Finally a diagnosis : Mum has lung... - The Roy Castle Lu...

The Roy Castle Lung Cancer Foundation

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Finally a diagnosis

Loki19 profile image
5 Replies

Mum has lung cancer absolutely devastated but keeping positive. It’s stage IV as it’s spread to her spine so unable to be cured. Initially told mum would need chemo, then radiotherapy on her spine but had an oncology appointment straight afterwards and they decided as the cancer was EGFR+ they are treating with tablets and mum has to go in for tests every 2 weeks initially to see how effective they are. Back in tomorrow for a blood test and if ok will pick the tablets up and begin them straightaway.

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Loki19
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5 Replies
Manninmaid profile image
Manninmaid

Really sorry to hear your Mum’s diagnosis. It is similar to mine. I was diagnosed in February 2016. It is however good news that your Mum is a candidate for targeted therapy. I hoped I would be but wasn’t. Most people seem to cope better on targeted therapy than chemo so hopefully any side effects won’t be too bad. Sending best wishes and positivity to your Mum on her cancer journey and to you supporting her. 🌼🌸

Loki19 profile image
Loki19 in reply to Manninmaid

Thank you so much for your reply. It’s so comforting to hear from people like you. I’m sorry you weren’t a candidate for targeted therapy but you are doing well regardless and hopefully will continue to do so. Hoping and praying mum does well on the therapy. Wishing you massive luck xx

Manninmaid profile image
Manninmaid in reply to Loki19

Thank you so much. xx

JanetteR57 profile image
JanetteR57

It's an awful time waiting for results but now you/they know, a treatment plan can and is being set up. This is really necessary for lung cancer whose treatment has really developed in the last 4-5 years with many people living years with 'treatable not curable' disease. As others have said, it's fortunate she has 'targets' to target with precision medicine so good luck for you/her with the treatment. More information available about what might be expected on Roy Castle lung cancer website under 'how we help', 'information', lung cancer treatments'. It won't be easy but wishing her all the luck as she starts this next phase of her life. good luck to you too as you support her. x

RoyCastleHelpline profile image
RoyCastleHelplinePartnerAsk the NurseRoy Castle

Hello Loki19,

I am very sorry to hear of your mums diagnosis, we have an in booklet on targeted therapies which has information on what to expect, I have added a link below or if you prefer we can post a copy out.

roycastle.org/system/file_u...

If you wish to discuss anything you can call us on our nurse led helpline number Freephone 0800 358 7200

Kind regards

The Roy Castle Support Team

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