1st dose

[Neworleanslady]

Just took my 1st ampyra pill

[mrsmike]

Good luck. Hope it works.

[greaterexp]

Let us know how it works for you.

[jimeka]

Hope it goes well 🤗

[Neworleanslady]

Thank y’all I’ll let you know! Nothing yet—

[IFwczs in reply to Neworleanslady]

Give it 30 days.

[bxrmom]

Great news! Hope it works for you. Keep us updated when you can on how it works for you.

Jessie

[rjoneslaw]

congrads

the key you have to practice your walking not just take the pill

[ahrogers]

I think I have read others say it takes a couple of weeks at least before you see a difference and sometimes a couple months. I agree with rjoneslaw that you also need to practice walking.

My neuro hinted to me that it might help me but when they test how fast I walk I don't qualify and that I have to take more than 8 seconds on the timed walk. So next visit I just might slow down and count to 8 before crossing the line so I qualify to give it a try. She said it helps with more than just walking speed.

[Goldilockssearching in reply to ahrogers]

That was my assumption re: walking speed needing to be a certain # but neuro (MS specialist) said speed has never been my issue -there is more to walking than that-speed is just one factor. Guess my ataxia and inability to walk a straight line was enough to make a case for it 🤷‍♀️She said she believed I was exerting too much energy just to walk & it definitely was contributing to my fatigue.

You may want to revisit w dr to discuss what they describe as your 🚶‍♀️difficulty.

Ampyra has helped with my ataxia & endurance. Still can’t do the heel-toe test very well though.

Good luck!

[sashaming1 in reply to Goldilockssearching]

FYI only: I have a "Proprioception" issue where I don't know the exact position of my feet without looking. I especially noticed this in Physical Therapy when I had to walk toe-to-heel on a 2x4 (laid flat on the ground) - without looking at my feet. "Proprioception encompasses three aspects, known as the ‘ABCs of proprioception’. These are: agility, balance and coordination." FYI.

[Goldilockssearching in reply to sashaming1]

Yes, I do too-even with looking 😂

I also get numbness in my R foot which isn’t so helpful.

[sashaming1]

Hope it works for you.

[purpletustin]

I've been taking Ampyra over 3 years (I think that long). My walking speed and strength showed a fast, improved response shortly after Ampyra. It's continued to show additional improvements. My initial walking speed was barely acceptable. Last time I was checked, speed was incredible.

Don't know how others do, but I've thrived. BTW, I'm 75 and moving (semi) fast.

[Zoolida]

I’ve been using Ampyra for almost 10 years. I often think it is not helping me one bit but a few times I missed taking it on time or even missed taking it at all I see what a huge difference it makes in helping. Please have your doctor fight for you if your insurance will only pay for the generic brand. When my insurance switched they would only pay for the generic and I fell, I broke a few bones, I ended up in the ER and on IV steroids. I was getting worse with the generic every day. My neurologist went to bat for me and I now am getting Ampyra. I sure hope it makes a big difference in your life.

[Goldilockssearching]

I’ve been taking ampyra for I think 8 months now. Took 5-6 weeks to notice anything & 7-8 for notable difference. Had to switch to generic after first 2 trial bottles bc of insurance and after a few weeks I was losing my gains. Gave it 2 months to allow it a fair chance with continued decline. At my insistence dr’s office, pharmacy & I put in WEEKS of ☎️ w insurance & Acorda to secure name brand again. Took around 4-5 weeks of resuming the name brand to feel like I returned to prior degree of benefit.

Definitely helps but as others said, still need to strengthen & move. I find lack of sleep, being hungry & stress still affect my mobility but this helps to lessen the degree.

Be patient. I’d give it a full 2 months before concluding it doesn’t work for you. I hope it does 😀

[Neworleanslady]

My doc said that although my walking speed had decreased a little (not 8 seconds though) that my neuro look was worse when walking. My specialty pharmacy told me that when i finish this 60 days’ worth of free name brand trial of ampyra that my insurance will cover the generic. I have heard several of you say the generic doesn’t work for you as well as name brand. Is anyone experiencing positive outcomes from the generic?