After an appointment with a dietician I was tested for suspected EPI and my level was very low - 53. I have been prescribed Creon 25000 and taking those for about 4 weeks.I have had M.E/CFS and fibromyalgia for over 25 years and two years ago was diagnosed with prostate cancer. I had radiotherapy and was prescribed hormone therapy tablets. My PSA levels have fallen and my progress seems ok.
Re. EPI - my haemoglobin and red blood cell count has slowly, slowly dropped over past few years until slightly below lowest ref level but GP said not low enough for concern. I have had digestion issues (IBS) for over 20 years and over last few years very bad constipation - so not those associated with EPI. My weight has not fallen and I don't really seem to have any of the symptoms of EPI - though the faeceal elastene test proves I do have EPI. I may be constipated as side effects of hormone therapy but doubtful. I don't have pain in my back or feel nauseous.
Apologies for long post but just wondering if anyone else been diagnosed with EPI without any of the classic symptoms? Incidentally, since taking Creon, I do seem to have slightly more energy but no improvement to digestion/bowels.
Thanks for any support or advice