Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

21,426 members • 15,092 posts

Impulse Control Disorder on Dopamine Agonists. TV Drama Mr Bates v The Post Office

I have been in touch with a producer of Mr Bates v The Post Office. This programme succeeded in forcing the British Government to pardon all those innocent...

I have been in touch with a producer of Mr Bates v The Post Office. This progra...

Joolsg

•11 days ago

78 Replies

Buprenorphine Trial

Some of you may be aware that I have been trying to get a trial of Buprenorphine for refractory RLS underway in the UK over the last 2 years.I initially...

Some of you may be aware that I have been trying to get a trial of Buprenorphine...

Joolsg

•13 days ago

83 Replies

Methadone for refractory RLS

https://academic.oup.com/sleep/article/47/Supplement_1/A516/7655037 An interesting case of a female patient whose RLS was controlled with methadone. Clearly...

https://academic.oup.com/sleep/article/47/Supplement_1/A516/7655037 An interesti...

Joolsg

•3 hours ago

8 Replies

SUPPLEMENTS FOR RLS?

I AM COMING OFF OF PREGABALIN, I AM ON 200MG PRESENTLY. I WANT TO START SUPPLEMENTS AND WANT TO MAKE SURE I AM DOING THE RIGHT THING. MAGNESIUM+B6 VITAMIN...

I AM COMING OFF OF PREGABALIN, I AM ON 200MG PRESENTLY. I WANT TO START SUPPLEM...

piggytails

•5 days ago

33 Replies

Stabilising buprenorphine dose

After months escaping from DA augmentation and with the help & support of many in this community I reached a period in late 2023 when I started on...

After months escaping from DA augmentation and with the help & support of many ...

davchar23

•25 days ago

68 Replies

absolutely disgusted.

I received a telephone call from my GP this morning regarding a request made by my specialist to prescribe Buprenorphine. My GP had to refer to the senior...

I received a telephone call from my GP this morning regarding a request made by ...

HipHop1972

•1 month ago

77 Replies

Iron Supplement

Hello, I recently started taking iron supplements as my level was 90 and it's advised should be over 100. I have now had black diarrhea for three weeks and the...

Hello, I recently started taking iron supplements as my level was 90 and it's ad...

Thebarber

•19 hours ago

12 Replies

Trazodone

Hi , after trying very hard to navigate depression without drugs I have now just started Trazodone . Taking Gabapentin successfully, only mild RL . Had every...

Hi , after trying very hard to navigate depression without drugs I have now just...

Rubynessie

•6 days ago

32 Replies

Nausea & Buprenorphine

As some of you will have seen from my earlier posts I had succeeded in blocking RLS (after DA augmentation 7 months ago) by use of buprenorphine patches and...

As some of you will have seen from my earlier posts I had succeeded in blocking ...

davchar23

•29 days ago

69 Replies

learning to help others

Hi I am new and was recommended this forum by a client who is a RLS sufferer. I am trying to gain insights and understanding from those with lived experience...

Hi I am new and was recommended this forum by a client who is a RLS sufferer. I ...

Betrue2u

•2 days ago

17 Replies

Buprenorphine, Nausea & Zofran (Ondansetron)

I successfully take 0.4 mg day buprenorphine to treat RLS but the nausea side effect is very troublesome and there does not seem to be a satisfactory plan to...

I successfully take 0.4 mg day buprenorphine to treat RLS but the nausea side ef...

davchar23

•6 days ago

27 Replies

buprenorphine is not that harmless: sum

hi. maybe it is time to remind some sufferers. my last post was 7 months ago:...

snoemata

•8 days ago

27 Replies

Does anyone have this symptom ?

I have this main symptom in my left calf muscle, and the whole of my abs wall 24/7. Tiny muscle contractions that I can see and feel, feels like pin pricks,...

I have this main symptom in my left calf muscle, and the whole of my abs wall 24...

newlife54

•3 days ago

15 Replies

Burenorphine side effects

I am still struggling with nausea despite buprenorphine success on RLS front. In my daily diary today I wrote:- QUOTE I took a total of 400mcg buprenorphine...

I am still struggling with nausea despite buprenorphine success on RLS front. In...

davchar23

•3 days ago

17 Replies

Worse since Wife had hip replacement

Wife been on ropinirole for 20yrs small dose a day. Since hip replacement RLS has got far worse had to increase dose to 1mg per day which is still not really...

Wife been on ropinirole for 20yrs small dose a day. Since hip replacement RLS ha...

Leg7

•15 days ago

33 Replies

I’m Coco & today Joolsg suggested I post re upcoming NHS Iron Infusion

Hello RLS people I’ve been here for a while reading & learning, getting the impression this is a very well informed serious & supportive community. You’ve...

Hello RLS people I’ve been here for a while reading & learning, getting the i...

Barnclown

•26 days ago

43 Replies

Pregabalin Dementia link?

This is a new one to worry about! Any truth in it?

BoojaBooja

•4 days ago

16 Replies

Buprenorphine...help with prescription please!!

Since my neurologist retired and I found a new one, my pharmacy is not accepting his order for the buprenorphine because he's saying it's for RLS and the...

Since my neurologist retired and I found a new one, my pharmacy is not accepting...

LanaCSR

•25 days ago

41 Replies

Escape from Augmentation part 2

I have been excellently helped by several forum participants in my "escape from augmentation" and am now at a stage where I need to report my story and ask...

I have been excellently helped by several forum participants in my "escape from ...

davchar23

•1 month ago

47 Replies

update from Ruffabug (End of life plan)

A big thank you to those who kindly replied to my post of a couple weeks ago entitled HELP PLEASE TO REDUCE DOSE OF NEUPRO .To remind you I have terminal...

A big thank you to those who kindly replied to my post of a couple weeks ago ent...

Ruffabug

•6 days ago

20 Replies

Tapering Dowm

Hi Everyone Hope you are all doing well. I am attempting to taper down from Pregabalin. I have successfully come down from 150 to 120mg but I cannot seem...

Hi Everyone Hope you are all doing well. I am attempting to taper down from ...

careerSquirrel

•19 days ago

35 Replies

My Gabapentin Dilemma

Help! I need some advice regarding my Gabapentin treatments. This is my first post so I hope I don’t ramble too much. I’m over 70 years old with RLS for over...

Help! I need some advice regarding my Gabapentin treatments. This is my first p...

Sleepless82

•2 days ago

10 Replies

Free of Dopamine Agonist But ...

Today, with the help of Buprenorphine, I am about 6 weeks free of Neupro. It is no exaggeration to say that I have not slept consistently this well for 30...

Today, with the help of Buprenorphine, I am about 6 weeks free of Neupro. It is...

RiversW

•1 month ago

43 Replies

Restless Leg Syndrome and Mirapex

Hello, I have severe RLS. I have been taking Mirapex for about 3 years. It was a relief to find something that helped,! After trying natural remedies with...

Hello, I have severe RLS. I have been taking Mirapex for about 3 years. It wa...

GreenChilie

•8 days ago

22 Replies

Getting No Help and feeling desperate

I have severe restless legs and am going around in circles with my doctor and neurologist. Being waiting months for a CPAP machine but now my doctor wants me...

I have severe restless legs and am going around in circles with my doctor and ne...

Jezee

•23 days ago

35 Replies

Compulsive Eating

I have had RLS for about 20 years and been medicated with Ropinirole 0.50mg twice a day for around 17 years. In the last year I have noticed that some...

I have had RLS for about 20 years and been medicated with Ropinirole 0.50mg twic...

Gillyfran

•1 month ago

43 Replies

TOMAC treatment for RLS

https://academic.oup.com/sleep/article-abstract/47/Supplement_1/A301/7654621?redirectedFrom=fulltext This is an interesting article on TOMAC therapy....

https://academic.oup.com/sleep/article-abstract/47/Supplement_1/A301/7654621?red...

Joolsg

•1 day ago

8 Replies

Augmented, now a drug holiday

Diagnosed with RLS 14 years ago. Since then, was on Pramipexole and augmented. Then prescribed Ropinerole and augmented. Saw a new neurologist (which I...

Diagnosed with RLS 14 years ago. Since then, was on Pramipexole and augmented. ...

PianoRunner

•14 days ago

27 Replies

Buprenorphine patch and swimming

Dear Everyone, About 3 months ago, I started withdrawing from Neupro with the help of Buprenorphine. Buprenorphine is only available as a patch in Brasil...

Dear Everyone, About 3 months ago, I started withdrawing from Neupro with the ...

RiversW

•1 day ago

8 Replies

Gabapentin update

I am now taking 1800mg gabapentin, spread out between 5pm 7pm and 9pm, I do sometimes sleep quiet a lot but have trouble until 2am, I go to bed around 10:30ish...

I am now taking 1800mg gabapentin, spread out between 5pm 7pm and 9pm, I do some...

riverislow

•6 days ago

17 Replies

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