Hi, my son is 7 and in the middle of being diagnosed with c3 just waiting on final biopsy results but hospital is starting him on MMF next week. He has really high protein in urine and albumin levels 23! He is currently on a high does of steroids (has been for 3 weeks) this all started back in April when I noticed his urine was a strange colour, luckily no other symptoms just some swelling since being on the steroids. They were treating him before the biopsy for post infection glomerulonephritis. Not really sure why I’m writing on here but just wondering if anyone is in a similar situation?
c3 7 year old : Hi, my son is 7 and in the... - C3 Glomerulopathy
c3 7 year old
Written by
Lb34
To view profiles and participate in discussions please or .
Read more about...
1 Reply
•
Hi, thank you so much for your reply! What hospital is he under? My son is under the Evelina/st Thomas in London. He has had high protein/blood in his urine for a few months and no meds would get this down, he has an ultra sounds & a biopsy. We are still waiting for part the results but they keep talking about c3 and they are going down that route with starting him on MMR next week. He is on strong steroids at the moment but they don’t seem to be working. Quite worrying really not much info around etc.
Not what you're looking for?
You may also like...
Diagnosed with C3 Glomerulonephritis
then in few weeks became 1.4 mg/dl with Alb/Creat ratio 2.5gm/g, i went for a renal biopsy and...
10yr old dx with C3G and DDD
My son was just dx with C3G and Dense Deposit Disease- I’m looking for a support group / fellow...