Covid vaccine advice

[Stargazer1971]

Seeking advice please. Has anyone who has had the Covid vaccine in the UK had any problems with it affecting their lymphoedema? I am very conflicted about having the vaccine as although I don't want Covid, I don't want any long term issues, such as extra swelling, which I have heard can happen. I have primary lymphoedema with mostly lower limb swelling, however my face, hands and arms do swell also on a bad day. I am concerned that several of my work colleagues have had their lymph nodes swell up under the armpit after having the jab, albeit temporary. It really is a difficult decision as I don't want to make my condition any worse, yet I need to be sensible regarding Covid.

[LymphSuppNetwork Partner LSN]

Have you seen the advice on our website Stargazer?

[AnneBury]

I have had my first jab and am having my second tomorrow. I have primary lymphoedema. I didn't have any side effects. There is information on the website of the Lymphoedema Support Network.

[TeresaMay]

I had no problem whatsoever.

[Abbie104]

I had my first jag (Astra Zeneca) a few weeks ago and though I had cold/flu symptoms about 15hrs later n lasted for about 36hrs, my lymph nodes were not affected. I have secondary lymphodema in my right breast, arm n upper back from operation. The advice from my LT is that it should not affect the lymph nodes, though as with anything, some will have a stronger reaction than others

[Andy13]

I have primary lymphoedema mainly in my left leg but also right leg and right arm. I had my first jab 4 weeks ago in my left arm, I am left handed but chose to avoid the arm that has slight lymphoedema . I didn't feel a thing and had no side effects at all.

[Thomas45]

I had AZO vaccine yen weeks ago I had a niggling headache for three days, taking a total of 7 paracetomols during those three days

I have lymphoedema in my lower legs, permanent atrial fibrillation and chronic asthma. No effect on any of those conditions

Looking forward to having the 2nd jab in early May.

[sharon1234]

I've had one of my Vaccines and nothing has affected me

[violetta15]

I have Lymphedema in my right leg and have had the Pfizer no problems.

[CumbriaKC]

Yes I had my second dose of the Astra Zeneca vaccine on Friday and by Saturday morning had developed instantly recognisable symptoms of cellulitis in my ‘good’ leg, but not in my lymphoedema leg. I also felt really ill, with nausea and fatigue) I started a course of Amoxycillin immediately (my GP prescribes this to use as an emergency supply) My last bout of cellulitis was over a year ago, just before the first Covid lockdown, so I suspect this episode was triggered by the vaccine.

[red1309]

Yes! After the 2nd vaccine, I have had major issues with my legs - my feet swelling so bad they bruised!

[SamLymphie in reply to red1309]

Which vaccine did you get please?Not vaccinated and really worried about making my leg any worse, already have fibrosis all over my thigh and cannot deal with another set of issues or long term problems