Does anyone have muscle and bone pai... - SHARE Metastatic ...

SHARE Metastatic Breast Cancer

6,607 members8,142 posts

Does anyone have muscle and bone pain with falodex and has it helped with cancer markers??

Mcangel11 profile image
4 Replies

I have been on exemethzine for 4 years and now my CA 15 is rising and was switched to falodex. I have terrible muscle weakness and bone pain. Has anyone experienced this and did Ca15 go lowerThank you

Rox

Written by
Mcangel11 profile image
Mcangel11
To view profiles and participate in discussions please or .
4 Replies
Elle713 profile image
Elle713

yes I had muscle and bone pain when I started Faslodex and it is common for tumor markers to rise when starting new treatment. It should resolve after a few months.

TNVol profile image
TNVol

Hi, Rox,

I've been on Verzenio and Faslodex/Fulvestrant for several years now (bone mets only) after a couple years with Ibrance/exemestane. My CA15-3 has remained in the normal range but the tiredness and joint pain has increased. I asked my onc if these meds had a cumulative effect as these symptoms seem to worsen over time. She said "unfortunately, yes" but this combo seems to be working to I guess that is just the price I'll pay. Hope Faslodex works well for you and for a long time.

Manon

Beryl71 profile image
Beryl71

I was on letrozole and had the same issue, much improved on fulvestrant! Good luck ! X

monkeygirl62 profile image
monkeygirl62

I am on letrozole and same issues with the muscle and joints hurting and some days so very stiff. Staying active helps and what I mean by that doing things for me around the house and keep moving. Sitting still makes it worse, so walking things like that cleaning house. Simple things help alleviate the aches and pains.

You may also like...

ibrance and possible muscle pain? Anyone?

week-some right shoulder pain with certain movements. Has anyone had this happen? Do you think...

Anyone have a increase in CA markers after Covid-Vaccine?

Anyone have a increase in CA markers after Covid-Vaccine? I appreciate anyone that can share if...

I’m 53 with stage 4 breast cancer that has metastasized to my bones

breast cancer that has spread to my bones. I am a couple months away from my 5 year mark. My...

Has Anyone Had Bone Cement Done on MBC Caused Non-Displaced Fractured Pelvic Bones?

pelvic bone caused by MBC. It is painful to walk & be active & I’ve read it can strengthen the...

Need help with cancer pain

what kind of pain meds that you all use to manage cancer pain? Are there non-oral pain meds for...