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Experiences with
Cinchocaine / Prednisolone hexanoate
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Covid, covid test and tapering
Very slow tapering (DL style and working well) currently at 5mg prednisolone. Just into my 3rd year PMR diagnosis, when I contracted covid. Staying put at 5 mg now. PMR bouts of fatigue and sleepiness much worse this time though just starting to improve a little. not the case on my previous covid infection
Very slow tapering (DL style and working well) currently at 5mg prednisolone. Just into my 3rd year PMR diagnosis, when I contracted covid. Staying put at 5 mg now. PMR bouts of fatigue and sleepiness much worse this time though just starting to improve a little. not the case on my previous covid infection
waltztherapy
in
PMRGCAuk
3 hours ago
Feeling dispirited having had a flying start to meds, now regressing. Advice
Diagnosed and prescribed 20mgs of prednisolone 5 days ago. Woke up the next morning and a miracle had occurred. 95% improvement, could get out of bed, dress etc... Yesterday some symptoms returned mildly, today only 50% if that. Shoulder, neck, arms, legs and hands stiff. Is this normal? I haven't overdone
Diagnosed and prescribed 20mgs of prednisolone 5 days ago. Woke up the next morning and a miracle had occurred. 95% improvement, could get out of bed, dress etc... Yesterday some symptoms returned mildly, today only 50% if that. Shoulder, neck, arms, legs and hands stiff. Is this normal? I haven't overdone
Fatsiajaponica
in
PMRGCAuk
23 hours ago
Not posted for a while
I have been feeling quite poorly for some time now and feel that I am fighting a losing battle. Neurology have diagnosed trigeminal neuralgia for the pains I am having in my ear/eye /teeth and have tried a couple of epilepsy tablets which are very strong and makes me deadheaded but do not remove the
I have been feeling quite poorly for some time now and feel that I am fighting a losing battle. Neurology have diagnosed trigeminal neuralgia for the pains I am having in my ear/eye /teeth and have tried a couple of epilepsy tablets which are very strong and makes me deadheaded but do not remove the
Izb1
in
Lung Conditions Community Forum
1 day ago
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Anyone here who was prescribed prediniasolone 10mg thrice a day after positive bhcg and had successful pregnancy?
I had 6 previous losses. My doc didn't prescribe prednisolone but one of my relative who is a gynec asked me to start it thrice a day as i have a history of recurrent miscarriages. Im aware of this med being a steroid n im confused whether to start or not. As i read abt it's side effects. Please share
I had 6 previous losses. My doc didn't prescribe prednisolone but one of my relative who is a gynec asked me to start it thrice a day as i have a history of recurrent miscarriages. Im aware of this med being a steroid n im confused whether to start or not. As i read abt it's side effects. Please share
Vsl123
in
Fertility Network UK
1 day ago
Advice please.
I started my PMR and GCA journey June and July 2018. I am down to 5 .5mg prednisolone. Over the last10 days, I have had Temple area discomfort, and niggly bits of headache. Headache medication doesn't help with the headache. I was unable to lay on either side of my head during last night, and this morning
I started my PMR and GCA journey June and July 2018. I am down to 5 .5mg prednisolone. Over the last10 days, I have had Temple area discomfort, and niggly bits of headache. Headache medication doesn't help with the headache. I was unable to lay on either side of my head during last night, and this morning
pmrgcavictim
in
PMRGCAuk
2 days ago
Advice re Tapering and Stressful Holiday to Japan
Hi lovely members, I’ve been more or less successfully tapering down to 7.5 / 7 mg of Prednisolone for GCA ( diagnosed last July). I am due to go to Japan for three weeks at the end of this month. I know I currently need a daily sleep and frequent tests to cope with life. Is it wise to keep up
Hi lovely members, I’ve been more or less successfully tapering down to 7.5 / 7 mg of Prednisolone for GCA ( diagnosed last July). I am due to go to Japan for three weeks at the end of this month. I know I currently need a daily sleep and frequent tests to cope with life. Is it wise to keep up
Leafsong66
in
PMRGCAuk
2 days ago
prednislone & sertraline & hydroxy together? is it safe?
Hiya please could anyone tell me if they have taken prednisolone a rescue course whilst taking sertraline 50/100mg daily and hydroxycloroquine 200mg daily ? all these drugs have the potential to cause heartbeat problems.. I am scared of mixing too much at the same time.. many thanks
Hiya please could anyone tell me if they have taken prednisolone a rescue course whilst taking sertraline 50/100mg daily and hydroxycloroquine 200mg daily ? all these drugs have the potential to cause heartbeat problems.. I am scared of mixing too much at the same time.. many thanks
lindyloo2018
in
NRAS
3 days ago
2nd 'rescue' course of prednisolone in 6 months for RA?
Hiya my cons has finally said that the 3 week 15mg, 10mg, 5mg) course I did in november was not long enough, I could have told him that- it did not help much. however mtx now raised from 15 to 17.5 and hydroxy 200mg daily restarted 3 months ago. My hands are still bad but there are many things wrong
Hiya my cons has finally said that the 3 week 15mg, 10mg, 5mg) course I did in november was not long enough, I could have told him that- it did not help much. however mtx now raised from 15 to 17.5 and hydroxy 200mg daily restarted 3 months ago. My hands are still bad but there are many things wrong
lindyloo2018
in
NRAS
3 days ago
Alendronic Acid
Hi I have been getting heartburn after taking Alendronic Acid recently. Am on weekly dose. Have been taking for 3 months. My Dexa scan came back normal and the Rheumy says to stay on until Prednisolone stops which would be at least next March. I want to stop now as would rather risk fractures
Hi I have been getting heartburn after taking Alendronic Acid recently. Am on weekly dose. Have been taking for 3 months. My Dexa scan came back normal and the Rheumy says to stay on until Prednisolone stops which would be at least next March. I want to stop now as would rather risk fractures
Havanahula
in
PMRGCAuk
3 days ago
actemra, kevzara, tocillizumab, sarilumab
Dorset lady advised me to open a new post regarding the yes/ no’s/ maybe s of actemra, kevzara, tocillizumab and sarilumab as medications for PMR. In stead of prednisolone/ prednison. Thanks Dorset lady. may I ask to add comments re. methotrexate too…. i am embarrassed to say that I did nt even
Dorset lady advised me to open a new post regarding the yes/ no’s/ maybe s of actemra, kevzara, tocillizumab and sarilumab as medications for PMR. In stead of prednisolone/ prednison. Thanks Dorset lady. may I ask to add comments re. methotrexate too…. i am embarrassed to say that I did nt even
Kaaswinkel
in
PMRGCAuk
4 days ago
Experience of Covid Vaccines and Adrenals
I know the covid vaccines are a hot topic here. I don’t know if mum’s experience is helpful to share. Last years jabs were both a nightmare - led to weakness, temperature, light headedness loss of mobility and a significant down step in her dementia. Despite being a real advocate for the jabs I was
I know the covid vaccines are a hot topic here. I don’t know if mum’s experience is helpful to share. Last years jabs were both a nightmare - led to weakness, temperature, light headedness loss of mobility and a significant down step in her dementia. Despite being a real advocate for the jabs I was
RT18
in
PMRGCAuk
4 days ago
Eye problems following catheter ablation
I am now 10 weeks post catheter ablation.Following the procedure I developed aura migraines daily for around 10 days. The fact sheets explained that this was a possible complication and should rectify itself, which it did and 🤞 I have not had any migraines since. I have now developed a bloodshot patch
I am now 10 weeks post catheter ablation.Following the procedure I developed aura migraines daily for around 10 days. The fact sheets explained that this was a possible complication and should rectify itself, which it did and 🤞 I have not had any migraines since. I have now developed a bloodshot patch
Karendeena
in
Atrial Fibrillation Support
5 days ago
Update
Good morning everyone. Still warm and breathing, was locked out of my account and only just got back in. When I was first diagnosed with GCA I was on HRT I was told by the Rheumatologist that I should stay on it to protect my bones from the Prednisolone. My DEXA showed normal density probably due
Good morning everyone. Still warm and breathing, was locked out of my account and only just got back in. When I was first diagnosed with GCA I was on HRT I was told by the Rheumatologist that I should stay on it to protect my bones from the Prednisolone. My DEXA showed normal density probably due
EdithWales
in
PMRGCAuk
5 days ago
Is it OK to take hydrolytes when you have PMR?
We live in Cyprus and are currently going through a heatwave with temperatures reaching 40C. I've had PMR since August 2020 and have been on 7.5mg of prednisolone since October 2020. In the past I've taken hydrolytes in very hot weather as I suffer badly from head sweating. Strangely enough, nowhere
We live in Cyprus and are currently going through a heatwave with temperatures reaching 40C. I've had PMR since August 2020 and have been on 7.5mg of prednisolone since October 2020. In the past I've taken hydrolytes in very hot weather as I suffer badly from head sweating. Strangely enough, nowhere
Pr0jection
in
PMRGCAuk
5 days ago
Covid treatment with kidney transplant
Hi all! I have a kidney transplant since years. Currently taking 1mg Prograf twice a day, 0.5mg Cellcept twice a day and 5mg 3/4 tablet Prednisolone once a day. Before yesterday my whole body ached and I had temperature 38C. I took it down with Parcetamol and called ambulance. They've checked everything
Hi all! I have a kidney transplant since years. Currently taking 1mg Prograf twice a day, 0.5mg Cellcept twice a day and 5mg 3/4 tablet Prednisolone once a day. Before yesterday my whole body ached and I had temperature 38C. I took it down with Parcetamol and called ambulance. They've checked everything
TheLittleSquirrel
in
Kidney Transplant
5 days ago
synacthen test
I’m to have a synacthen test next week. I am taking 5 mg of prednisolone daily and have been told to stop the pred 3days before the test. Will this be ok. As have been told never to stop steroids suddenly ?
I’m to have a synacthen test next week. I am taking 5 mg of prednisolone daily and have been told to stop the pred 3days before the test. Will this be ok. As have been told never to stop steroids suddenly ?
Creamtea
in
PMRGCAuk
6 days ago
D&V what to do with prednisole
I came back from holiday Tuesday morning . Took prednisolone at 4 am. In the afternoon I started with D&V. It stopped in the evening .I took usual dose of prednisolone on Wednesday and again today. My question is , have I taken the correct amount or should I increase slightly. I’m still in bed at the
I came back from holiday Tuesday morning . Took prednisolone at 4 am. In the afternoon I started with D&V. It stopped in the evening .I took usual dose of prednisolone on Wednesday and again today. My question is , have I taken the correct amount or should I increase slightly. I’m still in bed at the
Sheeplegs
in
PMRGCAuk
6 days ago
Need to Rant. Worried my upcoming Valve Surgery may be cancelled due to getting Bronchitis .
Hi Everyone,I got my date for my Mitral Valve repair for 21st June. I was so pleased that my Surgeon moved me up the waiting list! However after getting my haircut 13 days ago and the Junior who washed my hair and made me tea had a cold ! I dropped the next day . Started my rescue pack of steroids
Hi Everyone,I got my date for my Mitral Valve repair for 21st June. I was so pleased that my Surgeon moved me up the waiting list! However after getting my haircut 13 days ago and the Junior who washed my hair and made me tea had a cold ! I dropped the next day . Started my rescue pack of steroids
Kiki54
in
British Heart Foundation
7 days ago
Gastro Resistant Prednisolone
Am on 4.5 mg Pred currently. If I ask for 2.5 mg to help make up my dose my GP prescribes Gastro Resistant pills. I think this is because for some reason 2.5 coated are cheaper. They wont prescribe the coated 1mg to go along with it! I have been reluctant to take this split dose of coated and non
Am on 4.5 mg Pred currently. If I ask for 2.5 mg to help make up my dose my GP prescribes Gastro Resistant pills. I think this is because for some reason 2.5 coated are cheaper. They wont prescribe the coated 1mg to go along with it! I have been reluctant to take this split dose of coated and non
jaycee444
in
PMRGCAuk
7 days ago
Hip replacement and prednisolone
I’m currently awaiting a hip replacement and am taking 5 mg a day prednisolone. Can I have the surgery on this level of steroids ?
I’m currently awaiting a hip replacement and am taking 5 mg a day prednisolone. Can I have the surgery on this level of steroids ?
Katsmam
in
NRAS
7 days ago
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