Biting the bullet

[Headache58]

After three years of fighting PD with exercise I am starting Madopar, wish me luck I will keep exercising 🏄

[Binday]

hi

Good luck! I pretty much did the same, but got to the point where i needed extra help and i am pleased madopar helps me so much.

😊

[Headache58 in reply to Binday]

That's good to hear, thank you

[saraoutwest]

I wish I’d started earlier. Made me feel somewhat normal again

[nednedned]

English is not my first language so I was confused when I read someone is bitting bullets.

[Ghmac in reply to nednedned]

It is a saying - means toughing it out.

[LAJ12345 in reply to nednedned]

🤣

[Edge999]

Good luck and interested how it goes.

im 1.5 years into pd. Tried madopar for the first 6 months and it just made me feel sick and didn’t help with tremors or sleep which are my primary issues. Came off it for a year focused on diet and exercise which helped. Just started macuna a few weeks ago which doesn’t make me sick but also doesn’t help my tremors or sleep. It does help my poo and mood though!

[goldengrove in reply to Edge999]

Can I ask what dose of Madopar you tried? My HwP is on 2 tablets a day (100/25, so daily dose is 200/50)) and has never noticed any benefit for his bothersome right-sided tremors or anything else. His neurologist wants him on 3 per day, saying that 2 tablets isn't sufficient. But the fact he has never felt any benefit at all makes him wary of increasing the dose. Has anyone else on the site found 2 tablets useless but had real benefit for tremor from higher doses?

[Edge999 in reply to goldengrove]

I only tried 3-4 tablets a day of 100/25 madopar for 6 months. Just made me sick . Strangely macuna for the last few weeks seems to be fine but no real great benefit yet. Propranolol does help with my tremor though.

[Headache58 in reply to goldengrove]

Hi, am on 50/12.5 , 1 a day for a week then 2 a day then 3 to early to say if they are working

[Sun_and_flowers]

Good luck! Let us know how you get on.What's been your exercise regime, if you don't mind me asking?

[Headache58 in reply to Sun_and_flowers]

Thank you and I Will , for exercise I use the Parkinson's UK stay active and exercise at home program plus lots of walking and occasional dumb bells🚶

[LAJ12345]

can I suggest you go slow taking less than prescribed for a few say to a week then if you need more add it slowly, waiting. Each time for a good few days before deciding if you need more. Some people’s experience is initial dose is too high which pushes them into side effects. If you slowly ramp it up you should be better able to find your sweet spot.

[Edge999 in reply to LAJ12345]

This is what I need to retry

[Headache58 in reply to LAJ12345]

Many thanks I'm doing just that 😁 am on the lowest dose 1 a day for a week then 2 and so on. What a journey this disease is

[LAJ12345 in reply to Headache58]

What strength are you taking? You might find if it’s a tablet that cutting it in quarters and spreading it over the day might work better if it’s not working as it is, so try that before increasing the dose. If it’s the blue capsules you can try asking for the white tablets that can be cut up easily.

[Headache58 in reply to LAJ12345]

Many thanks for your help

[Headache58 in reply to LAJ12345]

50/12.5

[LAJ12345 in reply to Headache58]

Good. Some people start on the 100/25 which can be too strong.

[JohnPepper]

What exercise were you doing? If it was not FAST WALKIG then it would not work!

Fast walking produces a chemical called GDNF in the brain, which repairs the damaged brain cells.

Do your self a favor and WALK AS FAST AS YOU CAN, FOR A MAXIMUM OF ONE HOUR, EVERY SECOND DAY!

Within two years yo will be PD movement symptom-free!

What more do you want?

John