Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

70,734 members • 52,159 posts

Sort posts by:

dineogest & mirena coil

I’m in a bit of a predicament & I understand asking for advice on here isn’t exactly medical professionals but hoping to hear other’s experiences to help give...

I’m in a bit of a predicament & I understand asking for advice on here isn’t exa...

Markie16

•2 hours ago

Be the first to reply

Is this bladder endo

Hi all. I'm wondering if anyone with bladder endo has experienced anything like this, I have not had bladder endo mentioned however DIE rectosigmoid/ovarian...

Hi all. I'm wondering if anyone with bladder endo has experienced anything like ...

Lornalost89

•17 hours ago

2 Replies

Flare up

*TRIGGER* Some may be offended by what I'm saying here, so apologies. Does anyone else have a large flare up with their ovaries after masturbation/coming?...

*TRIGGER* Some may be offended by what I'm saying here, so apologies. Does an...

CrochetWitch99

•17 hours ago

2 Replies

Want to take advantage of all our features? Just log in!

Having to decide best option for endo

I've just today been seen by gyne at the hospital I've had symptoms of endo for 17 year long story short in 2016 I had a cyst and ovary removed as we thought...

I've just today been seen by gyne at the hospital I've had symptoms of endo for ...

Pinkyprint

•18 hours ago

1 Reply

Endo detection after surgery

Hi. I was just wondering when/how people who had surgery realised they still had endo in their bodies? I just had a laproscopy on May 3 and recovering fairly...

Hi. I was just wondering when/how people who had surgery realised they still had...

sha_pow_

•19 hours ago

2 Replies

Bilateral salpingo oophorecromy

Hi all,I wonder has anyone experienced similar to me, I had the above July last year. Since then I have been on Livial for about 3 months and then in January...

Hi all,I wonder has anyone experienced similar to me, I had the above July last ...

dev1984

•20 hours ago

1 Reply

endo / adenomyosis diagnosis and fertility advice

Hi there, New to this forum and hoping for some advice. i am having secondary fertility issues following my first child (born 2019), and have now had x5...

Hi there, New to this forum and hoping for some advice. i am having secondary f...

Falafelrovers

•1 day ago

9 Replies

Anyone else get bad Mood swings?

Hi all, I've had endo for about a decade now, and for some reason in the last year my moods have got worse the week before and during my bleed. I know outside...

Hi all, I've had endo for about a decade now, and for some reason in the last ye...

melwise42

•1 day ago

2 Replies

Confused about supplements..any advice or experience welcome!

Hello all, I've been working my way through Dian Shepperson-Mill's book A Key to Healing Endometriosis through Nutrition and getting a bit confused with...

Hello all, I've been working my way through Dian Shepperson-Mill's book A Key t...

Whoosh451

•1 day ago

1 Reply

Advice Needed Please

Hi. I’m hoping for some advice. I have an appointment next week to discuss starting on Prostap or Zolodex. I’ve been told I’d have to start HRT alongside it...

Hi. I’m hoping for some advice. I have an appointment next week to discuss star...

Laulou87

•2 days ago

21 Replies

Surgery waiting times

Hello 👋 I was finally given the best news in March and was put on the waiting list to have suspected endometrioma removed and csection wound exploration. I...

Hello 👋 I was finally given the best news in March and was put on the waiting l...

ItsMeBe

•2 days ago

11 Replies

Fibroids and Norethisterone, bleeding and spotting

Hi all, I know you've each got enough to deal with, but I've been having a difficult few months and am after some advice. In February I was diagnosed with...

Hi all, I know you've each got enough to deal with, but I've been having a dif...

Laura2306

•2 days ago

10 Replies

Laparoscopy endo excision overnight stay?

Hi all. I’ve finally got a date for my excision surgery and have been told I’ll be staying in as an inpatient afterwards for a few nights. I’ve never had...

Hi all. I’ve finally got a date for my excision surgery and have been told I’ll...

anonymousunicorn

•2 days ago

6 Replies

post hysterectomy endo

I’m 44. Have had full hysterectomy with bilateral ovary removal. Have endometriosis and adenymosis. Still having endo pain symptoms. Have been told it’s not a...

I’m 44. Have had full hysterectomy with bilateral ovary removal. Have endometrio...

Sickofthisshit

•2 days ago

12 Replies

ovarian cyst & endometriosis?

November 2023 I returned to the gp with bleeding and bloating again and wasn't sure if it was hormonal changes. Was sent for a scan and received my results...

November 2023 I returned to the gp with bleeding and bloating again and wasn...

Mrsbear063

•2 days ago

2 Replies

2 weeks post hysterectomy

I was scheduled to have a robotic laparoscopic hysterectomy and some endometriomas and any other endometriosis removed. This was supposed to take no more than...

I was scheduled to have a robotic laparoscopic hysterectomy and some endometrio...

Esmeisthebest

•3 days ago

9 Replies

Right iliac fossa lump

Hello all. I’m just wondering if anyone has experienced a lump near their hip bone? I’m 6 weeks post laparoscopy but I’ve struggled with a couple of lumps...

Hello all. I’m just wondering if anyone has experienced a lump near their hip bo...

endotheline

•3 days ago

Be the first to reply

11 days post laparoscopy excision surgery

Hi, Looking for some reassurance from those of you who have had laparosopy excision surgery. I am 11 days post op and i am struggling mentally and a...

Hi, Looking for some reassurance from those of you who have had laparosopy ex...

Starburst11

•3 days ago

15 Replies

2 months on the pill, Are my symptoms normal?

Hi, My gynae recently put me on Rigevidon for 3 months to see what happens to my endo symptoms. Apparently the symptoms I have are puzzling as they don't fit...

Hi, My gynae recently put me on Rigevidon for 3 months to see what happens to my...

TomatoGirl97

•3 days ago

1 Reply

No period after endo excision

Hi, I had a cystectomy in 2018 to remove a large cyst from right ovary. Surgeon advised no endometriosis as this was a concern due to family history. Fast...

Hi, I had a cystectomy in 2018 to remove a large cyst from right ovary. Surgeo...

Bekiibee

•3 days ago

Be the first to reply

Botched and Broken

Last August I had the vast majority of my reproductive system removed. I'd been receiving treatment for endo for 18 years, surgery gave me hope of finally...

Last August I had the vast majority of my reproductive system removed. I'd been ...

BluStarFern

•3 days ago

2 Replies

endometriosis and insurance

hi Ladies, Has anyone managed to cover Endo through private insurance or at least get her hormones tested ? Please share

hi Ladies, Has anyone managed to cover Endo through private insurance or at l...

Maggieeeeeeeeeeeeee

•3 days ago

6 Replies

post laparoscopy dissolvable stitches

i had my lap 3 weeks ago and they used dissolvable stitches but they don’t seem to be dissolving 😅 i just wanted to ask people’s experience with these because...

i had my lap 3 weeks ago and they used dissolvable stitches but they don’t seem ...

fl0w3rbloom

•3 days ago

8 Replies

What were your symptoms 🤗

Hi What were your symptoms of endometriosis and how were you diagnosed? Thank you 🤗

Hi What were your symptoms of endometriosis and how were you diagnosed? Thank ...

Beeekind22

•4 days ago

12 Replies

Do we have to have a laproscopy?

Hi all, I've been referred for an emergency laproscopy for my pain. I suspect endometriosis. But the bigger Q is: do I need the surgery? I guess yes if it...

Hi all, I've been referred for an emergency laproscopy for my pain. I suspect en...

Peacefulwarrior89

•4 days ago

3 Replies

Laparoscopy tomorrow!

Hi everyone, hope you’re all doing well! I finally have my laparoscopy tomorrow after it being cancelled two months ago. Does anyone have any last minute...

Hi everyone, hope you’re all doing well! I finally have my laparoscopy tomorr...

Josephine-Lavender13

•4 days ago

16 Replies

Bloating after sex?

Hi everybody,I am looking for similar experiences as mine. Context: endo stage IV, one laparoscopy to remove adesions on ligaments and ovaries. Problem: most...

Hi everybody,I am looking for similar experiences as mine. Context: endo stage I...

EndoCoeliac_Woman

•4 days ago

2 Replies

Pain outside period back again, 4th month on BC

It’s the 4th month I’ve been on the birth control patch, I’ve been doing the 3 weeks on, one week off like my gp told me I had to do. The third month it...

It’s the 4th month I’ve been on the birth control patch, I’ve been doing the 3 w...

pinkie25

•4 days ago

Be the first to reply

Mri scan for endo and pain

Hi girls can someone please advice me? i had an Mri scan yesterday for endometriosis it took around 35 minutes to scan it all (this is the time i was inside...

Hi girls can someone please advice me? i had an Mri scan yesterday for endometr...

Katie313

•5 days ago

1 Reply

Pain and struggling with weight loss

I had my laparoscopy 2 months ago and have had 3 periods since and they have been so painful and causing constipation one minute and then diarrhoea the next!...

I had my laparoscopy 2 months ago and have had 3 periods since and they have bee...

Purplepet23

•5 days ago

Be the first to reply

Write a post or ask a question

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

dineogest & mirena coil

Is this bladder endo

Flare up

Having to decide best option for endo

Endo detection after surgery

Bilateral salpingo oophorecromy

endo / adenomyosis diagnosis and fertility advice

Anyone else get bad Mood swings?

Confused about supplements..any advice or experience welcome!

Advice Needed Please

Surgery waiting times

Fibroids and Norethisterone, bleeding and spotting

Laparoscopy endo excision overnight stay?

post hysterectomy endo

ovarian cyst & endometriosis?

2 weeks post hysterectomy

Right iliac fossa lump

11 days post laparoscopy excision surgery

2 months on the pill, Are my symptoms normal?

No period after endo excision

Botched and Broken

endometriosis and insurance

post laparoscopy dissolvable stitches

What were your symptoms 🤗

Do we have to have a laproscopy?

Laparoscopy tomorrow!

Bloating after sex?

Pain outside period back again, 4th month on BC

Mri scan for endo and pain

Pain and struggling with weight loss

Search posts

Pinned Posts

Latest poll

Have you ever experienced feelings of loneliness or isolation due to your endometriosis?

Topics

Archive