myopericardidis

[12dr]

so I had covid myocarditis back in 2020 I bc was rushed in really abnormal ecg they told me I had pericarditis wasn’t improving and expressed concerns of myocarditis the cardiologist said no but agreed to scan and I did had oedema and something else took me a year to improve had mri again all normal .Forward in to 6 weeks ago started getting tacycardia and felt chest pain and feeling like I can’t get a breath .Went to a&e said bloods normal troponin always was in my previous myocarditis ecg was ok a few changes apparently and sent home .Got a private consultation with cardiologist who did a echo who said it was normal had follow up as report said ef borderline low always been around 58 on echo now 50 % on my mri was 65 % also said inferiseptum mildly hypnotic which is weaker contractions I got him to compare and said finding was there last time and ef was lower said I have peri myocarditis again and arranging mri for around 6 weeks time to evaluate ef and new finding I’m on ibrobrufen and bta blocker if racy I’m really short of breath and wondering if I need to go to a & e gp is useless .Anyone ever had such a change on there ef ? What if it keep reducing how will I know ?

[Identiy]

I have had a EF of 52% since viral myocarditis 60 years ago. Now 74.

Played international rugby with it with out problems. Still exercising.

[fishonabike]

did anyone tell you that the normal range for Ejection Fraction is 50-70%? and that readings taken by echocardiogram can vary by 5-10% above or below the actual reading depending on the equipment used and the skill of the operator

EF taken by MRI tends to be more accurate

so maybe the situtation is better than you think

the main signs of things getting worse would probably be increasing pain and breathlessness and the main way of coping is to rest (as you already know) - that reduces the demands on your heart and lungs and allows the heart to recover and repair - not resting and being too active tends to delay improvement and recovery, it probably also increases the risk of permanent damage and recurring bouts of the problem

see Schora1 's comment in the other post on pericarditis today

unfortunately treatment for pericarditis is a bit hit and miss, as you are finding and it leaves you in pain and wondering if anything will ever be normal again - which is grim

[12dr in reply to fishonabike]

Thankyou .Last time I was told I didn’t have myocarditis from cardiologists who finally agreed to do mri which should I did have it , I was made to feel it was all in my head to a certain extent .Im feeling today like I’m being smothered and can’t get any air I just don’t know whether to phone anyone or not , how do I know if I need to go in I guess ? My cardiologist told me my mri is 6 weeks but in fact it’s more like 16 as I phoned and asked .I just don’t know what to do for the best x

[fishonabike in reply to 12dr]

have you tried 111 - tomorrow in office hours you could also call the British Heart Foundation helpline, their specialist nurses may be able to offer some helful advice