
Epilim
in the morning.
She moved through Lamotrigine to
Epilim
. She missed a few doses that resulted in three tonic clonic seizures. As a result, her neurologist prescribed an increased dose of
Epilim
. She is currently on 500 mg
Epilim
in the evening and 300 mg
Epilim
in the morning.
lebasor
in
Epilepsy Action
3 years ago
I have J M E since the age of 14 I am 65, and have had over 400 + seizures, since 2013 I have seen "epilepsy specialists" four times!
In that time, on
Epilim
and lamictal, side effects of
Epilim
, meant I was tested for Parkinson's disease, severe shaking of hands, [negative] (my father had had Parkinson's){one. two} then new specialist {three} in December 2016, I smashed my chest, broke at least 5 ribs in February 2017, [tried suicide
In that time, on
Epilim
and lamictal, side effects of
Epilim
, meant I was tested for Parkinson's disease, severe shaking of hands, [negative] (my father had had Parkinson's){one. two} then new specialist {three} in December 2016, I smashed my chest, broke at least 5 ribs in February 2017, [tried suicide
Adlon57
in
Epilepsy Action
3 years ago
Advice on seizure types
I also have generalised seizures occasionally too and have changed medication to
epilim
which does not stop them.
I also have generalised seizures occasionally too and have changed medication to
epilim
which does not stop them.
Angie140720
in
Epilepsy Action
3 years ago
Switching from keppra to epilim, has anyone else had a seizure & if so did they go back on keppra or wait for it to settle?
I have been following the 4 month change over from keppra to
epilim
because I had a seizure Jan 2020. I took the last keppra on friday 29th Jan 21 and had a seizure on Sunday 31st Jan.
I have been following the 4 month change over from keppra to
epilim
because I had a seizure Jan 2020. I took the last keppra on friday 29th Jan 21 and had a seizure on Sunday 31st Jan.
Angie140720
in
Epilepsy Action
3 years ago
Hello , my question relates to my bloods, re Vitamin B12 replete Plasma Folate level, is a result of 7ng/ml ( 4.0-20.0) considered low?
I have epilepsy and been using medication for 40yrs, sodium valproate/
epilim
. Just discovering it can stop vitamins and minerals being absorbed into the body properly and cause Thyroid problems.
I have epilepsy and been using medication for 40yrs, sodium valproate/
epilim
. Just discovering it can stop vitamins and minerals being absorbed into the body properly and cause Thyroid problems.
Babs37
in
Thyroid UK
3 years ago
Levetiracetam information required
My son has been prescribed Levetiracetam in addition to
Epilim
Chrono because his seizures continue. I’m unsure about this - especially as it seems to make him very irritable. He has a tendency to depression and irritability anyway as he also has Type 1 diabetes and an acquired brain injury.
My son has been prescribed Levetiracetam in addition to
Epilim
Chrono because his seizures continue. I’m unsure about this - especially as it seems to make him very irritable. He has a tendency to depression and irritability anyway as he also has Type 1 diabetes and an acquired brain injury.
PinziA
in
Epilepsy Action
4 years ago
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