Osimertinib 80mg : Hi, I'm new on the... - The Roy Castle Lu...

The Roy Castle Lung Cancer Foundation

5,790 members3,469 posts

Osimertinib 80mg

Pink0range profile image
1 Reply

Hi, I'm new on the forum and I have recently been diagnosed with lung cancer, NSLC, stage 4.

I was given the above treatment for my cancer.

I started my treatment in March and I have had a couple of setbacks ie skin rash then mouth ulcers and mouth thrush. I would like hear from other people who have had the same treatment who would like to share their symptoms and experience with me, please.

I look forward to hearing from you.

Thank you.

Written by
Pink0range profile image
Pink0range
To view profiles and participate in discussions please or .
Read more about...
1 Reply
RoyCastleHelpline profile image
RoyCastleHelplinePartnerAsk the NurseRoy Castle

Dear PinkOrange

Welcome to the forum and sorry to hear you have lung cancer. I hope your side effects from the treatment are more manageable now and that you hear from others in the forum on their experience.

Everyone, as you know, reacts and responds differently to treatment, and most side effects are managed well. Treatment can be paused sometimes to allow the body to rest and recover.

It can feel quite isolating having cancer and we have online support groups through zoom, you can view and register for these through this link: roycastle.org/help-and-supp... you can also email our support coordinator ellen.knapp@roycastle.org

We have an information booklet on targeted therapies which you may find useful: roycastle.org/app/uploads/2...

If you would like to discuss anything you can contact our ask the nurse helpline on 0800 358 7200 Monday to Thursday 0900-1700 and Friday 0900-1600, alternatively you can email us at lungcancerhelp@roycastle.org

Kind regards

The Roy Castle Support Team

You may also like...

Anyone there on OSIMERTINIB tablets?

diagnosed with stage 4 NSCLC in May 2022 with Mets to diaphram and pleural both lungs. Checking...

immunotherapy damaging kidneys

hi My mother has been having successful treatment for stage 3 lung cancer, but the immunotherapy has

squamous cell lung cancer

squamous cell like me I would like to hear your experience with this and if any of you have had...

chemotherapy post surgery

cases of stage 2 cancer post surgery. I am waiting to hear back from my trial oncologist (he would...

HI IM THE NEW GIRL ON THE BLOCK !

believe that i have been diagnosed with a terminal cancer. I would love to hear from anyone who...