Recurrence

[Leniko]

I know with over OVCA (or any cancer), everyone hopes for “one and done”, but life sometimes doesn’t work out that way. I have had a number of reoccurrences but want to share that so far I’ve been knocking them back with various treatments, whether it be chemo, radiation, targeted therapy, immunotherapy. I don’t think I’ll ever be free of this disease, but I continue the ongoing fight and so far I have been able to knock it back since 2008. I know a recurrence is the last thing anyone wants to hear, but I wanted to let you know that if it does happen, it’s not the end of the world. I hope this resonates with some of you. Keep Fighting! Sending Love and Prayers to All.

[0462County]

Thank you for your post, it gives me hope. Love and hugs. Beth xx

[Leniko in reply to 0462County]

And love and hugs to you’

[Goodgirl98]

I cannot tell you how much I needed to hear this today. You are God sent, I tell ya ❤️

[Leniko in reply to Goodgirl98]

I’m so glad. Keep fighting!

[Sunsetime]

thank you for sharing your story, gives me hope, you have been through so much . I love to hear about how treatments for recurrence are there for us too. Take care X

[Leniko in reply to Sunsetime]

definitely. No one wants to have cancer, but at least we live in a time where many treatments are available.

[Sunsetime]

totally agree. I lost both my parents to cancer within 6 months of diagnosis many years ago.

I really panicked when I was diagnosed, and when I realised that there are treatments for advanced ovarian cancer I found it easier to come to terms with, albeit a challenge , I have learnt to live with cancer, and I will hopefully be around for a long time due to more treatment options which are individualistic. In my parents time it was more or less the same treatment for everyone. Very different now. I’m looking forward and living the best life I can . Thank you again for sharing your experience. Xx

[Leniko in reply to Sunsetime]

I’m glad it spoke to you. Hang in there!

[Molste]

Hi Leniko good to hear,my wife has mucinous stage 3,l noticed you have clear cell are they similar because I keep hearing they're hard to treat which worries me thanks

[Leniko in reply to Molste]

They are both fairly rare forms of OVCA and tend to be platinum-resistant. Thankfully, there are many treatment options. Wishing her, and you, the best. 🙏❤️

[Molste in reply to Leniko]

Ok thanks chemo seemed to work for you though?she is on standard chemo with avistan 3 rounds then surgery if it works , I suppose each individual reacts differently

[Molste in reply to Leniko]

So glad you've managed to beat this and for many more years

[georgiageorgia182]

thank you Leniko! This is exactly what I’ve needed to hear today so really appreciate you taking the time 💕

[Leniko in reply to georgiageorgia182]

I Felt compelled to write it. Perhaps I sensed that there were women out there that needed to hear it……..❤️

[Pianoplayer731021]

Hi Leniko, you have been through so much and I love your story about all of your treatments. Sending a hug and a prayer that you can keep fighting on and you are so blessed. 🙏🥰 xx

[BrandyHorse]

@thank you Leniko. As a mum with a daughter who has this awful disease it gives me hope. She is currently NCD thank goodness but I am scared even though I do have to hide my feelings for her sake and keep positive. Take care. Stay strong xxxxxx

[Leniko in reply to BrandyHorse]

I often think that the caregivers have an even more difficult job than the one with cancer.

[NanB12]

Dear Leniko

I really need hope today. I have had no breaks whatsoever during treatment. 😞 Extensive surgery, chemo, then recurrence during chemo. Declared platinum resistant, now on immunotherapy. Was doing fairly well but today a nodule grew so big since the last scan that they cancelled immunotherapy and now they are talking about the Red Devil chemo.

Please share more about your journey, it can give us all some hope and strength to keep going.

Best wishes.

[Lizchips]

I'm sorry you're going into battle again. Well said, but I will pray for you and send love that you will again conquer this this disease. Blessed are the warriors! 💜 Liz

[StilCrazy]

Dear Leniko, do you believe in destroying any vestige of cancer seen on CT or do you advocate leaving it to grow for a while before exposing your immune system to the standard of care therapies that then damage your health in a different way? I have adopted the latter approach with fear and trembling. A year in, the cancer is unchanged in areas, shrinking in others and I have had a good year. I do get scared by my own "recklessness", not supported by my oncologists, but I just don't read good results from people who do the other approach.

[Leniko in reply to StilCrazy]

I think it has to be a personal decision. When the tumors in my Psoas muscle grow, my CA125 goes up. At that point, I opt to go back into treatment.

[jules144]

Thank you so much for sharing, it's given me more hope which I needed today.

[Leniko in reply to jules144]

I’m so happy it gave you some peace.

[FlowerRose]

I am always, always thinking of recurrences. What a lovely post to read. It really gave me a little peace! Thank you for sharing these thoughts.

[Leniko in reply to FlowerRose]

I’m very happy to hear this.