Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,470 members • 38,418 posts

All posts for June 2020

Anyone else finding that some posts won’t open, your own posts are disappearing and posts failing to appear in your in-box?

I’ve had a day or two of this. I don’t know if it is my iPad or the forum.

SheffieldJane

•4 years ago

22 Replies

Can PMR last a lifetime?

I have had this condition for around nine years now since I was aged 59. It took some time to be diagnosed but the relief from prednisolone was miraculous and...

I have had this condition for around nine years now since I was aged 59. It took...

Singer60

•4 years ago

31 Replies

Problem with links should now be fixed

Hi everyone, there's been a problem with links in posts today. A technical glitch which HU tech team have now sorted. Let me know though if you experience any...

Hi everyone, there's been a problem with links in posts today. A technical glitc...

Fran_Benson

Partner•4 years ago

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PMR & Corona Waves

Hi all, After going back up to 10mg from 5mg due to being very poorly 4 months ago it has now been confirmed by my Doctor I had Coronavirus having had a...

Hi all, After going back up to 10mg from 5mg due to being very poorly 4 months a...

Fredddie

•4 years ago

34 Replies

Lowering Prednisolone Doses

Has anyone experienced insomnia as soon as they reduce their dosage. My GP suggested lowering the dose ie take 7 and then on alternate days 6 and then the...

Has anyone experienced insomnia as soon as they reduce their dosage. My GP sugg...

Birdboxinthegarden

•4 years ago

15 Replies

Soft swelling follow up

Thankyou for all your helpful replies. I have spoken to my GP and sent her pictures, she does not think it is the prednisolone, more likely thyroid. She has...

Thankyou for all your helpful replies. I have spoken to my GP and sent her pictu...

Vaggers

•4 years ago

12 Replies

Is this lump caused by Pred?

Is this soft swelling between my collarbones caused by Pred? I think it probably is but would like reassurance as ‘shielding’ gives you loads of time to dwell...

Is this soft swelling between my collarbones caused by Pred? I think it probably...

Vaggers

•4 years ago

37 Replies

Concussion and PMR.

I haven’t posted for a long time having been coping pretty well, but would like advice from anyone who has experience of being concussed while reducing Pred....

I haven’t posted for a long time having been coping pretty well, but would like ...

Pym1

•4 years ago

12 Replies

Concussion and PMR.

I haven’t posted for a long time having been coping

Pym1

•4 years ago

2 Replies

My education continues

Good afternoon to anyone reading the forum.Just wondered what any of you might think regarding my post. Since I first joined six months ago I have read many...

Good afternoon to anyone reading the forum.Just wondered what any of you might t...

yorkieme

•4 years ago

26 Replies

Calcium - how much?

Just beginning my first dose of pred - I realise I need to take calcium too. My question is, is there enough in my daily multi vit or do I need more?

Just beginning my first dose of pred - I realise I need to take calcium too. My ...

artisam

•4 years ago

17 Replies

Blood tests.

Just a quick question.Is it necessary to have blood taken for testing if one is feeling fine?Obviously I haven’t had one for quite a few months because of The...

Just a quick question.Is it necessary to have blood taken for testing if one is ...

Dewdrop456

•4 years ago

11 Replies

Paliptations

I am having a few bouts of feeling a fluttering in my chest, I guess this is what they call palpitations. Having had no problems since starting Pred 3 weeks...

I am having a few bouts of feeling a fluttering in my chest, I guess this is wha...

jaybee58

•4 years ago

32 Replies

hi I have g.c.a. and am on prednisolone was on 60mg. but now reduceing every month now on 20mg,1 july will go down til 15mg.i get very worry

at nite I lie in bed with all different things going on in my head. can someone give some advice please.thank you.

at nite I lie in bed with all different things going on in my head. can someone ...

Flosy

•4 years ago

19 Replies

Vegetarian and PMR

Has anyone gone vegetarian and if so did they find that helped with the PMR. Just read one doctor suggesting it is the best thing for auto immune diseases...

Has anyone gone vegetarian and if so did they find that helped with the PMR. Ju...

remission

•4 years ago

56 Replies

My ongoing battle

Hi everyone, I am continuing my battle on 2 fronts still. Firstly with my symptoms and secondly with my GP. I have been tapering down my Prednisolone by 1mg...

Hi everyone, I am continuing my battle on 2 fronts still. Firstly with my sympto...

maxgarry

•4 years ago

38 Replies

Local Support Groups

I know it’s scary going out and seeing people again. Like many here I don’t go out much and I know that it’s still more than some of you. But I am so looking...

I know it’s scary going out and seeing people again. Like many here I don’t go o...

DogAgilityObsessed

•4 years ago

5 Replies

Early Morning Aching

Hello All You Lovely People! I have had PMR for over 3 years and am tapering, using DSNS method, down to 6 and a half from 7 mgs pred. I also have...

Hello All You Lovely People! I have had PMR for over 3 years and am tapering, us...

Louisa1840

•4 years ago

9 Replies

PMR + type 2 diabetes

Diagnosed with pmr last week and after IV prednisilone am now on reducing plan. Problem is my type 2 diabetes, which has been under control for 5 years with...

Diagnosed with pmr last week and after IV prednisilone am now on reducing plan. ...

Kalacik

•4 years ago

12 Replies

Fatigue relief with increased prednisone??

I have been suffering from the deathly fatigue associated with PMR for some time now and have been slowly increasing my pred dose from 9 mg per day to12 mg per...

I have been suffering from the deathly fatigue associated with PMR for some time...

Ozark

•4 years ago

6 Replies

Sensitive Teeth

Hi I've been taking 20mgs of prednisolone since the beginning of December 2019. This last couple of weeks I've developed sensitivity in most of my teeth if...

Hi I've been taking 20mgs of prednisolone since the beginning of December 2019. ...

holty

•4 years ago

28 Replies

Is this a flare up of PMR

Advice please about a possible flare up- I was diagnosed with PMR last December and given 20mgs of Pred. I went to Spain in February and slowly I was able to...

Advice please about a possible flare up- I was diagnosed with PMR last December ...

Hayling1

•4 years ago

8 Replies

Sudden pain in jawPred

This is a very odd pain which has happened twice in the last few weeks , the second time this morning . Th I was diagnosed with GCA Nov 2018 and PMR a year...

This is a very odd pain which has happened twice in the last few weeks , the sec...

Jane-s

•4 years ago

36 Replies

Should I expect to feel discomfort for a few days each time I reduce Pred ?

I've been feeling such benefit from 15mg Pred for last 4 weeks after 6 months of suffering. I'm walking average 4 miles a day and pretty much life back to...

I've been feeling such benefit from 15mg Pred for last 4 weeks after 6 months o...

CarolF1312

•4 years ago

17 Replies

answer to Jeromekjerome re Leflunomide

trying to answer JeromekJerome about Leflunomide but couldn't pull up the link so hope this helps: I've been on it for almost a year, but I did quit it for 6...

trying to answer JeromekJerome about Leflunomide but couldn't pull up the link s...

composition

•4 years ago

2 Replies

Wondering about Leflunomide side effects

Hi Everyone I started Leflunomide a week ago. I thought all was going well until yesterday. I hurt from head to toe and today is even worse, plus I have not...

Hi Everyone I started Leflunomide a week ago. I thought all was going well unti...

Linny3

•4 years ago

9 Replies

Update on tingling fingers.

I thought it might be helpful to post an update on a question that I asked on here two years ago.I was getting tingling ,numbness and swelling in my hands.It...

I thought it might be helpful to post an update on a question that I asked on he...

Dewdrop456

•4 years ago

14 Replies

Swelling around collarbone

So is swelling around the front of my collarbones from prednisone or PMR?

Whitner

•4 years ago

10 Replies

Scared

Finally got a diagnosis of PMR this week - 3 rheumatologists arguing it out. All the classic symptoms but blood not confirming it. Anyway, now I'm terrified...

Finally got a diagnosis of PMR this week - 3 rheumatologists arguing it out. All...

artisam

•4 years ago

101 Replies

European Headache Federation recommendations for neurologists managing giant cell arteritis - 17 Mch 2020

I found this today which I hope is useful as it is very recent....

Sefu

•4 years ago

7 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2020

Anyone else finding that some posts won’t open, your own posts are disappearing and posts failing to appear in your in-box?

Can PMR last a lifetime?

Problem with links should now be fixed

PMR & Corona Waves

Lowering Prednisolone Doses

Soft swelling follow up

Is this lump caused by Pred?

Concussion and PMR.

Concussion and PMR.

My education continues

Calcium - how much?

Blood tests.

Paliptations

hi I have g.c.a. and am on prednisolone was on 60mg. but now reduceing every month now on 20mg,1 july will go down til 15mg.i get very worry

Vegetarian and PMR

My ongoing battle

Local Support Groups

Early Morning Aching

PMR + type 2 diabetes

Fatigue relief with increased prednisone??

Sensitive Teeth

Is this a flare up of PMR

Sudden pain in jawPred

Should I expect to feel discomfort for a few days each time I reduce Pred ?

answer to Jeromekjerome re Leflunomide

Wondering about Leflunomide side effects

Update on tingling fingers.

Swelling around collarbone

Scared

European Headache Federation recommendations for neurologists managing giant cell arteritis - 17 Mch 2020

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