Tinnitus!!!!!

[louisele50]

Does anyone else suffer with this? I'm 4 months post concussion 😢

[Tia-01]

My husband had Brain Injury 8 years ago, he only complained every now and then about noise in his head. Then just before Christmas he had another fall and hit his head. He now has tinnitus, affects him everyday and it is driving him mad. Waking him up early in the morning and never seems to leave him. He has been referred to ears nose and throat clinic now just waiting on appointment.

[louisele50 in reply to Tia-01]

I feel his pain it's driving me mad! My doctor hasn't referred me to see a ears, noise and throat clinic, I think I will ask him too as I've had this for 4 months now and it's not getting any better !

[Tia-01 in reply to louisele50]

Yes I would. I will post outcome when we see specialist if they suggest anything that may help.

[cat3]

I started with tinnitus 30 years ago and it's never abated or altered since.

I've seen various ENT & hearing specialists but no one has ever come up with a treatment or explanation of why it happens.

The consensus seems to be that masking the noise with an external sound is the only form of relief available. I use music through headphones when I'm feeling especially troubled by it, but I've had it for so long now that I'm more or less accustomed to it.

It's like the screaming of a jet engine just before take off.

If you get to see a specialist Louise, I'd be interested to hear what, if anything, they recommend. x

[louisele50 in reply to cat3]

Thanks Cat, if I receive any recommendations I will let you know..

Sometimes I don't notice it but other times it's just there all day. I wondered if it becomes louder if I'm stressed or tired.

[Elenor3]

Hi I have Tinnitis a year after TBI. It varies from day to day - sometimes a high pitched single note, often 'white noise', sometimes a repeated deep bass note a but like the engine of a boat / machinery type sound. Sometimes it's a hum - if the type of sound you might experience if you woke up with flu & it feels like you're head is going to explode. Sometimes for good measure I have two sounds at once (at least I have a choice if which sound to 'listen to'). Occasionally I hear loud 'claps' / cracks. These don't seem to be related to the Timnitus. My biggest problem is that my hearing is now like 'super hearing'. I was deaf following the accident but my hearing came back one day and I hear everything at full volume. There seems to be no way of filtering the sound - so I hear everything at once at the same volume. I now wear headphones /earplugs in public and use BBC radio iplayer (a lot) for distraction. Particularly in the night - so as not to wake hubby. I seem to wake with tinnitus an awful lot (almost every day), so radio and headphones by the bed is fabtastic. ENT seem to say it's 'consistent with my type of injury ' but don't have a cure sadly. I feel like I've got this for life. X

[tonywalker]

Hello,

Yes I get it, it's annoying all the time RING, RING, RING. I bought myself some bluetooth headphones and experimented with various fixed pitch sounds that I found would mask it. What makes it more annoying I had been going to the doctor's with complaints of confusion for 4 months and it wasn't till I c ollapsed at work I was rushed into hospital and diagnosed with encephalitis. Three months down the line and the confusion issue is diminishing slowly but the tinnitus remains. Sleep remains a problem though because the headphones impede sleeping. Take care.

Tony Walker

[angelite]

Hi Louise,

I've had this for 3 1/2 years, since suspected Encephalitis.It is a low hum, fluctuating in volume in left ear, like a lawnmower ! Sometimes my right ear joins in with a high pitch test card and I get a lovely duet : )) I also get whooshy bloodrush noises and slurpy heartbeat, plus the occasional juggernaut passing by when some inner ear muscle seems to spasm ? ! I never did get mine checked out - GP's uninterested ! My hearing definitely seems worse on the left. One thing I noticed is that sometimes, cleaning my ears out with a Qtip can suddenly boost the sound of it to a deafening level for a short while!

nhs.uk/Conditions/Tinnitus/... x

[sospan]

Yep, since my accident although mine goes up and down in severity. I find having the Epley manoeuvre helped greatly.

[sca2013]

You may want to check this website. He has plenty of information about hearing problems and solutions. chat-hyperacusis.net/

[steve55]

yeh i think mine started after my stroke referred to audiologist stuck a hearing aid in bingo...........unless of course in a moment of passion you have someone licking your ear that is !!! hahaha

[RecoveringH]

In my usual way, I have a vitamin for that!

Research has shown that people who have tinnitus are often deficient in B vitamins. Vitamin B12, B1 (Thiamin) and B3 (Niacin) are important vitamins for tinnitus and overall good health. They help increase blood circulation in the ears as well as stabilize the nervous system

Have a nice Day

p.s. my tinnitus has gone now - still on Vit Bs!

[louisele50 in reply to RecoveringH]

Was your tinnitus brought on by a head injury? And how long after taking vitamin B did it start to improve ?

[RecoveringH in reply to louisele50]

Had a TIA /stroke, lost use of right arm, swallow muscles, speech, right leg sensation for about 3 weeks in 2007, bruising to right hand lasted months but slowly the right arm came back so I could wipe my bum again! Lost some use of facial/swallow muscles which made life tricky. Two years later had viral meningitis which stopped my life completely, hid inside from the light and noise for 2-3 years while in acute stage, doctors offered lumbar puncture which I turned down. I sat it out with food/ vitamins/herbs and exercise.

Went through whole range of fibromyalgia, chronic fatigue for 3 years, inability to sleep, relax, loss of balance and extremely loud ringing tinnitus in right ear, sight, hearing, numbness, skin eruptions, stiff neck, killer headaches, night seizures, loss of sensation in right leg, panic attacks, depression, anaemia, proprioception, coordination, balance, vocabulary, memory, executive planning function, emotional lability, relearnt to walk after sensation in right leg returned.

Vit B's in huge doses of 3 per day I started in 2011 - went to cancer clinic - GP said I had inflammation - must be vit deficient. First impact of getting right vitamins was regrowing nerve sensations in my right lower arm and hand again - one of the most painful - outright yelling experiences - which occurred when I went vegan - simplified diet, Vit C helped to create regular number two's again, that is when my body started the painful healing process - until then inflammation in gut was preventing excretion of waste which was building up and causing constant aching through whole body. Once the arm settled down, my inner ear and balance started to normalise and tinnitus started getting quieter.

While arm nerves grew, over a period of 3 months, I ate soups and juices with vegetables and fruit, no bread, pasta, rice. Lost weight and impact of vitamins was enhanced. That's when the yelling started. I could literally feel my arm nerves regrow. I cant describe the pain. Unbelievable.

I now have full use of both arms and still have some numbness in right leg. Swallow / neck / facial muscles still healing but 95% back now. Getting better each day! Pleased to say returned to full time work early this year, energy levels excellent, focus excellent, memory is good enough - much has returned where before I had blanks.

Tinnitus stopped completely end of last year - one of the last things to heal, with taste/smell returning at the later stages. Today for instance, and my protocol for last 2 months, I had magnesium, vit B, Iodine, Vit C, fish oil, selenium. I am soon to change my protocol as its never good to stay feeding the body with the same things over long periods as the body stops producing its own resources. Vit B12 is not produced by body so topping up is essential - especially where nerve damage has occurred. Nerves govern muscle movement, muscles need magnesium - the two go together.

Best of luck and keep focusing on getting rid of tinnitus - it will happen when the body has enough of the right vitamins you personally need.

"Your body needs vitamin B-12, also known as cobalamin, to aid with energy metabolism, to support the health of the nervous system and to help produce red blood cells, DNA and RNA. It promotes your body's use of iron and activates enzymes that regulate the level of homocysteine that you have in your blood. High levels of the amino acid homocysteine may increase your risk of heart disease. If you don't consume enough vitamin B-12, you may experience fatigue, diarrhea and possible nerve damage. A long-term deficiency of vitamin B-12 may make you more likely to develop heart disease, pernicious anemia or age-related macular degeneration."

[steve55 in reply to louisele50]

louise check out natural sources of these vitamins please

[Jennaberri]

Hi. I am 2.5 years after TBI and I have tinnitus and hyperacussis. I noticed the tinnitus whilst I was in the neuro rehab ward and initially it was hoped it would ease. However after 6 months of constant hissing and being unable to cope with everyday noise I was referred to ENT for investigation. Eventually I was given maskers tof put in my ears and I bought a sound pillow. Initially they worked very well but over time they are becoming less effective. I am being released re- referred by my neuropsychologist as she feels something else needs to be done. I do find the tinnitus is worse when I am anxious or stressed.

[steve55]

sorry louise. but seriously get yourself referred it works

[Ro_76]

Yes mine started after my BI in July 2015, and I am stuck with it now. Mine is worse in the right ear....and now I am talking about it I can hear it louder. Most of the time now I forget it is there. Annoying though as I didn't have it before.

[louisele50 in reply to Ro_76]

Mine is the left ear! Suppose I will just have to get used to it, your right though I sometimes don't notice it until I'm listening out for it then it's loud lol 😱