Private Rheumatologist in York

[Mamamia21]

I need your help again. I have recently moved to York and have been talking to the Rheumatology nurses about my prescription for Barcitinib which can only be prescribed by a Rheumy... I knew I would have to get on the waiting list to see someone but was led to believe that my prescription would be filled whilst I waited. Apparently not, and I am not considered an urgent case... I understand I am not in the true sense but I am regarding my prescription and I can't see anyone for at least 8 months. If I can't get my prescription I may end up being an urgent case... it all seems a little mad to me.

Anyway... if I can't get York to prescribe I will have to find a private Rheumatologist who can whilst I wait. Do any of you know who I could try first? Or have any suggestions on how I can sort this out.

[Bcol]

Hi, I know you have now moved but would your previous Rheumy be able to give you a prescription to tide you over until you get a chance to see the new one. It might be worth a phone call to explain the problem.

[Mamamia21 in reply to Bcol]

The problem is that Guernsey is not on the NHS system so unfortunately not. I have phoned to ask for help but am not too hopeful but you never know.

[PMRpro Ambassador]

What an appalling situation - do they do the same for diabetic supplies I wonder!

This guy does private work and works in York NHS - the second link gives phone numbers which may be useful for you to contact a secretary. I think that is worth a try.

nuffieldhealth.com/consulta...

finder.bupa.co.uk/Consultan...

[Mamamia21 in reply to PMRpro]

Thanks it is good to have a starting point at least 😊.

[PMRpro Ambassador in reply to Mamamia21]

Seeing him would have the advantage of him being able to sort something in the NHS if it is possible. When I first looked I got some names (not him though) who I assume are in Leeds. One of them was a doctor I really wouldn't recommend although he may be better at things other than PMR! So do ask me if you decide to head for Leeds although that does have problems getting private and NHS aligned as they are different Trusts again.

It does seem very poor that people who move are reliant on the previous doctors - you at least were within the UK so travelling to see them is possible. When I looked at GPs the instructions were to be sure you had 6 months supply of medication - I'm not sure if I could do that as some medications I take are strictly limited on how much I can collect at one time. I have a very close relationship with my doctors here so I'm sure they would arrange something but more than 6 months-worth seems difficult to envisage.

[Mamamia21 in reply to PMRpro]

Thanks PMRpro, I have gone back and left another message for the Rheumatology nurse saying that there was no way my Guernsey specialist could prescribe anything as it would not be valid in the UK. As I have left Guernsey I am not under them anymore... I did try contacting the specialist who works in Guernsey but is from Salisbury hoping she could do something and she said no... another door closed 😒. I was trying to stock up but like you said I had difficulty as they could not give me more than I needed per month. I managed 2 months extra but that was all...

If I have no luck I will contact your person. Thanks 😊

[Poshcards]

just a thought... maybe ring 111 and see if they can help xx