Hmm...I've done the calculations and ... - British Heart Fou...

British Heart Foundation

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Hmm...I've done the calculations and I think I've figured it out

Sleepybear987 profile image
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So after the two trips to the A&E and being dismissed (honestly the nurse was lovely but she said that A&E wasn't the place for me...which echoed an earlier post. It's not worth going through all the trauma, C-word exposure just to be sent home).

But I was doing some smart Googling and found this bhf.org.uk/informationsuppo....

It might explain why I am feeling squeezing in my chest. Do you think it's worth bringing it up and asking for these tests? It's been a month of chest pain and there's only so much I can take. If you can't see the link, the condition is Coronary artery spasm.

(Also when you're sick and you have to spend money on extra shopping etc. BOY does it get expensive. I just looked at my bank account and almost fell over😆).

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Sleepybear987 profile image
Sleepybear987
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Dingledaw profile image
Dingledaw

I've been told multiple times there's nothing wrong with my heart. I get agonising sharp and pressure pains at random times not induced by exercise, nor immediately linked to any sort of mental/emotional stress event. I have 'long vir-us' and through those groups can see lots of people in USA are being treated for

P O T S which is a form of dysautonomia. There's a version I'm coming across called hyperpots or hyperadrenergenicPOTS which seems to be about adrenaline being cranked up inappropriately. NHS is doing it's usual duck and dive with only a few lucky postcodes working.

I'm suspecting this cos my wearable shows physiological stress mainly at night when it records I'm sleeping but not dreaming. It thinks I'm running a marathon at HR 60-100. Sometimes my HR climbs a bit, sometimes to 80-90 not at others.

And yes, when a politician decided my family's health was disposable, we learned there's no safety net for those disabled by his choice!

I've a tip that might help... when you bring it up with your doctor and they try to dismiss it as anxiety (or whatever) - ask them for their differential diagnosis, and what tests they have run to rule this out...

If they haven't run the tests, ask them to justify it and note it on your records.

A few years back, I was told that I wouldn't be tested for endometriosis because I was overweight... I was told to lose the weight and that would relieve the symptoms (🤔).

I asked why I wasn't getting the tests, and he mentioned my weight again. So I asked if the tests stopped working because if the patient was fat, or if I was being discriminated against because I was 1 stone overweight.

I got the referral to a specialist... maybe he didn't want to write that on my notes... maybe he just wanted rid of me...

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