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Waking in afib & first time PIP experience, love to hear experiences of others...
Summary-Diagnosed 14 months ago, 6 episodes since all cardioverted. Taking apixaban only, couldn't tolerate beta blocker, adizem lowered HR too much. On PFA list. Five out of six episodes of Afib on waking, the most recent being last Thursday, the sixth being the first, happened while exercising,unknowingly
Summary-Diagnosed 14 months ago, 6 episodes since all cardioverted. Taking apixaban only, couldn't tolerate beta blocker, adizem lowered HR too much. On PFA list. Five out of six episodes of Afib on waking, the most recent being last Thursday, the sixth being the first, happened while exercising,unknowingly
sunlovah
in
Atrial Fibrillation Support
1 month ago
Thinning Hair
I’ve been taking Rivaroxaban with Flecainide and Adizem for AFib. My hair has become noticeable thinner. My Consultant has just changed my Rivaroxaban to Apixaban which also has hair loss as a side effect. Does anyone have this problem and are you able to recommend anything to help? I’m 76 years old
I’ve been taking Rivaroxaban with Flecainide and Adizem for AFib. My hair has become noticeable thinner. My Consultant has just changed my Rivaroxaban to Apixaban which also has hair loss as a side effect. Does anyone have this problem and are you able to recommend anything to help? I’m 76 years old
PAP48
in
Atrial Fibrillation Support
2 months ago
What to do?
I recently had the strength of my Adizem meditation increased from 120mg to 180mg daily as my BP was increasingly higher than usual. This medication was prescribed to control my blood pressure and help my heart rhythm. I have noticed I have mild swelling round my ankles and slight puffiness of my feet
I recently had the strength of my Adizem meditation increased from 120mg to 180mg daily as my BP was increasingly higher than usual. This medication was prescribed to control my blood pressure and help my heart rhythm. I have noticed I have mild swelling round my ankles and slight puffiness of my feet
ElizabethBee
in
Atrial Fibrillation Support
3 months ago
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Flecainide PIP info please
Diagnosed first episode March 2023 after exercising with shingles( unknowingly)- had four episodes since waking in AF, (also had Gastric probs during this time) Cardioverted back each time. Currently on Ablation list and awaiting tests to see if I can take Flecainide PIP, intolerant to Beta, Blockers
Diagnosed first episode March 2023 after exercising with shingles( unknowingly)- had four episodes since waking in AF, (also had Gastric probs during this time) Cardioverted back each time. Currently on Ablation list and awaiting tests to see if I can take Flecainide PIP, intolerant to Beta, Blockers
sunlovah
in
Atrial Fibrillation Support
4 months ago
Metallic taste after Edoxaban
Just a quick question. Does anyone have a metallic taste in their mouth after taking Edoxaban? It suits me to take the tablet before bedtime because I take Adizem in the morning to benefit me throughout the day. After taking Edoxaban in the evening, when I wake up in the night to make a bathroom call
Just a quick question. Does anyone have a metallic taste in their mouth after taking Edoxaban? It suits me to take the tablet before bedtime because I take Adizem in the morning to benefit me throughout the day. After taking Edoxaban in the evening, when I wake up in the night to make a bathroom call
ElizabethBee
in
AF Association
5 months ago
Rivaroxaban
Happy New Year everyone! Just wondering if anyone else has any side effects from Rivaroxaban? I'd been taking 20mg per day since 2017 with no noticeable side effects. I not only have AF but Bronchiectasis as well. Needed to put a sputum sample in for testing and carried this out in the usual way
Happy New Year everyone! Just wondering if anyone else has any side effects from Rivaroxaban? I'd been taking 20mg per day since 2017 with no noticeable side effects. I not only have AF but Bronchiectasis as well. Needed to put a sputum sample in for testing and carried this out in the usual way
PAP48
in
Lung Conditions Community Forum
5 months ago
Wrong meds
I was given biosopolo which made me very dizzy so was changed to adizem/diltiazem which I'm allergic to I came out in a rash all over my back n stomach.i was given anti allergy tablets n cream.then I came out in bruises everywhere. Dr consulted consultant 2 wks ago .still not heard back .I'm now being
I was given biosopolo which made me very dizzy so was changed to adizem/diltiazem which I'm allergic to I came out in a rash all over my back n stomach.i was given anti allergy tablets n cream.then I came out in bruises everywhere. Dr consulted consultant 2 wks ago .still not heard back .I'm now being
Lilyblossom29
in
British Heart Foundation
6 months ago
Post Second Ablation help pls
HiBeen a while since I posted. AF episodes continued so was placed on waiting list for 2nd Ablation procedure which I had yesterday. I have been told all went well but post op notes are unclear so wondering if anyone can help understand it. Notes say: LA was small but had low voltage in it. Inducing
HiBeen a while since I posted. AF episodes continued so was placed on waiting list for 2nd Ablation procedure which I had yesterday. I have been told all went well but post op notes are unclear so wondering if anyone can help understand it. Notes say: LA was small but had low voltage in it. Inducing
Marvel3000
in
Atrial Fibrillation Support
3 months ago
AF episodes post ablation
Wondered if anyone has had any experience or come across the following:- Just over six weeks since my (first) Ablation - l started with a AF episode (l had two within the first week) - it’s continued for over three weeks now, initially continuous for four days, then intermittent since , though the
Wondered if anyone has had any experience or come across the following:- Just over six weeks since my (first) Ablation - l started with a AF episode (l had two within the first week) - it’s continued for over three weeks now, initially continuous for four days, then intermittent since , though the
Blugene
in
Atrial Fibrillation Support
4 months ago
Diltiazem aka Cardizem
Of all times for AF to really mess me about is on my 80th birthday holiday back to the USA A wicked episode which woke me from sound sleep at 4am was not to be curtailed by the maximum dose of Flecainide. First time. Instead, bpm zoomed to 198 and stayed up there and I had no more drugs to throw
Of all times for AF to really mess me about is on my 80th birthday holiday back to the USA A wicked episode which woke me from sound sleep at 4am was not to be curtailed by the maximum dose of Flecainide. First time. Instead, bpm zoomed to 198 and stayed up there and I had no more drugs to throw
Racquet
in
Atrial Fibrillation Support
3 months ago
blinding period success!
This week I will hit the 3 month blinding period date! I remain in Normal sinus rhythm and will be able to discontinue my Eliquis! However 3 nights ago I began to have PAC’s. Today I recorded them pretty consistently 3-6 per minute. So bummed as I haven’t really even been aware of my heart beat in last
This week I will hit the 3 month blinding period date! I remain in Normal sinus rhythm and will be able to discontinue my Eliquis! However 3 nights ago I began to have PAC’s. Today I recorded them pretty consistently 3-6 per minute. So bummed as I haven’t really even been aware of my heart beat in last
Acheybreakeyheart
in
Atrial Fibrillation Support
3 months ago
Accessing care
I was finally diagnosed with AF in June this year (2023) after 7 years of experiencing fluttering in my throat, occasional heart racing during the night and a feeling of occasional faintness during the day. Granted Covid put a stop to most hospital and GP visits so I soldiered on with concern which didn
I was finally diagnosed with AF in June this year (2023) after 7 years of experiencing fluttering in my throat, occasional heart racing during the night and a feeling of occasional faintness during the day. Granted Covid put a stop to most hospital and GP visits so I soldiered on with concern which didn
ElizabethBee
in
AF Association
10 months ago
Abbreviations
I have recently been diagnosed with AF after suffering palpitations and unexplained fluttering in my throat since 2016. I have been treated for a number of years for hypertension. I’ve been prescribed Adizem (after a trial of Bisoprolol made me feel zombie-like) and Edoxaban and being reviewed in a couple
I have recently been diagnosed with AF after suffering palpitations and unexplained fluttering in my throat since 2016. I have been treated for a number of years for hypertension. I’ve been prescribed Adizem (after a trial of Bisoprolol made me feel zombie-like) and Edoxaban and being reviewed in a couple
ElizabethBee
in
AF Association
10 months ago
Adizem/Flecainide Side Effects
I take 50 mg Flecainide am and pm and am taking Adizem 120 slow release in the evening. Does anyone else have a problem with increased need to visit the loo in the evening or night time? From about 6 pm in the evening I'm frequently going to the toilet, I go before I go to bed, then by midnight(ish
I take 50 mg Flecainide am and pm and am taking Adizem 120 slow release in the evening. Does anyone else have a problem with increased need to visit the loo in the evening or night time? From about 6 pm in the evening I'm frequently going to the toilet, I go before I go to bed, then by midnight(ish
PAP48
in
Atrial Fibrillation Support
11 months ago
Finally got a diagnosis of Endometriosis today
I've been on such a journey with my pelvic pain. I'm 50 and I had a hysterectomy 4 months ago for fibroids. A laparoscopy ruled out Endo last year. I was pain free for the first time in months. I started hrt and my original pains 6 weeks ago came back with a vengeance just like they did last year when
I've been on such a journey with my pelvic pain. I'm 50 and I had a hysterectomy 4 months ago for fibroids. A laparoscopy ruled out Endo last year. I was pain free for the first time in months. I started hrt and my original pains 6 weeks ago came back with a vengeance just like they did last year when
Mindfullness4791
in
Endometriosis UK
10 hours ago
Help I can’t take this anymore
currently being treated for ‘suspected endometriosis’ not confirmed and currently still on the waiting list for my lap currently been waiting for 18 months and still being told I’ve been push higher up the list. I have been admitted to hospital 4 times since December 2023 with just being forced to
currently being treated for ‘suspected endometriosis’ not confirmed and currently still on the waiting list for my lap currently been waiting for 18 months and still being told I’ve been push higher up the list. I have been admitted to hospital 4 times since December 2023 with just being forced to
Dayna18
in
Endometriosis UK
5 days ago
Mirena coil
I was diagnosed with endometriosis back in September 2023 after suffering chronic pelvic pain for 3 years , along with severe bloating and abdominal pains. I was given 6 month trail on the prostap injections which helped massively, now I’ve been advised to go on the coil or I will be discharged. All
I was diagnosed with endometriosis back in September 2023 after suffering chronic pelvic pain for 3 years , along with severe bloating and abdominal pains. I was given 6 month trail on the prostap injections which helped massively, now I’ve been advised to go on the coil or I will be discharged. All
Mami2merch
in
Endometriosis UK
8 days ago
Benefit of private consultation, Adeno & Fybroids
Hi this is the first time I have posted here, but have been following messages for a while and just wanted to share the positive experience I’ve had with a private consultation. I started in November last year with what I would describe as hemorrhaging. I’ve always had heavy periods but this was uncontrolled
Hi this is the first time I have posted here, but have been following messages for a while and just wanted to share the positive experience I’ve had with a private consultation. I started in November last year with what I would describe as hemorrhaging. I’ve always had heavy periods but this was uncontrolled
Clarabellapp
in
Endometriosis UK
11 days ago
Pelvic pain back 3 months after Hysterectomy
I have had significant pelvic pain with bowel and bladder issues for 2.5 years. It was hard to get a diagnosis. I was told at first it was a bowel issue, then Endometriosis/Adenomyosis and was eventually diagnosed with 4 fibroids, 1 being 7cm. A year ago, I was put on Prostap and add back hrt. The Prostap
I have had significant pelvic pain with bowel and bladder issues for 2.5 years. It was hard to get a diagnosis. I was told at first it was a bowel issue, then Endometriosis/Adenomyosis and was eventually diagnosed with 4 fibroids, 1 being 7cm. A year ago, I was put on Prostap and add back hrt. The Prostap
Mindfullness4791
in
Endometriosis UK
11 days ago
Original pelvic pain back 3 months after hysterectomy
To cut a very long story short. I have had significant pelvic pain with bowel and bladder issues for 2.5 years. It was difficult to get a diagnosis. I was told at first it was a bowel issue, then Endometriosis/Adenomyosis and was eventually diagnosed with 4 fibroids, 1 being 7cm. A year ago, I was put
To cut a very long story short. I have had significant pelvic pain with bowel and bladder issues for 2.5 years. It was difficult to get a diagnosis. I was told at first it was a bowel issue, then Endometriosis/Adenomyosis and was eventually diagnosed with 4 fibroids, 1 being 7cm. A year ago, I was put
Mindfullness4791
in
Pelvic Pain Support Network
11 days ago
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