Hi all, I’m suppose to be starting belimumab infusions next week, however there is a shortage in the medication so I’m just waiting for a new date
I’m on all the usual medication for lupus but nothing seems to be working, I have had rituximab last year and the first lot lasted 5 months which was great but the second 6 month treatment only lasted for 6 weeks max and my marks all went back up so now we are trying Belimumab, I was wondering what other people’s experience on Belimumab was like, my side affects from Rituximab wasn’t too bad and bearable
Thank you for reading I look forward to learning about your experiences with this treatment ❤️🦋
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MaryannM
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Hello!I'm waiting to see which, if any extra, treatment I can start in June (Benylsta injections Rituximab infusions) as my medrol isn't working well anymore. So I'm following your post.
I hope you can get your treatment soon and good luck x
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