reaction to Spikevax XBB 1.5Moderna

[Larks0ng]

Just want to share that I had the above covid booster on Thursday (2nd May) and it appears to have triggered a lupus flare (in my case, rash, aching joints, splitting headache, extreme fatigue). I normally take prednisolone when I have a flare but feel it would be counter productive to what the vaccination is trying to do, so just taking paracetamol and riding it out.

This is the second time this has happened to me. The first was 2 years ago following Moderna. At that time I wondered if it was because I had it at the very same time as the flu jab, despite voicing my misgivings at my GP surgery. It may well have been, but as I say, it has happened again! But better than getting covid (which I have avoided 👍🙏 so far).

Previous vaccinations have been AstraZenica and Pfizer, neither of which prompted adverse reactions. I have reported it under the Yellow Card system just for info.

Hope everyone else has relatively trouble free experiences. Have a lovely Bank Holiday weekend (whatever the weather).

[cobsie]

hi, it was my first time having the Moderna jab (previously only had Pfizer) and I too had a flare up - ached all over, migraine, joint stiffness, fatigue, rash. Not fully recovered yet although the worst lasted 4 days. Paracetamol was my go to, walked around the house with sunglasses on and tried to rest to ride it out; hard work when you live on your own. Hope you improve soon. Take care x

[Larks0ng in reply to cobsie]

Hi cobsie, thanks for your reply. Feeling much better now, also after 4 days of doing nothing....with only the cat for sympathy - which wasn't a lot! Hope you make a good recovery soon. Best wishes x

[Paprika60]

Hope you get over the nasty side effects soon. I was very ill over three months from the first and second Pfizer shots (given three weeks apart in Feb 2020). I wasn't going to ever take it again because it felt as though I caught covid...but my new doctor told me to take two paracetamols as a pre-med at least half an hour BEFORE the shot. I followed his advice and it really worked. I had very little symptoms when I went for the third shot eight months later. I told my husband to do the same. I do not understand why this information is not given to the general public.

[MrsMarigold in reply to Paprika60]

That’s really good information Paprika. I would never have thought to do that. Not sure if Covid vaccine is still a controversial topic; here in US a very low percentage as I’ve read are still getting the vaccine. I opted out after the second shot. Never a booster. I’m still not comfortable with the science of it. I’ve had Covid 3 times. The first 2 lasted a few weeks. I’m just now feeling normal after long Covid. (2 1/2 months). I’m counting on my so called immune system to be boosted on its own for protection. From personal experiences and family and friends I’ve learned that 1. You can get Covid anywhere. 2. You can get Covid and long Covid if you are vaccinated. 3. Long Covid is more common than people think. I have 2 grandchildren with long covid. One is 4 the other 5. And a great niece just recovering after a year. It is heartbreaking to see children not able to be children. I’m beginning to think of Covid like polio was before the vaccine that worked.

I never had a reaction to the Covid vaccine. But shingles dose (first) put me to bed for a week. My GP told me not to get the second one. Best, MM

[Paprika60 in reply to MrsMarigold]

Hi Mrs. Marigold, I have not caught a covid so far...touch wood. Everybody around me including my husband who was very careful for my sake caught it at some point. I still wear a top grade mask if I go to a densely populated area or get an airplane. I stopped my vaccine too as I seem to be ok. The vaccine is still being offered in UK by NHS but only to people like us or over a certain age. And I believe people are still catching it too. I am very sorry about your young grandchildren! How sad!! I have noticed a lot of more male and young people in my Lupus Clinic ever since Covid. For years it was mostly female and most of them middle aged. I was one of the young ones. Covid virus has changed all that.

Take care!🤗

[Suvi8901]

Vaccines don’t stop you getting covid! A grave misconception!👆

Strict shielding from infected people is important for all with lupus plus other important preventative behaviors eg avoiding crowded, unventilated, enclosed spaces as others have said!

Vaccines are meant to prevent serious covid disease and death from happening IF you do get infected?!

[StriatedCaracara]

This is a post I wrote after getting pericarditis for the first time after a Pfizer jab end of last June. Previous Pfizer had been fine

healthunlocked.com/lupusuk/...

I was not vaccinated later in the Autumn as pharmacist said response to similar vaccine, a second time, could be worse.

I'm still thinking of taking a Moderna jab.

However, because of bad experience I'm weighing up the value of the Spring vaccine, when incidences less, against Autumn one, when incidences are generally but not necessarily a magnitude higher.

It is a very personal choice. For many also based on how compromised our immune system is at the time.

I am only on antimalerials now but, but twice previous to last year's vaccine was on steroids. I therefore had the vaccine.

Both Covid infection in March 2020, and two of my five vaccinations I feel have impacted on my UCTD disease progression.

I just over react..

but I needed to get vaccinated as it helped me shield others more vulnerable too.

My AZ resulted in SOB and headaches bending over. I took aspirin as was so scared. Also I became photosensitive soon after.

Maybe, the balance of pros ans cons for some is is continually changing. For others, less so, so the decision is easier to make.

I'm really pleased that people are sharing their experiences here. Thanks for posting.👍 🙂

[LalaH52]

I had the Moderna booster 2 weeks ago. No after effects other than a very sore arm around the injection site for around a week.

I’ve had umpteen vaccines and boosters. I was on the Novavax trial during the early stages of the pandemic. All of the boosters have been Pfizer until the last one. Side effects have been ranged from none at all to localised pain around the injection site.

I got Covid for the first time in September last year after a cruise. I was prescribed antivirals which suppressed the symptoms for the duration of the course, and then it returned and some! Had antibiotics as it resulted in a chest infection. I also tested positive for 18 days including during the antiviral period! But I did survive, did not end up in hospital and went on to have both the autumn and more recent spring boosters. I will keep doing so for as long as it is offered and I remain eligible for it.

Covid vaccinations do not prevent Covid. It does however prevent/ reduce risk serious illness and hospitalisation.

I do not pay any attention to the anti-vax/ anti-science general claptrap out there. I have no doubt I would have been more seriously ill without having been vaccinated. Please do not be deterred from getting your booster.

For clarification purposes re medications, I was on hydroxychloroquine for 2.5 years until November last year. Since then I have been, and still am on prednisolone and MMF.