Progression Free Survival

[Research123]

Sorry if this is a stupid question. We are told CLL is incurable. Just saw something saying there was good progression Free Survival 3 years after venetoclax and obinutuzimab. So does this mean that basically the disease has been knocked out and can't be seen 3 years later? How many years do you need progression Free to survival to say you've been cured - if you have treatment at 20 and still no sign at 70, is that still progression Free Survival or a cure? Or is 10 years a cure?! 20?! If not then my aim is 100 years progression Free Survival which should take me to 153.......

[AussieNeil Administrator]

See my recent reference to an article exploring why doctors are reluctant to talk about cancer cures:

healthunlocked.com/cllsuppo...

[Research123 in reply to AussieNeil]

Thank you that was very interesting.

[Sushibruno in reply to AussieNeil]

Why do they hesitate to talk about a cure? I always wonder this. My doctor mention to me that she'll be out of a job. I thought to myself... "then get another job".🤭

[AussieNeil Administrator in reply to Sushibruno]

It's bad enough receiving our first diagnosis, so you can understand doctors not wanting to tell us our CLL had returned after saying we were cured!

I'm sure your doctor was joking!

[bennevisplace in reply to Sushibruno]

🤣

[Sushibruno in reply to bennevisplace]

😅