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Eculizumab
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cytoxan
My son has had
Eculizumab
and Rituximab with no success and is now declining rapidly with kidney function.
My son has had
Eculizumab
and Rituximab with no success and is now declining rapidly with kidney function.
Vegitarianmom
in
Parents of Children with Kidney Disease
21 days ago
Atypical Haemolytic Uraemic Syndrome (aHUS)
When were you diagnosed, did you have a battle to get your local healthboard to ok
Eculizumab
treatment?.
When were you diagnosed, did you have a battle to get your local healthboard to ok
Eculizumab
treatment?.
Jameskbt
in
Kidney Disease
5 years ago
Eculizumab: Expert opinion is needed - What is a correct way to get off Soliris?
Dear experts, my son has DDD and have been treated with Soliris since January. He feels much better, his sC5b-9 value has gone down from 560 to 319 within 2.5 months, although the C3 value has dropped from 27 mg/dl to 18, but proteinuria and haematuria are almost away. So, obviously, Soliris is good
Dear experts, my son has DDD and have been treated with Soliris since January. He feels much better, his sC5b-9 value has gone down from 560 to 319 within 2.5 months, although the C3 value has dropped from 27 mg/dl to 18, but proteinuria and haematuria are almost away. So, obviously, Soliris is good
MPGN-C3G
in
C3 Glomerulopathy
5 years ago
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New Treatment Guidelines for Blood Clotting Disorder
.,
eculizumab
) therapies may be considered based on data from case reports.
REFERENCE
: Tektonidou M, Andreoli L, Limper M, et al. “EULAR recommendations for the management of antiphospholipid syndrome in adults," Annals of Rheumatic Diseases (2019), DOI: 10.1136/annrheumdis-2019-215213.
.,
eculizumab
) therapies may be considered based on data from case reports.
REFERENCE
: Tektonidou M, Andreoli L, Limper M, et al. “EULAR recommendations for the management of antiphospholipid syndrome in adults," Annals of Rheumatic Diseases (2019), DOI: 10.1136/annrheumdis-2019-215213.
lupus-support1
Administrator
in
Hughes Syndrome APS Forum
5 years ago
New Treatment Guidelines for Blood Clotting Disorder
.,
eculizumab
) therapies may be considered based on data from case reports.
REFERENCE:
Tektonidou M, Andreoli L, Limper M, et al. “EULAR recommendations for the management of antiphospholipid syndrome in adults," Annals of Rheumatic Diseases (2019), DOI: 10.1136/annrheumdis-2019-215213.
.,
eculizumab
) therapies may be considered based on data from case reports.
REFERENCE:
Tektonidou M, Andreoli L, Limper M, et al. “EULAR recommendations for the management of antiphospholipid syndrome in adults," Annals of Rheumatic Diseases (2019), DOI: 10.1136/annrheumdis-2019-215213.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Treatments for C3G
Eculizumab
is another drug known as a monoclonal antibody. This drug can specifically target the complement system and has been used to treat C3G.
Treating conditions that sometimes occur with C3G
C3G damages the kidneys. After the kidneys, the eye is most often damaged.
Eculizumab
is another drug known as a monoclonal antibody. This drug can specifically target the complement system and has been used to treat C3G.
Treating conditions that sometimes occur with C3G
C3G damages the kidneys. After the kidneys, the eye is most often damaged.
DavidF_NKF
Administrator
in
C3 Glomerulopathy
5 years ago
NEW Responses to questions from webinar
Since some patients with C3G have shown improvement with
eculizumab
, it is hoped that avacopan, while administered by mouth rather than infusion, can produce the desired therapeutic effect without the side effects involved with
eculizumab
and reduced levels of MAC .
Since some patients with C3G have shown improvement with
eculizumab
, it is hoped that avacopan, while administered by mouth rather than infusion, can produce the desired therapeutic effect without the side effects involved with
eculizumab
and reduced levels of MAC .
DavidF_NKF
Administrator
in
C3 Glomerulopathy
6 years ago
Hello!
Although I had reached stage 4 kidney failure at one time, I am currently on
eculizumab
and my native kidneys are doing well at stage 2. I have been on this treatment for a little more than two years. My C3GN is believed to be caused by a mutation in C3 that has not been documented before.
Although I had reached stage 4 kidney failure at one time, I am currently on
eculizumab
and my native kidneys are doing well at stage 2. I have been on this treatment for a little more than two years. My C3GN is believed to be caused by a mutation in C3 that has not been documented before.
linfuller
Ambassador
in
C3 Glomerulopathy
6 years ago
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