immunotherapy for OVCA: just wanted to provide... - My Ovacome

My Ovacome

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immunotherapy for OVCA

Leniko profile image
8 Replies

just wanted to provide an update on using immunotherapy, in my case Opdivo and Yervoy.

Some background: 6 years after my initial diagnosis of OVCA, it was discovered via a raised CA125 and subsequent CT Scan, that I had developed 3 tumors on my Psoas muscle of my back. These were classified as ovarian cancer that had migrated. I had various chemo’s , radiation, and Avastin as treatment. Note: Avastin helped me stay on maintenance for a long time.

Recently, my one tumor had grown, while the others stayed the same size. I just had a follow up CT scan to see how the immunotherapy was working. I was overjoyed to hear that my tumor has reduced in size ! Just wanted to provide this update. It may be something you want to discuss with your own oncologist as a treatment option. Wishing us all good luck on this “journey.”

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Leniko profile image
Leniko
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8 Replies
Pixiepurple profile image
Pixiepurple

Hi Leniko,

That is fantastic news. I so love these stories. Thank you for sharing. Taking note of the drugs you mentioned x

Emcee71 profile image
Emcee71

Wonderful news Leniko I'm so pleased for you. Thank you for sharing this info too x

wendydee profile image
wendydee

That’s great news. Long may it continue xx

Laz66 profile image
Laz66

Thats very good to hear xx

delia2 profile image
delia2

Hi Leniko. How are the side effects? Did you have any special mutations that enabled you to get immunotherapy? I hope it gets rid of everything!

Leniko profile image
Leniko in reply to delia2

Thank you Delia . I think one reason I was put on the immunotherapy is I couldn’t tolerate anymore Carbo, and Gemzar wasn’t working. I had been on Avastin for years for maintenance. But after awhile, it wasn’t doing the job anymore. Re side effects from Immuno: I know that these drugs list all kinds of potential side effects, but fortunately I didn’t have many. Mine were limited to itching, Skin rash, and fatigue. I hope this helps.

delia2 profile image
delia2 in reply to Leniko

Thanks for answering!

Swimbuddy profile image
Swimbuddy

That is wonderful news. I love hearing about successes otherwise it all seems so depressing. Thank you so much for sharing and all the best for the future xx

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