Directory of Communities

NRAS (Rheumatoid arthritis)

National Rheumatoid Arthritis Society - A better life for people with Rheumatoid Arthritis. This site offers new tools for the NRAS community provided by our partners at HealthUnlocked.

ThyroidUK (Hypothyroidism & hyperthyroidism)

ThyroidUK connects patients, friends and professionals for support and help... It's all about sharing knowledge and experiences.

Ovacome (Ovarian cancer)

We are here for people affected by ovarian cancer. Ovacome is a charity founded on personal experience. Our founder, Sarah Dickinson, herself an ovarian cancer sufferer, wanted other women to be able to access clear, reliable information, support and advice.

HEART UK (Cardiovascular disease)

HEART UK is passionate about preventing premature deaths caused by high cholesterol and cardiovascular disease. We provide information, advice and support to people suffering from, or at risk of, heart disease.

Raynaud's & Scleroderma Association (Raynaud's & scleroderma)

The Raynaud's & Scleroderma Association provides educational and emotional support for people with Raynaud's and scleroderma and their families. The association works to increase awareness of the two conditions and raises money for essential research.

Parkinson's Movement (Parkinson's)

Parkinson's Movement is a new group joining people with Parkinson's to be the authentic voice of Parkinson's. This is with the goal to drive the research agenda and find a cure for Parkinson's.

Pancreatic Cancer Action (Pancreatic cancer)

Pancreatic Cancer Action's mission is to drive up survival rates for pancreatic cancer by increasing awareness of pancreatic cancer in the UK. We direct much of our awareness raising and campaigning work towards healthcare partners and government.

Meningitis Trust (Meningitis)

The Meningitis Trust believes everyone affected by meningitis should have access to support for life and raises awareness of the disease so that lives are saved.

AMN EASIER (Adrenomyeloneuropathy)

AMN EASIER is a support group for patients with adrenomyeloneuropathy, the adult manifestation of the same neurological genetic mutation that in young boys causes the disease adrenoleukodystrophy (ALD).

Gluten Free Guerillas (Coeliac disease)

Gluten Free Guerrillas brings you the best news and advice on how to live a Gluten Free life to the full whether you are a newbie Coeliac or a guru. We believe that if you hate something, change it.

Tourettes Action (Tourette's syndrome)

Tourettes Action connects people, volunteers and professionals involved with Tourettes for support and help online. It's a network for sharing knowledge and experiences put together by our partners at HealthUnlocked.

Oesophageal Patients Association (Gullet and gastric cancer)

OPA is a patient-founded charity supporting those affected by gullet and gastric cancer including those facing or having gone through an oesophagectomy, gastrectomy or similar surgery for any reason.

PSP Association (Progressive supranuclear palsy and cortico basal degeneration)

The PSP Association supports those with progressive supranuclear palsy and cortico basal degeneration, and their families and carers. We work to ensure better services and more research into treatments and, ultimately, a cure. We influence by the strength of our membership.

Hughes Syndrome (Hughes Syndrome / sticky blood / antiphospholipid syndrome)

Hughes Syndrome Foundation works to support sufferers of Hughes Syndrome and advance research into this little understood autoimmune condition. This blood disease is also commonly known as antiphospholipid syndrome and also 'sticky blood'.

Infertility Network UK (Infertility)

Infertility Network UK is the UK's leading infertility support network, and offers information and support to anyone affected by fertility problems. It provides a voice for those with fertility problems and campaigns to improve awareness and access to treatment.

Pelvic Pain Support Network (Pelvic pain)

Pelvic Pain Support Network supports patients with pelvic pain and provides information about diagnosis and treatment. It also connects patients so that they can share their experiences in managing long-term pelvic pain.

LUPUS UK (Lupus)

LUPUS UK supports people with lupus and provides them with information and welfare support. It helps inform health professionals about lupus and raises awareness generally of this chronic and frequently misdiagnosed condition.

Roy Castle (Lung cancer)

The Roy Castle Lung Cancer Foundation funds research into prevention and early diagnosis of lung cancer, provides practical and emotional support for patients and their families, campaigns for better treatment and care and also helps people to quit smoking.

Endometriosis UK (Endometriosis)

Endometriosis UK provides information and support to those living with endometriosis. This painful condition affects more than 1 in 10 women. The membership organisation raises awareness through campaigns and research.

Tenovus (Cancer)

Tenovus offers support, advice and treatment for cancer patients, information on cancer prevention and funding for research to improve the outcomes for people with cancer. It helps to provide treatment to cancer patients closer to home, to improve equity of access to cancer services and to deliver unique support services to cancer patients and their families.

TB Alert (TB (tuberculosis))

TB Alert provides a network of people affected by TB in the UK including peer support by phone, face to face and online. It also provides consultation on the development of TB services and is a leading voice in information about TB and awareness raising.

PBC Foundation (Primary biliary cirrhosis (PBC))

The PBC Foundation provides information and emotional support to patients of primary biliary cirrhosis (PBC) and their families and friends. It provides a helpline, funds research into this rare, autoimmune condition and connects PBC sufferers.

ITP Support (Idiopathic thrombocytopenic purpura (ITP))

The ITP Support Association provides information and support and connects patients with immune thrombocytopenia or idiopathic thrombocytopenic purpura (ITP) and their families, friends and carers to each other to share their experiences. The charity also funds research and raises awareness of ITP within the medical profession.

TASSA (Sjogren's Syndrome)

The Australian Sjogren's Syndrome Association (TASSA) provides information and support to all people affected by Sjogren's syndrome. The charity is founded and run by a Sjogren's sufferer who understands the difficulty of having this little understood and often misdiagnosed condition.

Vasculitis UK (Vasculitis)

Vasculitis UK supports those with vasculitis by providing information and advice about the rare autoimmune condition. It aims to raise awareness of vasculitis among medical professionals and the public and to support research into improved diagnosis, treatment and causes of vasculitis.

FibroAction (Fibromyalgia syndrome)

FibroAction's aims to educate people about Fibromyalgia Syndrome (Fibro), including people with Fibro, their family, friends and carers, healthcare professionals and the public at large, as well as providing support to patients.

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